my frustration
hi my story so far is i was diagnosed with crohns in 2000 and was treated with prednisilone and pentasa this seemed to settle it down i was on 60mg of pred but everytime the dr tried to reduce the dosage my symptoms came back thie progrss took a long long time and i was in and out of hospital on one of my visits i happend to mention to the dr that i was allways thirsty and cudnt stop urinating turns out my blood sugars where sky high (side effect of pred)any way within 2 days i was put on insulin and still on it 11 years later anyway had lots more hospital app and was eventually put on azathoprine and infliximab which worked well for a couple of years had the odd flare up but nothing major and the brings me to 2010 i couldnt stop being sick i couldnt eat anything as my throat felt swollen and i lost lots of weight and a lump appeared on the left side of my neck i was in hospital for 6 weeks had many scans biopsy of the lump all cam back as clear the diagnosies was that i had built up or had a reaction to the infliximab so they stopped that and the azathoprine and put me on humira which im on at the moment and its working well i also this year developped another lump on the right side of my neck which was removed 2 weeks ago also i have white patches in my mouth and drs have siad its linked to crohns and referred me to another dr thats my story oh i also have depression chronic perecarditis and diabetes and diabetic neuropathy in my legs
hi my story so far is i was diagnosed with crohns in 2000 and was treated with prednisilone and pentasa this seemed to settle it down i was on 60mg of pred but everytime the dr tried to reduce the dosage my symptoms came back thie progrss took a long long time and i was in and out of hospital on one of my visits i happend to mention to the dr that i was allways thirsty and cudnt stop urinating turns out my blood sugars where sky high (side effect of pred)any way within 2 days i was put on insulin and still on it 11 years later anyway had lots more hospital app and was eventually put on azathoprine and infliximab which worked well for a couple of years had the odd flare up but nothing major and the brings me to 2010 i couldnt stop being sick i couldnt eat anything as my throat felt swollen and i lost lots of weight and a lump appeared on the left side of my neck i was in hospital for 6 weeks had many scans biopsy of the lump all cam back as clear the diagnosies was that i had built up or had a reaction to the infliximab so they stopped that and the azathoprine and put me on humira which im on at the moment and its working well i also this year developped another lump on the right side of my neck which was removed 2 weeks ago also i have white patches in my mouth and drs have siad its linked to crohns and referred me to another dr thats my story oh i also have depression chronic perecarditis and diabetes and diabetic neuropathy in my legs
