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07-05-2011, 02:28 AM   #1
DustyKat
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Update On Welsh-bird - Serious

I have received a message from Andrea and she has asked that I pass this update onto you all...

Andrea had a scan of her lungs a few days ago and unfortunately it has confirmed that the cancer has spread there. This now also means that her cancer has been upgraded to a Stage 4.

Understandably this is devastating news for her and those who are close to her. She is so appreciative of the support she has received from the members of this forum and will continue to check in here when she is able.

Andrea has asked if we could please respect her privacy at this very, very difficult time and keep contact with her via this thread only.

Dusty.
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07-05-2011, 02:34 AM   #2
AndiGirl
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This is so sad. Andrea, you are still in my heart and prayers. May you find comfort and peace. Lots of love to you.
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Diagnosed with Crohn's Disease in 2005

Pentasa 2x500mg (4 times a day)
Zofran (as needed for nausea)
Ginger Capsules (for Nausea)
Multivitamin
Zoloft 150 mg
Ranitidine 150 mg (2 times a day)
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07-05-2011, 03:33 AM   #3
rygon
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awful news. Thoughts go out to her and her family

Last edited by rygon; 07-05-2011 at 07:06 AM.
07-05-2011, 04:21 AM   #4
Misty-Eyed
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I don't know what to say other than she's always in my thoughts.

Thanks for the update dusty, do you know what the action plan is now?
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
07-05-2011, 05:19 AM   #5
Dexky
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Very sorry to hear this And and Julien. You continue to be in my thoughts and prayers.
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
07-05-2011, 05:29 AM   #6
StarGirrrrl
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No doubt about it, Andrea and her family are in my thoughts, love and prayers.
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2006. Tummy issues (more IBD than IBS).
2009 joint pain/worsening tummy issues.
CRP 20-36 2006-now. C3/C4 inflammation markers huge,
2014 IDA & low B12.

June 2014 admitted to Hospital 3 nights as emergency transfused 2 units of blood. Dangerous case of anaemia.
Caught by pure chance!
Cause currently unknown but suspected CD.

Waiting on blood & stool results from January.

Hoping to stop anaemia treatment soon & lower B12 daily dose!
07-05-2011, 08:04 AM   #7
Entchen
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Praying for comfort through this difficult journey, Andrea and family.
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Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
07-05-2011, 08:51 AM   #8
archie
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Thank you for the up-date, thinking about you Andrea at this very difficult time, keep strong xx
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Archie

Diagnosed Crohn's 2010
ileocecal resection 2010
Meds: Nil and in remission

07-05-2011, 09:17 AM   #9
HeatherMN
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Thinking of you and your family during this hard time! You have lots and lots of people praying for you around the globe!!
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Heather
Crohn's diagnosed in 2001
Gallbladder removed May 2005
Appendectomy January 2011
Humira 40 mg; also Flexeril, Wellbutrin XL, Klonopin, Salagen, vitamin D,
co-Q-10, DMAE, biotin, acai, multivitamin with ginger
07-05-2011, 09:35 AM   #10
Grumbletum
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This is devastating news, Andrea. If only love could heal, because there is so much of it coming your way xxx
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Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
07-05-2011, 09:43 AM   #11
Rebecca85
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So sorry to hear this, will be thinking of you x
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Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
07-05-2011, 09:51 AM   #12
Cat-a-Tonic
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This is so sad and horrible. I don't have the words to express how heartbreaking this is. Andrea has been through so much lately, it's just not fair. Andrea, if you're reading this, I'm sending you all the happy thoughts, hugs, well wishes, luck, and whatever else I can muster up. I will keep you in my thoughts, and I hope you are able to beat this!
07-05-2011, 10:18 AM   #13
LOSTnut
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Keep on fighting -- my thoughts and prayers are with you and your family during this difficult time.
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Heike

Diagnosed: April 2005

Back on Asacol

Dec 2010: colostomy/resection - failed
Jan 2011: Ileostomy
Resection planned for: sometime
07-05-2011, 10:37 AM   #14
bruscar
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All my love to you Andrea, you are 100% in my thoughts and prayers.

All my love

Bruscar
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5 surgeries,(so far!)Crohn's colitis,permanent ileostomy,post herpatic neuralgia (from shingles)
07-05-2011, 10:44 AM   #15
dreamintwilight
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Praying over here! So sorry to hear this news.
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Marisa
February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!


Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
Biotin
Allegra
07-05-2011, 10:54 AM   #16
gypsigirl28
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My thoughts and prayer are with you Andrea and family. Keep up the fight
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Rosemary
Grandmother of Madasin
Madasin was diagnosed at age 22 months old
with UC
07-05-2011, 11:33 AM   #17
Terriernut
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I'm praying for you Andrea. Wish there was something I could do for you. You know you need only ask.

Much love xxxxxxxxxxxxxxxxxx
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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07-05-2011, 01:01 PM   #18
bushydougie
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I agree withe everything above. You are always in my thoughts Andrea and this is devastating news. But I know what you are like and I know that you will be fighting this completely.
If there is anything I can do to help at all please let me know
You shall continue to be in my thoughts and prayers over this difficult time
Much love
xxxxxx
07-05-2011, 01:05 PM   #19
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This is terrible to hear Both Andrea and her family are still in my thoughts and prayers. Lots of love <3
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18 year old Biomedical Science student.
Diagnosed with: Aspergers Syndrome - Feb 2010; Hiatus Hernia - Feb 2011; Crohn's Disease - March 2011


Currently taking: Mercaptopurine 25mg (four times a week), Pentasa 4000mg, Omeprazole 20mg
Previously taken: Mesren MR, Sertraline, Folic Acid, Multivitamin, Azathioprine, Lactulose, Prednisolone, AdCal-D3, Ferrous Sulphate


07-05-2011, 01:44 PM   #20
glum chump
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Dusty: Thank you so much for the update.

Andrea: I hope you can find a place inside you to keep hope, vitality, and your spirit alive. You also have spark and spunk in spades, and so I hope you can find a way to keep kicking and screaming. And having a good cry.

Wishing you much tenderness, strength, and care as you and your family negotiate all of the news.

Sending you all the healing energy I can muster,

Kismet
07-05-2011, 03:25 PM   #21
Crohn's Mom
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I am at a loss for words ...
Sending all the love in the world to you Andrea.

~T~
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
07-05-2011, 03:38 PM   #22
DustyKat
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Do you know what the action plan is now?
They have now developed a more holistic approach to Andrea's treatment, that is, involving all the doctors that care for her, so her GI and GP are also on board with what is happening and can assist with her care. Andrea's GI is keeping a close eye on the CD side of things.

As you know the remaining cancer around her bowel, lymph nodes, has been removed and now the chemotherapy dosage has been increased and regime upgraded to deal with the secondaries in the lung.

Dusty.
07-05-2011, 06:40 PM   #23
Keona
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YO!!!

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Dx GERD 2008
Dx Gastritis & hiatal hernia Feb 2010
Dx non-definitive Crohn's June 2010
Dx Endometriosis April 2011

"if nothing changes - nothing changes

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07-06-2011, 02:43 AM   #24
Scifimom
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CANCER STINKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!

ARGHHHHHHHHHH

Possiive thoughts from Greece for Andrea.

and



for cancer
07-06-2011, 02:53 AM   #25
Becca1991
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So sorry to hear that Andrea even tho u don't know me and i don't u, i am thinking of you
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Dx Terminal Ileitis Oct 09 (Age 17)
6/6/12- 12/6/12: Mini flare but gastro doc put it down to stomach bug
2/2/15-?: Mini flare awaiting calprotection levels. Calprotection levels: normal

Current Meds
Azathioprine 50mg
Allopurinol 100mg

Been on
Azathioprine 50mg x3
Humira April-August 2010
Prednisone October 2009-July 2010
Folic Acid
Multi Vitamins
Calcium 2500g
Vitamin D
Ranitadine 2x 150mg
B12 injection
Ciprofloxacin 500mg
07-06-2011, 06:53 AM   #26
Misty-Eyed
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Thanks for info dusty, do I dare ask the prognosis?
07-06-2011, 10:20 AM   #27
xJillx
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Sending thoughts and prayers your way each and every day, Andrea. XOXO
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Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
07-06-2011, 12:15 PM   #28
littlemissh
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I am so sad to hear this. Thinking of you, your family and friends.
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Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
07-06-2011, 03:22 PM   #29
DustyKat
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do I dare ask the prognosis?
20-40% at 5 years...

Dusty.
07-06-2011, 05:43 PM   #30
Becca1991
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Can i ask do they know how the cancer started was its meds or just the disease??
Thanks
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