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09-21-2011, 08:12 PM   #1
flowergirl
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Join Date: Sep 2011
Location: florida
Tinnitus?

Does anyone else hear having ringing in the ears? mine is constant. luckily it's not that loud and i've learned to live with it. if this is part of the crohn's, it was probably my first symptom.
09-21-2011, 10:02 PM   #2
sunflower
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Location: Kansas

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Mine has really kicked lately. I always think of it as a symptom of inflammtion, because I hear it most when I am ill, but I am not sure. would love to if others hear it too.
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Diagnosed: 1992 with Crohn's
Current meds: Asacol HD, Humira plus many more!
Also have hypothyroid, diabetes type II, Fibromyalgia, Insomnia, AS diagnosed 12/11 (on my birthday).
09-22-2011, 08:38 AM   #3
LOSTnut
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I have it too. I don't notice it much when there is noise around me but when I read a book I consciously notice it ... so far it is not bothering me too much ... just a weird feeling (if that is the correct expression to use)
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Heike

Diagnosed: April 2005

Back on Asacol

Dec 2010: colostomy/resection - failed
Jan 2011: Ileostomy
Resection planned for: sometime
09-22-2011, 09:47 AM   #4
beth
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I've had tinnitus for years, much longer than Crohn's or any ramp up of symptoms. Mine gets louder with loud noises and sometimes 'beats' with rhythmic noises making for one hell of a racket.
Interestingly, or not, it's not so bad when I have my hearing aid.
09-22-2011, 10:15 AM   #5
flowergirl
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yeah, i only really notice mine when it's quiet.
09-22-2011, 10:18 AM   #6
Natalie38
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Oh wow,

I have had the ringing for almost a year. Bothers me alot sometimes. I never thought it could be linked to Crohns....
09-22-2011, 01:54 PM   #7
flowergirl
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my ent tried to tell me i have hearing loss. i'm 33. i don't go to concerts. i don't listen to loud music.

i have heard that inflammation can cause tinnitus. 2+2=4
09-22-2011, 02:19 PM   #8
outlier
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Sulfazine and/ or tmj can cause this. Sulfazine and its family of medicine (which is given for crohn's and arthritis) builds up in the blood tinnitus is a sign of too much. TMJ is a joint issue in your jaw linked to inflammation
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Diagnosed: Crohn's Oct '09
Extraintestinal: scleritis May '08, GERD Aug '09, ankylosing spondylitis Feb '10
Current Meds: Humira, Asacol, Dexilant, domperidone, Tramadol and a whole lot of vitamins
No more sulfasalazine, Methotrexate, Xibrom, Pred Forte and Iron
09-22-2011, 04:28 PM   #9
HeatherMN
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Join Date: May 2010
I have it too, I always figured it was a side effect of my antidepressant because that's what my primary dr told me. It being a symptom of inflammation would make sense too.
It mostly bothers me at night when it's quiet and I am trying to get to sleep.
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Heather
Crohn's diagnosed in 2001
Gallbladder removed May 2005
Appendectomy January 2011
Humira 40 mg; also Flexeril, Wellbutrin XL, Klonopin, Salagen, vitamin D,
co-Q-10, DMAE, biotin, acai, multivitamin with ginger
09-22-2011, 09:26 PM   #10
David
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Location: Naples, Florida
To add some additional potential causative factors you may all want to explore that I have come across:

Vitamin B12 Deficiency - http://scholar.google.com/scholar?hl..._ylo=&as_vis=0

Zinc Deficiency - http://scholar.google.com/scholar?hl..._ylo=&as_vis=0

Iron Deficiency - http://scholar.google.com/scholar?hl..._ylo=&as_vis=0
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09-07-2013, 11:04 PM   #11
Dingman
 
Join Date: Sep 2013
Location: Fond du Lac, Wisconsin
Hi, My name is Mike I found the forum by way of this thread. I've just had my third flare up in the last ten months and my tinnitus is working overtime. It sounds like I have a nest of cicadas in my head.
I am undiagnosed, but over the past year I have come to believe I have Crohns's.
I am 46 years old and last november I had a severe flare. It reminded me of the pains I used to get when I was a kid, but had forgotten about over the last 20 years.
I have had tinnitus for years but this is the first time it has been so loud. It started as my most recent flare has subsided. It's weird because I get horrible back pains during a flare, and my right knee gets really bad when the flare subsides, but this is the first time I've noticed a change in the tinnitus.
I guess I'm learning something new after each new flare. Thanks for this resource. I would get diagnosed but I don't have insurance at this time, and it sounds like there isn't much they can do anyway.
09-08-2013, 05:37 AM   #12
sickinlk
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Location: Donegal, Ireland

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ive had a hummmmm in my ear since january this year. went to the docs as i am on remicade and i thought i had an infection. turns out i have fluid in my ear. seen a specialist since and recently had an MRI of the sinuses. tis very rare for an adult to get glue ear.
can it be connected to IBD or are my hunces correct and its down to meds
ju
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Julie 36 y/o female.
dx'd with UC in june 2011.
intolerant to 5 asa's caused pancreatitis!!
steroid resistant
on remicade since sep'12. doubled the dose in june'13
May'13 added 6-mp. on 75mg.
CAme off remicade April '15, hoping to get back on it asap.
09-08-2013, 06:58 AM   #13
ellie
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Join Date: Apr 2010
Location: Sydney Australia

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Have looked for "inner ear" associations with CD with limited success.
I don't have much problem with tinnitus, but have had a couple of SEVERE episodes of vertigo, which is in the same disease spectrum.
My sister has a definitive diagnosis of Meniere's (genetic links, anyone?) She doesn't have CD.
Would be interested in any research links


HD
06-18-2014, 05:23 AM   #14
aiu4622
 
Join Date: Jun 2014
When I have a "flare up" the tinnitus gets almost unbearable, my doctor and I have been looking into it possibly being Autoimmune Inner Ear Disease (AIED).
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