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07-26-2011, 10:19 PM   #1
Jennifer
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Noooooooo! Not mucus! D:

Its been forever since my surgery and now I suddenly have mucus! This is terrible! I'm having blood work done tomorrow anyway but I'll also have to call my GI tomorrow and let him know. I better not be out of remission. This sucks! I hope my recent weight loss isn't due to being sick again and that its really from being a little more active. LAME!
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
07-26-2011, 11:04 PM   #2
Jessi
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Bummer! I hate that feeling that we have to live with... wondering all the time...

I hope it's not a flare, for your sake. Remember to not stress out. Easier said than done, right? Try meditating or do some yoga. Nice warm baths help to calm my nerves.

Be well, friend! *hugs*
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Dx'd with Psoriasis in 1993
Dx'd with Psoriatic Arthritis in 2004
Dx'd with Ulcerative Colitis on May 18, 2011

"Life isn't about waiting for the storm to pass... It's about learning to dance in the rain." ~Anon.
07-27-2011, 12:23 AM   #3
littlemissh
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I'm sure our bodies like playing these little games just to mess with our minds!
I really hope that this isn't a flare, fingers crossed your bloods etc are ok. Are your bloods a good indicator for you in telling you if you have active disease, lets hope so and you can get a quick answer!
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Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
07-27-2011, 12:58 AM   #4
Jennifer
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Blood work has always been a good indicator for me. My last scope was in November of last year and everything was fine. While in remission I really only have scopes done every 3 years. I had a barium swallow last year as well around the same time and all was clear then too.
07-27-2011, 08:57 AM   #5
Mayflower537
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Hope you are still in remission, Crabby, and that this is just some sort of fluke.
07-27-2011, 01:14 PM   #6
Tesscorm
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I'm hoping your results are good news!!! And that this is just a one-time thing!
07-27-2011, 02:32 PM   #7
Jennifer
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Me too. Got my blood work done and left a message for my GI since he's not in today. We'll see what happens.
07-27-2011, 03:07 PM   #8
Astra
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Hope it's good news, it would be a shame for it start kicking off again, you've done sooooooooooo well!
xxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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07-27-2011, 03:55 PM   #9
Crohn's Mom
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Awe Crabby .. I hope it's not a flare!
I love seeing your 12 years remission in your signature! It must stay!
I hope you get your results soon !

hugs
xoxo
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and Austin (18)
DX: Crohn's 7/2013
07-27-2011, 05:24 PM   #10
DustyKat
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Oh man Crabby! I couldn't believe it when I saw the title and your name!

I have got everything, and I mean everything, crossed that all be AOK!

mate! and loads of well wishes headed your way.

Much love,
Dusty. xxxxxxxx
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07-27-2011, 09:45 PM   #11
25times
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I hate that! You'll feel great for however long, then that one little thing happens and it fills you with dread, and questions, and worry and stress. I'm sitting here, saying in my head, it's nothing it's nothing it's nothing, she'll stay in remission. So I hope I'm right! Let us know about your bloodwork! I hope everything is good and normal and the mucus is just... mucus. And it goes away.
I'll be thinking of you!
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Samantha
Officially in remission from crohns.
Rheumatoid arthitis
Ovarian tumor (getting removed!)
Possible multiple sclerosis diagnosis


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07-27-2011, 09:51 PM   #12
Jennifer
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Ha! I wish mucus was just mucus. Its a sign of inflammation. I'm hoping its very very minor and easily nipped in the bud. I've been feeling odd about saying that I'm still in remission in other posts. I guess I shouldn't be but its hard to not feel like a fraud.
07-27-2011, 10:06 PM   #13
Entchen
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Hoping for a quick resolution to this for you.
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Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
07-28-2011, 01:33 AM   #14
25times
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Maybe your colon has a cold hahahah. Have you been farting alot lately? Farting could be the "colon cough"
07-28-2011, 09:27 AM   #15
xJillx
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Has the mucus continued? Any word on the blood work? I sure hope something isn't brewing!
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Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
07-28-2011, 12:14 PM   #16
Jennifer
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So far no it hasn't continued. I haven't gotten a call from my GI yet and I haven't heard anything about the blood work yet either.
07-28-2011, 12:16 PM   #17
Tesscorm
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Really, really hoping for the best news for you!!!
07-28-2011, 01:48 PM   #18
KaLa
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Hang in there, Crabby! Did you recently have a cold, or do you have bad allergies? Try to think positively while waiting for your blood test results.
07-28-2011, 02:08 PM   #19
Jennifer
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Nope no allergies or cold lately.
07-28-2011, 02:18 PM   #20
Carrie
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Oh Crabby, I hope this is a one-off event. I know how much it blows to come out of 10+ years of remission. It's a bit scary, and totally blows.

I'll keep my fingers and toes crossed that your blood work comes back OK; keep us posted!
07-28-2011, 02:19 PM   #21
littlemissh
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Waiting is the pits! Hope you hear soon and all is well.
07-28-2011, 03:49 PM   #22
xJillx
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So far no it hasn't continued.
Well, that is good news.

Crossing my fingers for you, Crabby!
08-01-2011, 09:33 PM   #23
Tesscorm
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Hope you results turned out well!!
08-02-2011, 05:13 AM   #24
Jennifer
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Haven't gotten them yet. GI doesn't like to keep in touch apparently. At least my GP ordered the same tests (plus more) and I have an appointment with him next week. Would be fuel to beat a reaction into my GI if anything pops up.
08-02-2011, 07:18 AM   #25
scottmyster
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HI crabby, i hope your tests come out fine and it's only a one time thing and you will soon get back to your normal self again.
08-03-2011, 04:28 PM   #26
Terriernut
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Crabby!!! Noooooo. You are NOT in a flare, you SHALT NOT FLARE.
I am hoping its nothing at all! And thats why the GI didnt call.

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DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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08-04-2011, 10:09 PM   #27
Jennifer
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Still can't get a hold of my GI. Tends to happen when they are the only GI in the area so he has a lot of patients. The mucus seems to be continuing although not as bad as when I first noticed it but none the less, its still there. Diarrhea has increased as well.
08-05-2011, 06:01 AM   #28
DustyKat
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Oh man Crabby, I hope you can get onto him before the weekend. I also hope your symptoms settle and allow you some relief! Everything crossed!

Dusty.
xxxxxxxx
08-09-2011, 02:51 PM   #29
Jennifer
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Nothing from GI yet. I still have mucus too. Sometimes a little but a couple times it seemed like a lot. I have my appointment with my GP today and he ran a full blood panel last time I was there and we're going to go over the results today. Its also to find out if I still need B12 shots each month. I'm also going to ask for a referral to an optometrist as some people keep telling me that I need glasses. :P
08-09-2011, 03:00 PM   #30
Terriernut
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Nothing from GI yet. I still have mucus too. Sometimes a little but a couple times it seemed like a lot. I have my appointment with my GP today and he ran a full blood panel last time I was there and we're going to go over the results today. Its also to find out if I still need B12 shots each month. I'm also going to ask for a referral to an optometrist as some people keep telling me that I need glasses. :P
I hope you only need glasses!!!

And that all the tests are negative for anything wrong!
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