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Bye Bye Remicade Hello Imuran.

Well Remicade worked miracles in my body. It closed my fistulas in 4 days. It put me in remission for over a year. However it seems I developed a lupus like reaction to it. I started getting rashes, tender lymphnodes, fatigue, muscle pain, and joint pain. It was few and far between at first, but this last month has been hell. I have woken up every morning feeling like I fell down the stairs. Plus I have been getting crohns symptoms through this last infusion and I flared really badly last night.

My GI called me today. I live about 400 km away from the guy and he has no issues calling me on the phone, and his first day back from vacation was today. I love that guy. Anyway we talked and decided that I can no longer take remicade since I keep getting worse after each infusion. He asked if I wanted Humira, to which I said no. I would rather save it for a rainy day. So I am on imuran again. He called in some prescription for prednison, imuran, and ativan (Thank goodness for ativan, because pred kills me). I went and picked it up and I am all set. Last night I started with 30 mg of leftover pred I had lying around, and I feel a ton better. I woke up feeling great, and I slept like a log because my body did not ache for once.

Imuran worked great for me years ago. I took it for a year and went into remission and I stayed in remission for 3 years after I stopped taking it. So I hope I have the same results.

Wish me luck!!
 

Astra

Moderator
Good Luck Lydia!
Sounds like a good plan, Pred does work it's magic quickly
Hope you get back on track soon
xxx
 

DustyKat

Super Moderator
Wishing you all the luck in the world hun! I hope you have the same response you did all those years ago...

:goodluck::goodluck::goodluck:

Dusty. xxx
 
He called in some prescription for prednison, imuran, and ativan (Thank goodness for ativan, because pred kills me). I went and picked it up and I am all set.

Wish me luck!!
What is the ativan for?

I had side effects from Remicade which almost killed me. Wouldn't you be afraid to take another biologic like Humira?

The remicade worked a while it just left me on a ventilator a few months and I have to be n oxygen 24x7 as well as numerous other permenant injuries. Your lucky the lupus went away.

Good luck!
 
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