06-26-2011, 10:08 AM   #1
Lydia
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Gluten free begins.

I am on day 2 of my GF diet. Not just for me but for my daughter as well. So far so good. I have a few reasons to suspect gluten is bad for me. One of them being recurrent pregnancy loss. All the tests I have taken for this have come back normal, so I am on to trying new things. My daughter has a lot of bloating and gas, and sometimes constipation issues, so I hope to see this help her as well. We tried dairy free for us and that did not remedy the problem, so maybe its gluten.

I get breakthrough symptoms before my next infusion is due, and I am curious to see if GF will prevent that. So I will be on the diet for at least 8 weeks.
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06-26-2011, 10:52 AM   #2
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Good luck with the gluten free diet, its made my life a lot more bearable and I hardly get 'D' anymore. Although it is a little tricky getting enough calories.

I've got a good health food shop near me and although its expensive, there are lots of gluten free options, including stuff for kids - hopefully you're not in too much 'isolation'!

I can't stress enough for people with Crohn's to see if gluten is effecting them.

Keep us posted on the results

P.S Love the sweet potato!
06-26-2011, 01:20 PM   #3
MumofOli
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That's really interesting because we are flirting with the idea of going gluten free, we do bits and pieces now but are considering going totally GF in the hope that it will help our son.

Please let us know how you get on.

Treena x
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06-27-2011, 03:47 PM   #4
Beach
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Best of luck on the diet! Avoiding wheat helped my gut out considerably.

Along the lines of avoiding wheat and pregnancy loss, recall reading about this fertility doctor that was having success with patients that ate low carb.

"Low-carb gynecologist"
http://www.trackyourplaque.com/blog/...ecologist.html
06-27-2011, 08:59 PM   #5
Lydia
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I am doing well so far on the diet. I have a camping trip coming up and I think it will be fun to plan a GF camp trip. We will have 1 steak and baked potato night for sure.

My DD has been asking for goldfish crackers, and its been hard to explain to her why she cant have them anymore.

I bought some over-ripe bananas to make GF banana flax muffins with. I made a batch this morning and my DD loved them. We had pot roast tonight for my DHs birthday.
07-03-2011, 08:21 AM   #6
Miggles
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If your kidlet is pining for goldfish crackers, you could try the Annie's Homegrown gluten free bunny crackers? I'm not sure if you have the brand available to you, but they do an awesome Mac and cheese too which the kids might appreciate. going gluten free was the best thing I ever did for my crohn's - if I have wheat now, i can expect "results" like clockwork now! But things have basically returned to normal, save the occasional flare (which is usually traced to fibre).
I don't know how experimental you've been with gluten free cooking, but I've been sporatically posting recipes and products on a blog - the flour recipe might be helpful for you! . http://pantryalchemy.blogspot.com/
07-04-2011, 11:30 PM   #7
SarahAnne
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Wow...I have a friend with Celiac and he has been urging me to try a Gluten free diet for my Crohn's. After this last hospital visit, even my hubby mentioned it. The only reason I haven't started it is because I would have to do it just for myself, I don't see the two little ones going for it. I can try to incorporate it into their diets slowly, they don't do well to change, especially not abrupt change. I'm willing to try anything to stop the bloating and painful gas.
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07-17-2011, 01:45 PM   #8
Lydia
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Still GF. I do notice less bloating. I have some bad days, but its a lot less often.
07-17-2011, 03:16 PM   #9
old_motters
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It's awesome to see someone try this. I decided to try for gluten free a couple of days ago and had our first GF meal tonight (spaghetti). It went down ok!
07-18-2011, 03:11 PM   #10
Lydia
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I get by ok with GF pasta, bread mix, pizza dough mix, soy sauce and worchestshire sauce. Everything else I eat is naturally gluten free. Now that I hace the soy sauce I can do GF stirfrys. I love asian food.

I have rice pasta which is great, but I also bought corn pasta which I have yet to try. Its a pretty golden color.
07-21-2011, 06:04 AM   #11
num1habsfan
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One note of advice... remember that gluten hides in more than just food. It's in makeup, hygiene products, and for your daughter's sake it's even in playdough.
If you are willing to try bread, I suggest any of the Udi's loaves. Expensive, but it's as close to real bread as you can get. If you're looking for bread with extra nutrients and high fibre, try White Sandwich Bread by Kinnikinnick.
The best corn pasta is Mrs. Leepers.

I've been Celiac for the past 8.5 years now so I definitely have tried a lot and experienced a lot.

When I get glutened, not only do I get the bloating, D, stomach pain, etc but I also get severe migraines and 'brain fog'. 'Brain fog' is having memory loss for a short period of time. I have a prime example: once when glutened I forgot the name of someone i've known my entire life :X

I am EXTREME sensitive. There is a foreign beer sold up here and it has 6ppm of gluten which is considered gluten-free in the country of origin. Pretty sure in Canada it is 3ppm. When I drink the beer with 6ppm I get ill - cramped, bloating, headache. Or, if someone uses a utensil before me, or loses a few crumbs somewhere and I eat them. All enough to make me sick for about a week!

If you have any questions about being gluten-free or want more suggestions of products, just let me know
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07-27-2011, 02:23 PM   #12
outlier
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just posted about this too. how long are you trying this for? what was the hardest part about starting?
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07-27-2011, 02:30 PM   #13
Lydia
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Honestly the hardest part was picking a day and just doing it. You may not get it perfect at first but cutting the main starches that have gluten is a great start. Then going throught the condiments. I realize that both soy sauce and worchestershire have wheat, so I went out and found GF versions.

Meat and potato dishes, and meat and rice dishes are always easy and naturally GF so long as the seasonings dont contain it.

The hardest part is the baking. Its a little tricky, but I havent made anything I could not eat yet.

I want to give it at least a solid 3 months.
07-27-2011, 02:42 PM   #14
outlier
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wow! three months.
07-27-2011, 02:47 PM   #15
JoleneZ
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Wow this makes alot of sence and i think that i am going to try it! Have you had gf bread yet? how does that taste?
07-27-2011, 03:41 PM   #16
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I reluctantly went gluten free four weeks ago. I was diagnosed with Crohn's in January. I have been off of dairy since March. I noticed a huge positive difference going off of dairy. Gluten has been a little more subtle, but I do notice some improvements -- heartburn has gone away, more regular BMs, less bloating. Eating at home is pretty easy. Most nights, I am "fending" for myself. The family eats dairy and gluten. Besides being ravenously jealous on pizza night, I have adjusted fairly well. I like the Udi products -- bread and muffins. Toast the bread, it is much better toasted.
07-27-2011, 07:32 PM   #17
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I've been gluten-free since March, after a really bad obstruction/hospitalization. I'm getting to the point where I'm desperate and willing to try anything to see if it keeps me out of the hospital. I started a complete elimination diet to try to see if anything triggers my problems.

Gluten-free was really, really hard. Definitely the worst dietary alteration I've had forced on me. I'm vegetarian, which was pretty easy and so long ago (1987!) I barely remember eating meat. After Crohn's, veggies are out, which was awful. But gluten-free is the only alteration that pretty much eliminated me from most restaraunts and made everyone in my life scared to have me over for dinner. No one has had us over to eat since I became gluten-free. Even my own sister and mom make me bring my own food to family events. I had hoped it would get easier by now, but honestly it really depresses me. Eating at home is OK and I've done really well baking and substituting with gf products, gf pasta and breads are OK, I make amazing gf cookies and cupcakes, but man, I miss eating out at restaurants. I'm getting sick of the local options . . . Thai and Japanese. They're great, but what I wouldn't give to eat at my favorite pizza restaurant again . . .

Still, if I could add something back to my diet, it would still be vegetables. I could live without gluten *or* vegetables, but living without *both* is awful.
07-28-2011, 07:58 AM   #18
Cookie
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I have been gluten-free for 2 months and it has made a HUGE difference for me. Not just in my gut, but also in my mental state. I really do think there is something to that whole "brain fog" think. I think it may have to do with yeast as well (which i also eliminated). It is hard, but definitely worth it to me. I have "cheated" once or twice, and definitely noticed the difference.

As peleburrows said above, I would definitely suggest that any one with digestive problems (IBD and particularly undiagnosed) at least give it a try. I was desperate enough to do anything. If you are feeling poorly, it's definitely worth a shot.
07-28-2011, 08:33 AM   #19
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I also have had great results going gluten free (although I have only been on the diet for a little over a month).
Here is my absolute favorite GF snack. I could live on these!
"Namaste Foods" Gluten Free Muffin Mix (16 oz, comes in a brown paper bag)
Add 4 packets of stevia and fresh blueberries to the mix. (stevia- because I am on a refined sugar free diet too, and fresh blueberries- because frozen makes the muffins soggy)
They make cake mixes too, but they aren't as good.
These are the perfect thing to grab in the morning on your way out.
Good luck with the diet everyone!
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07-28-2011, 07:02 PM   #20
Lydia
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I buy this breadmix brand called Dunkernen (sp). Its really good when its fresh, and I use for toast or french toast when its not so fresh. But on the first day it almost passes as real bread.
07-28-2011, 09:59 PM   #21
outlier
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figuring out when to start is hard i have so much food with gluten it turns out.
07-29-2011, 09:09 AM   #22
sunflower
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In my head, trying GF sounds so right! I know that it is the right thing to try. But, then I look in my kitchen and just cringe because it seems like such a daunting task. I have asked about Celiac before, but doc didn't think it was worth it to test. I will keep coming here and try to talk myself into it! LOL!! Oh, and the other thing I worry about is that since I am diabetic, my sister told me that the GF flours have higher net carbs than wheat does. Does anyone know anything about that??
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07-29-2011, 06:07 PM   #23
StarGirrrrl
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In my head, trying GF sounds so right! I know that it is the right thing to try. But, then I look in my kitchen and just cringe because it seems like such a daunting task. I have asked about Celiac before, but doc didn't think it was worth it to test. I will keep coming here and try to talk myself into it! LOL!! Oh, and the other thing I worry about is that since I am diabetic, my sister told me that the GF flours have higher net carbs than wheat does. Does anyone know anything about that??
If you are diabetic then I wouldn't go GF on your own, get some professional dietry advice
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07-29-2011, 06:50 PM   #24
Lydia
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In my head, trying GF sounds so right! I know that it is the right thing to try. But, then I look in my kitchen and just cringe because it seems like such a daunting task. I have asked about Celiac before, but doc didn't think it was worth it to test. I will keep coming here and try to talk myself into it! LOL!! Oh, and the other thing I worry about is that since I am diabetic, my sister told me that the GF flours have higher net carbs than wheat does. Does anyone know anything about that??
It also depends on the flour. There are things like almond flour, chickpea flour and other bean flours that have more protein than carbs.
07-29-2011, 10:18 PM   #25
sunflower
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Ah, okay. Thanks for the heads up!
08-29-2011, 11:12 AM   #26
outlier
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hows the gluten free going?
i bowed out after a week and gluten free scones giving me worse heartburn then anything else. oh well it was worth a shot. Hope yours is working
08-29-2011, 11:53 AM   #27
num1habsfan
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I am curious about your progress, too!
Have you eliminated gluten just from food, or from other sources as well?
08-29-2011, 02:35 PM   #28
Lydia
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I was strict about it till my birthday last week. I notice more gas and bloating when I cheat. I am going to my brothers wedding this week and I will go back to the more strict GF diet when I return from the big city.
08-31-2011, 02:21 PM   #29
LtHuff
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Seeing how its going with you all and your gluten free attempts. I am now at the beginning of my third week and absolutely hate it!

Especially when it is over your birthday. The cake wasn't too bad, I just snagged some extra frosting
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09-01-2011, 01:14 PM   #30
Crohny
 
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I have been gluten free for several months, and not had a flare up until just recently.
My wife and I won a pie making workshop contest with a lady from the food network, and spent the entire day eating PIE. It was sooo great! ...Until that night... I spent the entire night/morning throwing it all up.
I suspect gluten is to blame... or maybe it was glutton. I think all of the delicious pie crust messed me up pretty bad.
The doc wanted to do a dialation of the stricture, but I held him off... I have been back on the gluten free diet now for a couple of weeks (this time I am much more strict), and I feel pretty good.
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