Hi,
I'm new to the forum and thought I would introduce myself. I was diagnosed with Ulcerative Colitis 5 years ago now. It took 2 years to finally get a diagnosis. I was told basically my symptoms were in my head and that I was suffering from IBS. Thankfully my GP's knew I was suffering from more than IBS and thought my corner!
Since my initial diagnosis, I have developed eye problems, Inflammatry and reactive Arthritis which causes pain in my hip, knees, fingers, wrists, elbows, toes, back and the ball of my foot. I also have Bile reflux. For the past twelve months I have had frequent throat infections (which I've just had surgery for) and have been unable to shift the EBV virus. I have developed a curvature of my spine which is causing me a lot of pain and discomfort. I suffer a lot from pretty debilitating fatigue (which is problematic as I have children)
Recently I have just been told that I have adhesions in my abdomen, some of which have stuck my ovary to my bowel. I have also been told that I have several nodes and thickening of several areas in my abdomen. This has been put down as being a result of my UC. Yet after speaking to my consultant he said that you would normally find this in people with Chrohns and not UC.
I was wondering if any of this is familiar to any of you. I have heard of people being misdiagnosed before, and wondering if this is what's happened in my case. Are there anyone with UC that have these other manifestations, or similiar story's, I would love to hear from you.
I am due to have a colonoscopy on the 3rd of October to see if it is Chrohns or not (which I am not looking forward to!) and then we will go from there.
I'm new to the forum and thought I would introduce myself. I was diagnosed with Ulcerative Colitis 5 years ago now. It took 2 years to finally get a diagnosis. I was told basically my symptoms were in my head and that I was suffering from IBS. Thankfully my GP's knew I was suffering from more than IBS and thought my corner!
Since my initial diagnosis, I have developed eye problems, Inflammatry and reactive Arthritis which causes pain in my hip, knees, fingers, wrists, elbows, toes, back and the ball of my foot. I also have Bile reflux. For the past twelve months I have had frequent throat infections (which I've just had surgery for) and have been unable to shift the EBV virus. I have developed a curvature of my spine which is causing me a lot of pain and discomfort. I suffer a lot from pretty debilitating fatigue (which is problematic as I have children)
Recently I have just been told that I have adhesions in my abdomen, some of which have stuck my ovary to my bowel. I have also been told that I have several nodes and thickening of several areas in my abdomen. This has been put down as being a result of my UC. Yet after speaking to my consultant he said that you would normally find this in people with Chrohns and not UC.
I was wondering if any of this is familiar to any of you. I have heard of people being misdiagnosed before, and wondering if this is what's happened in my case. Are there anyone with UC that have these other manifestations, or similiar story's, I would love to hear from you.
I am due to have a colonoscopy on the 3rd of October to see if it is Chrohns or not (which I am not looking forward to!) and then we will go from there.
