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Crohn's Disease Forum » Treatment » Imuran/Azathioprine/6-MP » Bye Bye Remicade Hello Imuran.


08-02-2011, 04:04 PM   #1
Lydia
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Bye Bye Remicade Hello Imuran.

Well Remicade worked miracles in my body. It closed my fistulas in 4 days. It put me in remission for over a year. However it seems I developed a lupus like reaction to it. I started getting rashes, tender lymphnodes, fatigue, muscle pain, and joint pain. It was few and far between at first, but this last month has been hell. I have woken up every morning feeling like I fell down the stairs. Plus I have been getting crohns symptoms through this last infusion and I flared really badly last night.

My GI called me today. I live about 400 km away from the guy and he has no issues calling me on the phone, and his first day back from vacation was today. I love that guy. Anyway we talked and decided that I can no longer take remicade since I keep getting worse after each infusion. He asked if I wanted Humira, to which I said no. I would rather save it for a rainy day. So I am on imuran again. He called in some prescription for prednison, imuran, and ativan (Thank goodness for ativan, because pred kills me). I went and picked it up and I am all set. Last night I started with 30 mg of leftover pred I had lying around, and I feel a ton better. I woke up feeling great, and I slept like a log because my body did not ache for once.

Imuran worked great for me years ago. I took it for a year and went into remission and I stayed in remission for 3 years after I stopped taking it. So I hope I have the same results.

Wish me luck!!
08-02-2011, 04:21 PM   #2
Astra
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Good Luck Lydia!
Sounds like a good plan, Pred does work it's magic quickly
Hope you get back on track soon
xxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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08-02-2011, 06:25 PM   #3
Entchen
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Here's hoping Imuran is a good success for you!
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Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
08-02-2011, 06:30 PM   #4
Brindle
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So happy that you have a great Doctor that listens. Sounds like a great plan.
08-02-2011, 06:43 PM   #5
Lisa
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good luck!!!!!
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
08-03-2011, 06:47 AM   #6
DustyKat
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Wishing you all the luck in the world hun! I hope you have the same response you did all those years ago...



Dusty. xxx
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08-03-2011, 11:41 AM   #7
xJillx
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Wishing you all the luck in the world, Lydia!

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Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
12-23-2013, 09:58 PM   #8
308gtsi
 
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He called in some prescription for prednison, imuran, and ativan (Thank goodness for ativan, because pred kills me). I went and picked it up and I am all set.

Wish me luck!!
What is the ativan for?

I had side effects from Remicade which almost killed me. Wouldn't you be afraid to take another biologic like Humira?

The remicade worked a while it just left me on a ventilator a few months and I have to be n oxygen 24x7 as well as numerous other permenant injuries. Your lucky the lupus went away.

Good luck!
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