Crohn's? Not sure what this is yet.
Hello Crohn's Friends! I'm so happy to have found this forum with so many people whom I can relate to. I have not been formerly diagnosed with Crohn's, but I have been in the process of testing for the past few months.
I have always had stomach issues...a variety of them. I have several different stomach pains that I can describe depending on the day/week/time of day, etc. Sometimes it's in my lower abdomen, sometimes it's a sharp pain in my right side, right now it's the feeling of my intestines twisting inside me; it all just depends. I go to the bathroom (I hate to actually say it) an average of 6-8 times per day. I've already gone three times, and it's only 10 am. The only thing I've eaten this morning is a cereal bar and a glass of apple juice. It's especially bad when I eat out a lot or have a lot of processed foods. I don't get how my husband can eat just about anything, and the only thing that makes me feel good is a good, healthy, home-cooked meal. My body has been like this since I can remember. My mom said I had a lot of issues even with formula as a baby. It got especially bad when I was in college. My friends all thought I was weird because I never wanted to eat on campus, but they didn't understand that I literally could not eat that food. I kid you not, even the salad bad which was just about the only thing I would lean toward, still had me in the bathroom not 15 minutes after I had eaten. Not fun. I've been graduated from college for over a year now, and it's a little better now that I'm living in a more stable environment and having the opportunity to eat more home-cooked meals, but it's still not good. I have my days. Some days I'm up and some days I'm down. I am a very positive person, but inside it is eating me away (really and truly). I eat I go to the bathroom I eat I fear for how I will feel. Depending on where I'm at I have to limit what I eat, and if you know me well, you know that I LOVE to eat. I am a tiny girl, and I eat more than many, but I have to the way I flush it out so quickly. I am sometimes so hungry that my stomach is growling almost to the point of nausea, yet I have the sensation of having to use the bathroom at the same time. If I don't eat about every two hours I actually get to feeling so sick as though I'm going to pass out. The worst is when I am in public or in large crowds and am about to have 'an emergency' as I like to call it. We've had to pull over at gas station and some of the worst places because it's been so bad. I went back to my college homecoming with my husband two weeks ago and had to go in some of the worst places including the restaurant we had dinner at mid-meal and one of the bars we were at. That's the last place I want to be in that instance.
I has blood work done testing me for celiac disease which is what even my family thought I had, but I don't have it. It makes sense that I would because I can definitely tell with some of the things I eat such as pasta, rice, cheese stuffed pastas, etc., I have the same issues, but according to my doctor that's not it. She put me on Flagil for two weeks in the assumption that it may be bacteria. My only though is, bacteria for the past 10+ years of my life? Really? I couldn't handle this medicine. It was not helping my bathroom issues in the least bit, and it was making me extremely tired, dizzy and even nauseous at times. I couldn't even handle it for the full two weeks. I was told if the medicine didn't stop the diarrhea I would need to schedule a colonoscopy. The spurts that I have are so on and off, but it's still a majority of the week that I am having these issues which I just don't think is normal. Some may say it's just IBS, but I really think it's more than that. I've been much more tired than normal in the past couple of years too (and I'm a very active, energetic girl), and I'm wondering if that has anything to do with it. My colonoscopy is on Monday, and I am truly terrified. I don't do doctors or any of this stuff well which is probably why it's taken me so long to really crack down on getting this thing figured out, but it's really truly starting to take a toll on my life. I almost cancelled a float trip this summer because I was too scared of what was going to happen (and it wasn't particularly good). I'm newly married, and it's even rough on our intimacy because so often I just don't feel good. I have a few close friends that have very similar issues, one of which has Crohn's, and she's the one whom talked me into finally getting the colonoscopy done. She said that she had to have it done twice though before she was even diagnosed. I'm afraid I'm going to have the same thing. I have a feeling they are going to tell me I'm completely normal, but I'm not normal. I just want to know what the deal is. I do the prep on Sunday (I'm dreading it!) and have the colonoscopy on Monday morning. I hope I can at least get some kind of an answer so that I can move on and quit researching what it 'could' be. Any insight or support would be greatly appreciated. And prayers for the test...I've never had any type of sedation before, and I am so scared! Thanks guys!
Hello Crohn's Friends! I'm so happy to have found this forum with so many people whom I can relate to. I have not been formerly diagnosed with Crohn's, but I have been in the process of testing for the past few months.
I have always had stomach issues...a variety of them. I have several different stomach pains that I can describe depending on the day/week/time of day, etc. Sometimes it's in my lower abdomen, sometimes it's a sharp pain in my right side, right now it's the feeling of my intestines twisting inside me; it all just depends. I go to the bathroom (I hate to actually say it) an average of 6-8 times per day. I've already gone three times, and it's only 10 am. The only thing I've eaten this morning is a cereal bar and a glass of apple juice. It's especially bad when I eat out a lot or have a lot of processed foods. I don't get how my husband can eat just about anything, and the only thing that makes me feel good is a good, healthy, home-cooked meal. My body has been like this since I can remember. My mom said I had a lot of issues even with formula as a baby. It got especially bad when I was in college. My friends all thought I was weird because I never wanted to eat on campus, but they didn't understand that I literally could not eat that food. I kid you not, even the salad bad which was just about the only thing I would lean toward, still had me in the bathroom not 15 minutes after I had eaten. Not fun. I've been graduated from college for over a year now, and it's a little better now that I'm living in a more stable environment and having the opportunity to eat more home-cooked meals, but it's still not good. I have my days. Some days I'm up and some days I'm down. I am a very positive person, but inside it is eating me away (really and truly). I eat I go to the bathroom I eat I fear for how I will feel. Depending on where I'm at I have to limit what I eat, and if you know me well, you know that I LOVE to eat. I am a tiny girl, and I eat more than many, but I have to the way I flush it out so quickly. I am sometimes so hungry that my stomach is growling almost to the point of nausea, yet I have the sensation of having to use the bathroom at the same time. If I don't eat about every two hours I actually get to feeling so sick as though I'm going to pass out. The worst is when I am in public or in large crowds and am about to have 'an emergency' as I like to call it. We've had to pull over at gas station and some of the worst places because it's been so bad. I went back to my college homecoming with my husband two weeks ago and had to go in some of the worst places including the restaurant we had dinner at mid-meal and one of the bars we were at. That's the last place I want to be in that instance.
I has blood work done testing me for celiac disease which is what even my family thought I had, but I don't have it. It makes sense that I would because I can definitely tell with some of the things I eat such as pasta, rice, cheese stuffed pastas, etc., I have the same issues, but according to my doctor that's not it. She put me on Flagil for two weeks in the assumption that it may be bacteria. My only though is, bacteria for the past 10+ years of my life? Really? I couldn't handle this medicine. It was not helping my bathroom issues in the least bit, and it was making me extremely tired, dizzy and even nauseous at times. I couldn't even handle it for the full two weeks. I was told if the medicine didn't stop the diarrhea I would need to schedule a colonoscopy. The spurts that I have are so on and off, but it's still a majority of the week that I am having these issues which I just don't think is normal. Some may say it's just IBS, but I really think it's more than that. I've been much more tired than normal in the past couple of years too (and I'm a very active, energetic girl), and I'm wondering if that has anything to do with it. My colonoscopy is on Monday, and I am truly terrified. I don't do doctors or any of this stuff well which is probably why it's taken me so long to really crack down on getting this thing figured out, but it's really truly starting to take a toll on my life. I almost cancelled a float trip this summer because I was too scared of what was going to happen (and it wasn't particularly good). I'm newly married, and it's even rough on our intimacy because so often I just don't feel good. I have a few close friends that have very similar issues, one of which has Crohn's, and she's the one whom talked me into finally getting the colonoscopy done. She said that she had to have it done twice though before she was even diagnosed. I'm afraid I'm going to have the same thing. I have a feeling they are going to tell me I'm completely normal, but I'm not normal. I just want to know what the deal is. I do the prep on Sunday (I'm dreading it!) and have the colonoscopy on Monday morning. I hope I can at least get some kind of an answer so that I can move on and quit researching what it 'could' be. Any insight or support would be greatly appreciated. And prayers for the test...I've never had any type of sedation before, and I am so scared! Thanks guys!
Last edited:
