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09-13-2011, 12:46 PM   #1
robbo87
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How do you "wear" your bag

This may seem like a silly question. But i was just wondering how people wear they bag and keep it discreet etc. I've read that some people may tuck it under their pants or whatever. Just wondering what people do here?

I wear mine loose so to speak and don't tuck it under my jeans or anything and it doesnt show unless i stretch or lift my shirt up and you may catch a glimpse of the bottom. is that the usual thing to do?
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ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
09-13-2011, 01:49 PM   #2
Nyx
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I wear mine on top of my underwear but under my pants.
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

09-13-2011, 02:00 PM   #3
glum chump
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My pant waist comes above my stoma, so I wear it like Cindy...over top of my underwear but under my pants.

Kismet
09-13-2011, 02:39 PM   #4
Terriernut
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Over my underwear. But under my trousers. (mine is too high!)

You can always wear looser shirts, not tucked in to help to hide it.
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DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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09-13-2011, 04:07 PM   #5
littlefreebird
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if i wear low rise skinny jeans i wear the bag out and just a tight top over it.
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09-13-2011, 06:00 PM   #6
Kris
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I wear mine under my unerwear and jeans. Sometimes I wear it outside of my underwear if I get hot and sweaty, but it's always in my jeans.
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Crohn's Diagnosis: 1996 at age 19.

Current Diagnosis: Unknown. Might be Colitis as of March 2011.

Past Medications: Prednisone, Asacol, Pentasa, Canasa, Entocort, 6mp, Humira, Cimzia, Flagyl, and Cipro.

Current Medication: 6mp

Surgeries: Total removal of colon (rectum was saved) with temporary ileostomy in Feb. 2011.


I'm sorry, but I can't be a ray of freakin sunshine every day of the week!
09-13-2011, 07:47 PM   #7
ameslouise
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Bottom of it tucked into my undies, and all of it under my pants. If I am wearing a dress, I wear either leggings or bike shorts underneath, to keep it from flopping all over the place!!
09-13-2011, 07:50 PM   #8
Nyx
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I wear bike shorts or 'granny panties' under dresses too...I hate the flopping! lol
09-13-2011, 10:23 PM   #9
vonfunk
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I have a couple of support belts that I got made. One was made by people that can sew and the other was made me. If I'm at work I tuck my undershirt into my pants and that some what gives a bit of extra support, and my over shirt is left untucked. If I'm wearing a t-shirt I leave it untucked, but the belt I made keeps the bag from popping out beneath my t-shirt.
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09-14-2011, 02:26 AM   #10
Gav
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Under my underwear, usually with a stoma support waistband over th bag but under the underwear also.
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UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
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09-15-2011, 11:07 AM   #11
robbo87
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Thanks for the replys, decided to give it a go under my jeans today and its been fine, I was apprehensive thinking it might "trap" stuff so to speak. Can start wearing clothes that aren't scruffy now!
09-29-2011, 10:26 AM   #12
Rob.G
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I let mine 'Hang Out' so to speak I wear the 'Maxi' size bags as well and all of my T-Shirts cover it, you wouldn't know it was there.
11-01-2011, 02:08 PM   #13
AnneMarie
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I wear my bag underneath my underwear and trousers. Only got the stoma in March and have only just started wearing "normal" clothes. Have been living in jogging trousers/pyjamas that are about four sizes too big lol

Hooray for getting used to Sally the Stoma.

Hopefully it's getting reversed soon though.
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Diaganosed Crohns: 1990 (symptoms before then)
B12 injections everythree months
Folic Acid (5mgs)
Loperamide (10mgs)
Prozac (20mgs)
Propanalol (20mgs)
Omeprazole (20mgs)]

Currently adjusting to Sally the Stoma


Surgery: right sided hemicolectomy, gall bladder removed, numerous operations for perianal fistula and loop colostomy in March 2011. Currently awaiting news to see if it can be reversed
11-01-2011, 02:26 PM   #14
Terriernut
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Welcome Sally and AnneMarie! Sally is a nice stoma name? Mustang Sally???
11-01-2011, 02:40 PM   #15
AnneMarie
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Lol, it was either Sally or Shitty the Stoma and I thought Sally was a bit more friendly sounding lol.
11-01-2011, 02:41 PM   #16
Terriernut
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Most definetely!!
11-01-2011, 06:31 PM   #17
bobbycable
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i came close to having one once but managed to pull through, what exactly do they look like? i'm worried about them (which i probably shuldn't be) but i am very scared of ending up with one sooner or later
11-01-2011, 08:25 PM   #18
Misty-Eyed
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Hi bobby. Hopefully my reply in this thread will help you;http://www.crohnsforum.com/showthread.php?t=28029

Also I took a pic of my bag the other day which you can find in post 104 of my thread here;
http://www.crohnsforum.com/showthrea...t=23535&page=4

Hope this helps!
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'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
11-02-2011, 04:40 AM   #19
bobbycable
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Michelle that looks painfull! i watched the video and i'm assuminmg that it part of your intestine sticking out?

i couldn't really see any scars but yours still looks like a nice neat area my stomach is a state

Thanks michelle
11-02-2011, 05:00 AM   #20
Misty-Eyed
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You're welcome.

What looks painful, the stoma? I've had zero pain from the stoma. The only things that have hurt are my bum wound from where they stitched it up and the post operative bruising inside my stomach. Yes, that's the terminal ileum that they bring out to make the stoma from. You can't feel it at all if you touch it. It's not the best looking thing in the world, but the only time you see it is when you change the bag. The rest of the time I forget it's there.

I was lucky and had keyhole surgery so I only have 5 little incision scars with one in my belly button. Have you had many operations then?
11-02-2011, 05:47 AM   #21
bobbycable
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i'll pm you so i don't ruin this thread
11-02-2011, 10:14 AM   #22
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How did everyone end up wearing this bag?
11-02-2011, 02:16 PM   #23
Nyx
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@Dixiedoll...I had to have emergency surgery since I perforated my sigmoid colon and distended my bowel.
11-02-2011, 02:25 PM   #24
Terriernut
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@Dixiedoll, me too. Perforated my sigmoid colon. Almost died, twice. It was the bag or the body bag. Wow, did I make the right decision!!! I may be offered the chance some day at a reversal. TBH...even on a really bad day (and today was one, and how) life is better with Stan.
11-02-2011, 03:56 PM   #25
robbo87
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wow terrier, all the time I've whinged about the perforation i had and i had no idea that was what happened to you!..

anyway forgot to reply to this ... but as it goes, the bag is still comfortably under my jeans/trousers!
11-02-2011, 04:03 PM   #26
Misty-Eyed
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Does the output go down the bag ok when you wear it under trousers or jeans?
11-02-2011, 04:08 PM   #27
scifi-enthusiast
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I would only wear it under my t-shirt when I had one.

I would also put my own stickers on it too when I was bored. You run out of stickers fast when using bags that need to be replaced all the time.
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Diagnosis: March 2008 (7 days after resection)
Surgery: 1 emergency blind resection because of hemorrhage & massive blood loss (March 2008), Reconnection of Colon (June 2008), Removal of billiard ball size abscess (Dec. 2010)
Meds: Lialda-2.4gm (every other day), Imuran-0mg, Pred-0mg, Calcium+d, Humira-40mg, Sulfasalazine-500mg
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11-02-2011, 04:10 PM   #28
robbo87
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Sometimes if im not wearing my "elasticated" jeans it can struggle so i find myself loosening my belt a bit to let stuff pass through. But generally it's been ok I have a pretty loose output most of the time which probably helps a bit.
11-02-2011, 04:17 PM   #29
Terriernut
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wow terrier, all the time I've whinged about the perforation i had and i had no idea that was what happened to you!..

anyway forgot to reply to this ... but as it goes, the bag is still comfortably under my jeans/trousers!
No worries Martin. I had a perforation in 2009 too. But it healed itself (I swear someone upstairs looks after me!?)

Sadly the second time, I managed to poison my whole system, like what happened to you. But I STILL fought them off in November 2010 from giving me surgery. Then I really almost did die. Stubborness isnt always the most clever thing!
11-02-2011, 04:26 PM   #30
robbo87
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wow! how did you manage to get away with having an op?? i had my op about 14 hours after i was rushed into hosp and i dont think i would of lasted much longer in all honesty. Stubbornness is one way of putting it!
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