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Crohn's Disease Forum » Treatment » Does 6MP Help That Much?


11-21-2007, 02:28 PM   #1
Jvstin
 
Does 6MP Help That Much?

I'm finally back on 6MP, only been about a week, take one every day.
does it really help as much as everyone says it does?
I'm at the point where I need all the help I can get, cause the docs say my next move may end up being "the bag" cause there's not that much left in me to remove.
here's what I got going on.
I just had my gallbladder removed, and 30cm of small removed. prior to this a few years back, I had some small removed (I really don't remember how much, I want to guess and say around 15cm) and and I part of my colon removed.
I went 2 years without meds due to fighting with insurance companies, had Protonix and Pentasa samples thrown at me from time to time, but nothing steady.
now I'm getting 6MP, hopefully Protonix samples soon (too expensive for me) Pentasa I should get once I submit my last years tax return.
and I'm on the weekly Vitamin B12 injection, also on the Hydrocort 10mg 2x daily. and hopefully here within the beginning of '08 I should get the assistance I need to start Humira.
they also put me on Ativan, but that doesn't really have anything to do with anything, just thought I would list everything. oh, and I have Lortabs and Morphine pills.
for right now, does this sound like I'm being treated well and as long as I eat well and take the meds will I be alright?
sorry for such a question, I've just been living in a world of pain for some time now and I am beginning to see something better coming and don't want to get my hopes up.
11-21-2007, 04:22 PM   #2
Jeff D.
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I don't know I am taking 6mp but the medical world doesn't even understand if Crohn's is an autimmune disease or not. If it is an autoimmune disease than 6mp should help but if it is not then it would do absolutely nothing for the disease itself. I am begginning to believe that a powerful antioxidant and excercise should do more for us then the medicines prescribed but I have not been ablle to run my tests that on it yet. I wish you the best of luck.
11-22-2007, 12:15 PM   #3
Kev
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Perhaps throw out a poll... ask the 6MP users on here a simple yea or nay on whether they've felt any benefits from taking it. It couldn't hurt to try that?
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Dx'd July, 2006
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11-22-2007, 11:19 PM   #4
Jvstin
 
thanks, shall do so.
11-23-2007, 03:49 AM   #5
srowe
 
I've been on it for almost 4 years and I can't always tell, I've been off of it and been fine and and at times if I don't take it I feel horrible....I can't figure this one out lol Its honestly pretty random for me...But I'm glad you posted this because I was wondering the same thing.
11-23-2007, 11:03 AM   #6
Jvstin
 
okay, I've been on 6MP now for about a week and a 1/2, and I'm noticing a difference. a good difference.
11-23-2007, 04:38 PM   #7
Kev
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Congrats.. Keep your fingers crossed, as will the rest of us. Having said that, I caution anyone on any med for this disease that it's only a treatment, not a cure, and that occasional flares or lapses are possible. And given the nature of this damned thing, likely. Think that would apply until they have a 'cure'
11-23-2007, 05:23 PM   #8
Sojourn
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My GI wants to put me on 6mp or Remicade. He said it would take a couple of months for the 6mp to start working but that's great it seems to have already started working for you. I haven't made a decision yet.
11-23-2007, 08:03 PM   #9
Jvstin
 
I've just noticed little things as in less cramping cramping, more solid stools, etc.
this also could be just because I had surgery and I'm patched up some, but I really have a good feeling about 6MP. the doctors I had while I was in the hospital were all about me taking it. I with Remicade still worked for me, I sorta miss being hooked up for a few hours and getting a free lunch.
11-30-2007, 04:07 PM   #10
PippiShortStocking
 
6MP put me in remission about 3 years ago. It happened within a few weeks. I almost died from my Crohn's late 90s when my colon perforated. I wound up with a illestomy for a year. Put on 6mp after trying other meds. I'm living proof that it works. I've been experiencing pain lately, but I don't know if my Crohn's is coming back. Could be other meds I am on. Could be heartburn. I also have been taking Pentasa since 1998. I'm trying to eat a lot of yogurt with the pro-bacteria cultures. But, I know it was the 6mp. It's an expensive drug - over 5 bucks each, I think, here in Canada. I get assistantce thru a government plan.
12-02-2007, 02:02 AM   #11
Jvstin
 
if 6MP got me anywhere near remission I would be the happiest person ever.
I really never see myself going back into remission, only hit it once so far and that was after my first resection.
now, about you eating yogurt, how much can you eat without getting an upset tummy? I bought a bottle of probiotics cause I can barely tolerate a cup a week, it always sends me to the "office".
so if you don't mind to yak a bit about yogurt for at least my sake, perhaps there's a different kind I'm unaware of that's safer for us.
12-03-2007, 09:27 AM   #12
Shoeless
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As long as you stay on 6mp , at least for me works better than anything else i've taken. I still get some cramps but not near as bad as it was
12-03-2007, 04:43 PM   #13
Kev
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Not all yogurt is created equal. You could be sensitive to the fat content, or the sugar, or the lactose (just another form of sugar - milk sugar). And don't get me started on the ones with added artificial flavours or preservatives....
12-27-2007, 04:35 AM   #14
Mazen
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Try goat's yoghurt. It should be easier to digest.
01-03-2008, 05:04 PM   #15
Shoeless
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I did try some of the Active yougurt and man did I react to it. Since I tryed it i have had pain.
01-04-2008, 11:47 AM   #16
Kev
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Another thing to remember that either/both good bacteria/bad bacteria is going to produce gas... Now, whether its' the bad guys or the good guys, if gas increases, and your GI tract is enflamed (or is that inflamed?), your pain levels are likely to go up. Like, even healthy people have gas... the idea is that the more you replace the bad guys with good guys, the better things will be in the long run... but in the interim, gas pains ARE gas pains!
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