Share Facebook
Crohn's Disease Forum » Support Forum » Undiagnosed Club » A few questions about getting diagnosed.


08-28-2011, 10:32 PM   #1
community
New Member
 
Join Date: Aug 2011
A few questions about getting diagnosed.

Hello...I lately have suspected that I might have Crohn's but I need your help on a few issues....I will be seeing a GI specialist soon.

1) I have heard that there is a part of the small intestine that the scopes do not get to. So how would I get diagnosed if there is Crohn's there? I have done the scopes a few months ago and they didn't find anything...so what would you suggest as another test they could do for me?

2) Are there people who have Crohn's but do not get diarrhea or blood in their stools? What would their other symptoms usually be? I get these flare ups that last about a week where I feel an intense amount of malaise/weakness/pallor and some nausea and lack of appetite. I will also have some moderate stomach bloating/discomfort. I don't really feel like this is IBS because my flare ups feel very intense. I have also lost weight which isn't an IBS symptom.

3) Is Crohn's usually only diagnosable if a person is in a flare up? I had a flare up over a week ago and I am gradually feeling better so I don't know if it's diagnosable right now.

Thanks for your help
08-29-2011, 02:52 AM   #2
archie
Senior Member
 
Join Date: Oct 2010
Hiya and welcome, crohns diagnosis can take a while some of the tests can come back conclusive of crohns and many tests can come back negative although it's still not ruled out, there is not one test that is used it is usually a string of tests. It also depends on where the crohns is located. If I were you I would get blood tests to determine if you have raised inflammation in the body it can also show if you have any deficiencies. A small bowel series or CT scan will also be useful.
__________________
Archie

Diagnosed Crohn's 2010
ileocecal resection 2010
Meds: Nil and in remission

08-29-2011, 06:09 AM   #3
sfoster105
New Member
 
Join Date: Jul 2011
If this helps:
They found my Crohn's during a catscan and confirmed it with a specail blood test. A colonoscopy confirmed that my large bowel also had inflammation. The small bowel was much worse, they saw that on the catscan. As soon as you see a specailist they should be able to help you, Also I am one of the few that does not have diarrea, thank GOD!! I had a large uncomfortable lump on my lower right abdomen. Some minor hemorroids and bad gas pains, as well as once a week fevers and general not feeling well were my symptoms. I took 5 weeks of prednisone and started Humira and I feel a lot better!
08-29-2011, 07:34 AM   #4
StarGirrrrl
Moderator
 
StarGirrrrl's Avatar
 
Join Date: Sep 2010
Location: UNITED KINGDOM

My Support Groups:
Welcome to the Undiagnosed forum

Both scopes only reach a tiny fraction of the small bowel. A CT scan and small bowel follow through (barium meal) can help in looking at the small bowel. A Pill Cam (capsule endoscopy) visualises the entire small bowel and so is a very good test, but it can be hard to get. Some on here had 100% normal other tests, but the Pill Cam finally found out the problem.

Some people get a dx with one or two tests, for others it is a very long process.
__________________
2006. Tummy issues (more IBD than IBS).
2009 joint pain/worsening tummy issues.
CRP 20-36 2006-now. C3/C4 inflammation markers huge,
2014 IDA & low B12.

June 2014 admitted to Hospital 3 nights as emergency transfused 2 units of blood. Dangerous case of anaemia.
Caught by pure chance!
Cause currently unknown but suspected CD.

Waiting on blood & stool results from January.

Hoping to stop anaemia treatment soon & lower B12 daily dose!
08-29-2011, 06:43 PM   #5
community
New Member
 
Join Date: Aug 2011
Thanks for the replies so far guys.

For blood tests looking at inflammation, does that only work if a person is in an intense flare up?
Also I'm wondering if MRI's work in diagnosing since it doesn't use radiation...although maybe I'm just paranoid about that.
08-30-2011, 05:05 AM   #6
StarGirrrrl
Moderator
 
StarGirrrrl's Avatar
 
Join Date: Sep 2010
Location: UNITED KINGDOM

My Support Groups:
MRI's are actually alot more in-depth than a CT scan I had my shoulder done and the detail is simply amazing!
08-30-2011, 01:16 PM   #7
Mayflower537
Senior Member
 
Mayflower537's Avatar
 
Join Date: Apr 2010
Location: Charleston, South Carolina

My Support Groups:
I remember reading a couple of people's experiences on here who were diagnosed with MRI. If I had to have another scan abdominally I'd ask for the MRI as I don't like all the radiation from CT scans either. I'm betting that the insurance would balk at it tho, b/c I think MRIs are more expensive than CT scans. I see you're in Canada. Maybe that's a non-issue for you.
08-30-2011, 06:40 PM   #8
community
New Member
 
Join Date: Aug 2011
Thanks

So do you guys know if a person can only be diagnosed while they are at the worst of their flare up?
08-30-2011, 08:12 PM   #9
StarGirrrrl
Moderator
 
StarGirrrrl's Avatar
 
Join Date: Sep 2010
Location: UNITED KINGDOM

My Support Groups:
How long is a piece of string lol?

It varies, it really does, there is no easy answer. Some get a diagnosis when they are having few if any symptoms. Others have raging problems and it takes years to show on tests. Some fall inbetween!
Reply

Crohn's Disease Forum » Support Forum » Undiagnosed Club » A few questions about getting diagnosed.
Thread Tools


All times are GMT -5. The time now is 08:33 AM.
Copyright 2006-2017 Crohnsforum.com