KWalker
Moderator
Finally after a long wait, I now have an appointment with a specialist on November 22. It's the soonest they could get me in. Anywho, it's been so long since I've been to a specialist for crohn's and this will be the first time for me seeing this doctor as I moved away from my old specialist. I am also old enough now that my mom doesnt really do the talking for me and the doctor speaks to me.
I have crohn's, but my main issue of concern right now is my fistula. If that's what it is even. The symptoms lead to that, I'm just not sure what kind. It's a raised, tunnel like bump, probably about 1-2" long on my butt, and is now leaking quite a bit. Is that a good or bad thing? It leaks puss, and I have to wear pads to avoid wetness on my clothes. Sometimes it hurts, but for the most part, the biggest issue is the draining.
Here's my thing. I've had it easily for a few years now. Up until about last year, there was no draining at all. Now, I have days where I go through 2-3 pads so I feel clean all the time, and it leaks quite a bit. I can feel where its coming from, but having my head on my shoulders, it's hard to see it exactly lol. I basically want to ask the doctor what my options are. I just can't justify taking time off school to spend time in a hospital while in pain from surgery, when I feel perfectly fine right now, but can a fistula cause more serious problems? Whats the worst that can happen with one?
Can a doctor force you to have surgery, or is it all your choice? I don't want to get there and talk to him and him say I need surgery and that's he's willing to work with.
If it were your very first time with a new specialist, how would you act? Would you immediately let him do the tests he wants to do or would you leave and think about it? I know it's been a long time since I've had any tests done, but I would just hate to jump into something with a bad doctor. If he wanted to do a "scope" with this fistula, how would that work? Has anyone ever had that?
For the people who have done the surgery for the fistula, can you give me some info? Do you regret doing it? How did it feel after? I've heard the success rate isnt the greatest and often they end up coming back anyways.
Thanks guys!
I have crohn's, but my main issue of concern right now is my fistula. If that's what it is even. The symptoms lead to that, I'm just not sure what kind. It's a raised, tunnel like bump, probably about 1-2" long on my butt, and is now leaking quite a bit. Is that a good or bad thing? It leaks puss, and I have to wear pads to avoid wetness on my clothes. Sometimes it hurts, but for the most part, the biggest issue is the draining.
Here's my thing. I've had it easily for a few years now. Up until about last year, there was no draining at all. Now, I have days where I go through 2-3 pads so I feel clean all the time, and it leaks quite a bit. I can feel where its coming from, but having my head on my shoulders, it's hard to see it exactly lol. I basically want to ask the doctor what my options are. I just can't justify taking time off school to spend time in a hospital while in pain from surgery, when I feel perfectly fine right now, but can a fistula cause more serious problems? Whats the worst that can happen with one?
Can a doctor force you to have surgery, or is it all your choice? I don't want to get there and talk to him and him say I need surgery and that's he's willing to work with.
If it were your very first time with a new specialist, how would you act? Would you immediately let him do the tests he wants to do or would you leave and think about it? I know it's been a long time since I've had any tests done, but I would just hate to jump into something with a bad doctor. If he wanted to do a "scope" with this fistula, how would that work? Has anyone ever had that?
For the people who have done the surgery for the fistula, can you give me some info? Do you regret doing it? How did it feel after? I've heard the success rate isnt the greatest and often they end up coming back anyways.
Thanks guys!