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Crohn's Disease Forum » Your Story » Success Stories » Good news from the doctor


07-06-2011, 10:49 AM   #1
lookame
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Location: Columbus, Ohio

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Good news from the doctor

I've been lingering around wondering if I should post this. If you remember from my first post on here I saw a GI Aug 2009 and was given a colonoscopy right away. The colonocopy showed inflammation and he said I had UC but wanted to wait to treat me...well he never treated me and he refused my phone calls. I spent the next year "dealing". I went to the ER a couple of times and was given some IV fluids, CT scans and then sent away with pills that wouldn't help(and they told me they wouldn't help) Finally Aug 2010 I got so bad that I needed a blood transfusion and was in the hospital for a week. Then I was diagnosed with severe UC, later biopsies and bloodwork came back crohns. I later found out that in a year the disease had ripped through my entire colon instead of being localized in a transcending colon.

After my diagnosis I felt much better, I was sent home with prednisone and lialda. The prednisone had me in remission but after weaning off it the lialda wasn;t enough to keep me in remission, so I was prescribed 6mp. I was put on 25 mgs at first and it went ok but after bloodwork came back it wasn't good enough so my doctor put me on 50mgs. With everything combined together it has started to work, and after bloodwork it shows everything working together. I can officially say I am in remission
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Diagnosis: Confused officially diagnosed in 2010

Bloodwork is indeterminate IBD, biopsies are crohns positive, symptoms and visually it's UC

Current meds-
Prednisone, humira, 6mp, and lialda
awaiting surgical consult

Mom of Little Z
eosinophilic esophagitis 5/2015
07-06-2011, 11:39 AM   #2
tiloah
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So glad to hear you're in remission. Hope it lasts forever.
07-06-2011, 12:03 PM   #3
adkplunk4
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Location: Haubstadt, Indiana
Glad they found out what was wrong so they can get you feeling better. I have had crohns for 23 years. I have been on Remicade for 10 years and that is all I am on. I don't have any problems and I feel good.
April
07-06-2011, 02:13 PM   #4
xJillx
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Hooray! I hope you have many, many blissful years of remission!
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Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
07-07-2011, 02:31 AM   #5
Jennifer
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That's great! Welcome to remission!
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
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