Hi-
I have a question and was wondering if anyone can help me out.
New to the diagnosis, I am trying to figure out what is considered a flare? I have been calling my pain episodes (whether 5 mins or 2 days) flares and not including the other symptoms going on but from all the postings and reading I think the term refers to all the things that go on , including the pain - like fatigue, extra bowel issues etc.
I am on predisone and pentasa (have been on entecort, suffolak, asacol too all in the last month), and my doc says I am on these for at least 4 months - does this mean I am in a flare for 4 months?
Oh - one more question, has anyone experienced a black mouth? I asked the pharmacist if it could be a reaction to the drugs and they said it could be some fungal thing related to them or maybe the disease but I can't find any info and my next doc appt is in two weeks. Basically my tongue looks like I drink a lot of grapejuice and then it also builds on my cheeks but can be scraped off with brushing every 2-3 days. I am brushing and rinsing loads...and with a mostly liquid diet, low cal due to reactions, I don't think it's what I am eating.
Thanks for any help -
totally confused Keara
I have a question and was wondering if anyone can help me out.
New to the diagnosis, I am trying to figure out what is considered a flare? I have been calling my pain episodes (whether 5 mins or 2 days) flares and not including the other symptoms going on but from all the postings and reading I think the term refers to all the things that go on , including the pain - like fatigue, extra bowel issues etc.
I am on predisone and pentasa (have been on entecort, suffolak, asacol too all in the last month), and my doc says I am on these for at least 4 months - does this mean I am in a flare for 4 months?
Oh - one more question, has anyone experienced a black mouth? I asked the pharmacist if it could be a reaction to the drugs and they said it could be some fungal thing related to them or maybe the disease but I can't find any info and my next doc appt is in two weeks. Basically my tongue looks like I drink a lot of grapejuice and then it also builds on my cheeks but can be scraped off with brushing every 2-3 days. I am brushing and rinsing loads...and with a mostly liquid diet, low cal due to reactions, I don't think it's what I am eating.
Thanks for any help -
totally confused Keara