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10-06-2011, 10:00 AM   #1
Misty-Eyed
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My panproctocolectomy

I'm sitting here alone at work and about to leave so thought I'd make this now while I remember.

But the day has arrived already! My surgery is tomorrow. Eeeek. I've got to be there at 7.30am and I'm first down which I'm relieved about. No hanging around getting even more nervous!

I'm in good spirits but tired and have only been crying when people have been saying nice, supportive things to me! Then I feel a bit stupid. Work gave me this lovely card which was nice.

Going out for dinner with my family later. I can eat till midnight so thought I'd give my colon a decent send off. Have to be up at 5.30am to drink those carbohydrate drinks. Blah.

I shall keep you all updated. Thank SO so sooooo much to all of you that have been answering all my questions and have been very supportive towards me

I'll see you all on the other side!
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
10-06-2011, 11:19 AM   #2
chrisnsteph1022
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Good luck tomorrow!
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Stephanie
dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
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10-06-2011, 12:02 PM   #3
Carrie630
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good luck! We'll all be thinking of you!
10-06-2011, 12:02 PM   #4
Lisa
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Good luck with everything - have an awesome meal tonight!!.....

Don't you hate it when the supportive words bring tears...ugh...HATE that!.....

Hope all goes well tomorrow - check back in when you can to let us know how everything went!
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
10-06-2011, 12:53 PM   #5
Gav
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Good luck tomorrow Michelle.

Look forward to seeing you posting about your recovery. Hoping thing go nice and smoothly for you.

See you on the other side!
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UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
Wish You Were Here
10-06-2011, 12:54 PM   #6
DustyKat
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Good luck Michelle. I hope all goes well hun...

Thinking of you...
Dusty. xxxxxxxx
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Mum of 2 kids with Crohn's.
10-06-2011, 02:55 PM   #7
KazT17
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Best of luck Michelle, be thinking of you.

Kaz xxx
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Crohn's diagnosed 2010
Ileostomy 2011.
Completion Proctectomy 2012
10-06-2011, 03:25 PM   #8
ameslouise
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Big hugs, Michelle! You'll do great!! Get plenty of rest, but when you are up to it, we can't wait to hear all about it!

xo -Ames
10-06-2011, 03:43 PM   #9
Grumbletum
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Best of luck and wishing you a speedy recovery xxx
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Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
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10-06-2011, 06:11 PM   #10
glum chump
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Hey Michelle

Hope your dinner was fantastic and that everything goes easy-breezy for you!

Catch you on the other side,

Kismet

Last edited by glum chump; 10-06-2011 at 11:51 PM.
10-06-2011, 06:15 PM   #11
hawkeye
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Good luck Michelle
10-06-2011, 06:42 PM   #12
Terriernut
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Michelle, we're right here. Best of luck tomorrow, I'm wrapping you in hugs and healing thoughts.
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
10-06-2011, 07:09 PM   #13
Nyx
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Good luck tomorrow!! Take it easy when you get out and keep us updated when you can
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

10-06-2011, 08:22 PM   #14
dreamintwilight
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Good luck Hope everything goes well!
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Marisa
February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!


Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
Biotin
Allegra
10-06-2011, 11:30 PM   #15
Lydia
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Best of luck and a speedy recovery!!!!
10-07-2011, 01:53 AM   #16
Walt
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Thinking of you Michelle,
I hope everything goes well.
sending you strength and courage,
Walt


ps please share an update when you can...
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currently 'enjoying' Metho, Remi gave me Lupus, Humira pens now weekly - jury still out?
whew, just a little Prednisone?

I'm starting to think Crohn's isn't as much fun as they made it sound in the brochure?

Be who you are and say what you feel,
because those who mind don't matter and those who matter don't mind - Dr. Seuss

A hard road is better than no road.

getting knocked down is nothing.
bouncing back is everything.


in the end, only kindness matters...
10-07-2011, 01:10 PM   #17
Terriernut
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I've just spoken to Michelle! She said the surgery went well, they didnt have to open her up, and all was done lapro. Thank goodness!

She had low blood pressure, so they kept her in recovery a little longer. But she's awake and alert now. Says the pain relief is working, and she's feeling ok all considered. Hopefully she will sleep well tonight, and make a speedy recovery!!!!


Get well soon Michelle!!!!
Huggggggggggggggggssssssssssssssss
Misty
10-07-2011, 01:23 PM   #18
Carrie630
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YAY! Glad she's doing ok.
10-07-2011, 02:11 PM   #19
Nyx
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Thanks for the update Misty...so glad she's doing well!
10-07-2011, 02:14 PM   #20
xJillx
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I can't believe I missed this yesterday!


I hope today went well, Michelle! I am praying you have a speedy recovery!
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Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
10-07-2011, 06:04 PM   #21
littlefreebird
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glad all is well! thanks for the update! xx
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"We're all in the gutter, but some of us are looking at the stars."

Crohn's since 2000 (aged 10)--> full colon & rectum removal 2011.
10-08-2011, 09:30 AM   #22
Gav
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Thanks for the update Misty. Sounds likes things are going well so far.
10-08-2011, 04:34 PM   #23
Terriernut
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They had her up in the chair today. Pain, vomiting. I think pushing it! They always want our beds in the NHS! Sleeping loads, good!

Her stoma is already working....amazing!!! She's just amazing our Michelle!!!

I dont want them pushing her too far too fast though! This is an incredibly tough operation! Lapro or not....

Lets send healing thoughts and prayers to our Michelle as she goes through this difficult recovery.

Misty
10-08-2011, 08:57 PM   #24
DustyKat
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Sending loads of love, hugs, prayers and well wishes your way Michelle!...



We miss you!
Dusty. xxxxxxxx
10-09-2011, 12:33 AM   #25
carolhew
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Sending you healing thoughts and strength!
10-09-2011, 07:29 AM   #26
hawkeye
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Thanks for the update. Get will soon Michelle.
10-09-2011, 02:12 PM   #27
Misty-Eyed
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Thanks for your lovely texts guys. Doing better today. No vomiting and managed to go for a walk down the corridor which actually felt pretty good. I's just the drain in my bum which is still causing problems. Have a stoma bag attached to it but it's still leaking blood everywhere which isn't pretty. Also got some air or fluid trapped by my diaphragm which is causing some pain in my shoulder. Other than that, just tired which isn't a bad thing as I get to sleep a lot. Ate today and my stoma has been working well since day 1. Surprisingy not been too emotional yet. I guess all that mental prep helped!

Tomorrow I should get the catheter out. No talk of taking my morphine pump yet though. Also get to see the surgeon and the stoma nurse tomorrow. I'm keen to hear how it all went. I'm assuming well as my incisions are all so tiny!

Thanks again for all your supportive words. You guys are the best!
10-09-2011, 02:21 PM   #28
Terriernut
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So very glad to hear from yourself!!!! Gas trapped is awful, but it will pass. Dont forget to belch! (its our opportunity!)

Keep on getting better!!!!
Huugggggggggggggggggggggggssssssssssssssssssssssss ssssss
Misty
10-09-2011, 02:31 PM   #29
Misty-Eyed
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lol you forgot that I can't bletch, Misty! It's trapped actually inside me rather than in my stomach. Dr said he has no idea how long it'll last for.

I take my hat off to those who have open surgery though!
10-09-2011, 02:34 PM   #30
Terriernut
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I didnt forget! I just thought your body would make an exception for you this time! (bodies just dont make exceptions do they...the bastards)

Walking helps get the gas out. Like THATS easy after surgery (hmmph)
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