Crohn's Disease Forum » Extra Intestinal Manifestations » Nose/Sinuses » Crohn's Disease and nasal sores

 
07-07-2011, 12:34 PM   #1
Alice3
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Crohn's Disease and nasal sores

I was diagnosed with Crohn's Disease a couple of years ago now. For about a year, I have been getting nasal sores. It's almost like I'm getting canker sores in my nose. At first I thought it was allergy related, but now I'm starting to wonder if it is related to my Crohn's Disease. It seems like I get them especially bad just before a bad flare. Does anyone else get sores in their nose that they attribute to their Crohn's?
07-07-2011, 01:29 PM   #2
Grumbletum
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Yes, Alice. When all this kicked off I was getting them in my nose too. They seemed to appear at the same time as similar ones in the corners of my mouth, and were not like cold sores at all.
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07-07-2011, 02:37 PM   #3
Lisa
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yup - I've had them too...last year when I had a bout of strep, I broke out in sores all over the inside of my nose and my lips.....
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07-07-2011, 02:52 PM   #4
Astra
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Yeah me too Alice, and my mate Danielle who has UC
Must be an IBD thing!
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07-08-2011, 12:53 PM   #5
Sha0913
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i get them too, i hate them, they make me miserable.
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07-11-2011, 11:07 AM   #6
jbmann33
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I get them also! I have had them for moinths now, they take forever to heal! I am on Cimzia injections for my Crohns. I have often wondered if they are from my Crohns bc my allergies have been bad here lately but I have never had these sores in my nose like I do now, they hurt really bad. I wonder what causes them?
07-11-2011, 12:35 PM   #7
AndiGirl
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I've had sore in my nose. I think it is related to my CD.
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Diagnosed with Crohn's Disease in 2005

Pentasa 2x500mg (4 times a day)
Zofran (as needed for nausea)
Ginger Capsules (for Nausea)
Multivitamin
Zoloft 150 mg
Ranitidine 150 mg (2 times a day)
Entocort 3 mg (3 capsules by mouth for 8 weeks, then tapering to 2 capsules for three months)
07-11-2011, 06:01 PM   #8
silvermander
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Huh, I hadn't put my nasal sore together with Crohn's, but it does make sense.
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Small Bowel Resections - 6 - had a fistula and 6X8 abscess, as well as some small bowel removed - 9/2/11
New abscess, named Albert! 7/7/12
Prednisone - Way too much & never again!
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07-11-2011, 07:01 PM   #9
Crohns10
 
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I hadnít put that together either, but I had them terrible before I was diagnosed. Since I have been on the Remicade I donít seem to have a problem with them.
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07-12-2011, 10:56 PM   #10
soretum
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yes I've had them too!
07-18-2011, 04:18 PM   #11
prettykitty
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Me too! I'd never attributed them to CD...
07-18-2011, 10:09 PM   #12
ameslouise
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Whoa. Is there no end to what is Crohn's related??? I have had a sore in my nose since after my surgery (4 months). It just won't heal. Of course, I keep picking at it, but still, it just won't go away. Never thought about it being CD related!

Thanks for posting this thread, glad to know i"m not alone!! -Amy
07-18-2011, 10:33 PM   #13
Lydia
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ZOMG Me too. I have this scabby sore thing in both my nostrils and it wont completely heal. I am guilty of picking at it too. hehe.
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07-19-2011, 11:45 AM   #14
bwightman
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Add me to the list! I never would have connected it to Crohn's if I hadn't seen this thread!
09-02-2011, 05:38 AM   #15
Paddy Holmes
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Me too! Wow, I'm so glad I joined. I feel like my education is just starting!
09-05-2011, 04:54 AM   #16
JJ_777
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I have got one in my left nostril right now... it has been there for almost two weeks and started exactly a week after I tapered down my dose of entocort from 6mg to 3mg. At the same time the nose sore started, the nausea kicked in... the joint pain... stomach aches and diarrhea ... So I truly believe that it is definitely CD related!! Needless to say I have gone back up to 6mg again... but this sore just does not want to budge :-(
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09-10-2011, 11:03 AM   #17
JMC
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I too have had problems with nasal sores in the past. Interestingly, I cannot recall ever having problems with this since taking azathioprine.
09-10-2011, 04:00 PM   #18
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YEP iVE GOT IT TOO LEFT NOSTRIL only .. plus i did have sores in the corner of my mouth .. i didnt relate it to Crohn's either . thought it might be a defiency of some kind .. i waas very low on pottasium , magnesium and calcium just befor my April op , haVING IT ALL ORALLY NOW , my pottasium keeps droping gthon , wonder if its related . i was very dehydratyed tho ..

Its like a lil club here .. lol
jan
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09-11-2011, 09:10 AM   #19
Paddy Holmes
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Why don't they tell us what to expect? It's not as if we have some neurotically induced ailment that we may try to 'big up'. This forum has made me feel human again and I am starting to feel less like a freak...a bit...
My theory into why Crohns is so little researched is that in itself it's not life threatening. There are times, at it's worst, that I've wished that I did have cancer; at least then you can get answers and sympathy!
The need for morphine during blockages is intense but I'm working hard to avoid A&E, the last visit was 7 hours before a bed could be located and being hassled by drunks looking for cigarettes. The staff were so busy they didn't have time to intervene!

Still...could be worse, eh?
09-12-2011, 07:35 PM   #20
lseibert
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I have had them since my surgery 6 months ago...I kept wondering why it wouldn't heal. One more thing I hate about Crohn's.

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Crohn's Disease and IBS
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Yeah, 3 surgergies in 13 months
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Imuran (azathioprine)= Pancreatitis
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09-15-2011, 01:10 AM   #21
Emily
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hahaha i'm not alone!! they are the bane of my existence and i pick at them constantly. although they were the absolute worst when i was on entocort
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currently taking Humira, Zantac, B-12 injections, Vitamin D, and Entocort.

2nd year pharmacy student. thanking Crohn's all the time for leading me to my passion in life!
09-15-2011, 06:43 AM   #22
JJ_777
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That's what I'm On!!! And I had THE worst nasal sore last week!!!
10-02-2011, 02:55 PM   #23
kenyasolovely
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I get them too
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Kenya 35
Dx'd 2011 - Crohns
Mercaptapurine, Prednisone, Pentasa, Cipro/Flagyl, Percocet (for pain?!? why even bother )
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11-29-2011, 10:12 PM   #24
suschex
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Me too...nose and corner of mouth.
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Crohn's Disease - October 10, 2011

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Etc.......
11-30-2011, 08:03 AM   #25
Paddy Holmes
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what we all seem to have in common is a sense of humour! and positivity!
Is it always like this for you all? I have times when I'm just so tired...of the frequency, the changing bags( ileostomy), headaches and generally being fed up that I could go to bed and not get up!!!
I'd love to know I'm not alone and hear some moans,'cos I feel like I'm the only one not coping ...it'd make me feel more normal(?)
11-30-2011, 07:15 PM   #26
ctrl z
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Wow.

So, I've had a raw sore appear in both my nostrils next to the septum. I didn't think of it as being Crohn's related.

I rubbed extra virgin organic coconut oil in my nostrils for a few days and the sores went away.
12-02-2011, 10:05 AM   #27
JudithC
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Paddy, the feeling is felt by many of us.
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Judy

now:
Remicade
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Vitamin C


tried:
Entocort
Pentasa
Prednisone
12-02-2011, 01:52 PM   #28
xX_LittleMissValentine_Xx
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I have it too!
Only one in my right nostril and it always comes up in the same place!
Takes a while to go and to come back again. But it is always very sore!
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12-02-2011, 02:16 PM   #29
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Yeah, I turn into rudolph every few weeks or so. Usually the left nostril gets sore and the top of my nose gets really red. Seems surprising it would have anything to do with my digestion, but I did not have that problem before I had digestion difficulties. It hasn't happened since I've been on the prednisone, and hopefully the Imuran will stop it after that.
12-12-2011, 02:56 PM   #30
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I've been getting them a lot too, now that winter is kicking in. Not sure if it's the Crohn's or just the real dry environment in the house. I've been using saline nasal spray...seems to help some.
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