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View Poll Results: B12 Deficient?
Yes 22 78.57%
No 6 21.43%
Voters: 28. You may not vote on this poll

08-03-2011, 09:19 AM   #1
ellipse22
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Join Date: Jul 2011
Location: Hamilton, Ontario
B12 Deficient?

Simple poll...are you B12 Deficient due to Crohn's or Colitis?

Yes OR No
__________________
DIAGNOSED WITH IBS but STILL GOING FOR TESTS
Symptoms:
Diahhrea/Constipation
Abdmonial Pain/Bloating
Difficulty Eating
Weight Loss/Gain
Back Pain
Fatigue
B12 Deficient & Low Iron
Stabbing Pains - LRQ Pain
Groin Pain

Meds:
B12
08-03-2011, 09:21 AM   #2
chrisnsteph1022
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Location: Tennessee

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I said no, but that's because I've never been tested.
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Stephanie
dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
FB support group
08-03-2011, 09:26 AM   #3
ellipse22
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Location: Hamilton, Ontario
Bloodwork will tell you. If your doctor or specialist hasn't suggested pills or shots then you are good!
08-03-2011, 09:40 AM   #4
Grant
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Location: United Kingdom

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People who lose there Terminal Ileum will be B12 deficient & reliant on B12 jabs. Yes from me.
Grant
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1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
Loperamide
Calcichew
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
08-03-2011, 10:59 AM   #5
chrisnsteph1022
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Location: Tennessee

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Bloodwork will tell you. If your doctor or specialist hasn't suggested pills or shots then you are good!
I never get bloodwork done. I wonder if I should ask for that?
08-03-2011, 11:01 AM   #6
ellipse22
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Location: Hamilton, Ontario
I typically get routine bloodwork done yearly. Maybe you should ask? I get my cholesterol & iron checked. My daughter has high cholesterol (age 9 - and a bone rack) so it's a must for me!
08-03-2011, 11:02 AM   #7
ellipse22
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Oh and when I did get my results she said my blood was "strained". I had no idea what she was talking about but apparently it's something to do with my red blood cell count!
08-03-2011, 11:57 AM   #8
archie
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I've a foot of TI out but not vit B12 deficient... (yet!!)
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Archie

Diagnosed Crohn's 2010
ileocecal resection 2010
Meds: Nil and in remission

08-03-2011, 06:17 PM   #9
DougUte
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Location: Kaysville, Utah

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2 ft of TI and 6 inches of colon (right where it meets the TI) out. I was B12 deficient before I even knew I had Crohn's. I take my B12 in a pill form (dissolves and is absorbed in the mouth). It keeps my levels up and I avoid the use of another injection.
__________________
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
08-03-2011, 07:35 PM   #10
Brit
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I was super anemic but somehow my b12 levels were good!
08-05-2011, 05:16 AM   #11
lookame
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Join Date: Jun 2011
Location: Columbus, Ohio

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Anemic and iron levels super low(I had a blood transfusion) but was still ok with B12...my sister on the other hand take b12 pills weekly since her levels were way low(and she doesn't have crohns)
__________________
Diagnosis: Confused officially diagnosed in 2010

Bloodwork is indeterminate IBD, biopsies are crohns positive, symptoms and visually it's UC

Current meds-
Prednisone, humira, 6mp, and lialda
awaiting surgical consult

Mom of Little Z
eosinophilic esophagitis 5/2015
08-05-2011, 10:13 AM   #12
Gue33
Senior Member
 
Join Date: May 2010
Location: Alberta
I experienced pins and needles pain in my hands and back when my B12 Is to low. I tale it in pill form 2000 mg at a time. At least every two days. That keeps it in line. Doctor recommended this over shots. I agree.
08-05-2011, 10:26 AM   #13
ChronyKate
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Location: Brandon, Manitoba

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YES....I have an injection once a month!
08-09-2011, 09:35 PM   #14
BEWELL*SWEETIE
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I was just wondering what are your levels??
08-10-2011, 02:28 AM   #15
juicy24
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Location: Washington
I have had my b-12 producer taken out from surgery. I get a shot every month but I am still anemic
__________________
Diagonsed at 19 had surgery in
Aug 2009 bowel resection and fistula fixed,
now it's IBS for me
currently on: Humira every 2 weeks,
Pentasa 2x day 500mg, Iron, B-12 shot,
hyoscyamine as needed
New med: belladonna-phenobarbital

have been on: Prednisone (which I will never take again), asacol (waste of time for me),
Entocort, sulfasalazine (made me have weird side affects),Remicade (Horriable reaction after 3rd dose)
08-10-2011, 04:55 AM   #16
ellipse22
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Location: Hamilton, Ontario
I was just wondering what are your levels??
I don't know what my levels are but the doctor mentioned my blood was strained and my b12 levels were too low.

I go for bloodwork again on Friday and see the specialist next wednesday so I will be sure to ask. I'll post the answer here next week!
08-10-2011, 12:10 PM   #17
Jennifer
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After my resection yes.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
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