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09-20-2011, 10:42 AM   #1
Brian'sMom
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Join Date: Dec 2010
Location: Kansas

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Remicade and UC

My son has crohn's and has had a positive outcome from Humira,but his aunt has UC...she is currently on Remicade and is having all kinds of trouble.(She's also gone on and off it for various reasons). She also takes a lot of over the counter stuff like Imodium etc... What is a good med regimen for UC patients? Her doctor has told her that most of the meds are best suited for crohn's. He is now proposing she think about having her colon removed. She's 35 and was diagnosed when she was 20...she's never gotten it under control really. And she is confused why she has trouble losing weight...when most people fighting this are the opposite.

Thanks for any help. She's in panic mode right now.
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
10-13-2011, 10:27 AM   #2
Jessi
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Join Date: Jul 2011
Location: Ogden, Utah

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Everyone is different.

Remicade works well for me. Prednisone and Asacol HD also worked really well. That's as far as I've gone, though.

Good luck. I hope things improve.
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~Jessica

Dx'd with Psoriasis in 1993
Dx'd with Psoriatic Arthritis in 2004
Dx'd with Ulcerative Colitis on May 18, 2011

"Life isn't about waiting for the storm to pass... It's about learning to dance in the rain." ~Anon.
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