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Crohn's Disease Forum » Surgery » Stoma Subforum » A few ileostomy/ bag pictures.


 
11-07-2011, 07:33 PM   #1
littlefreebird
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a few ileostomy/ bag pictures.

well i'm 15 weeks post-op now, have been working full time in a new job for 7 weeks now!
it is amazing how quickly you get used to having a bag, i completely forget it's there and couldn't imagine not having it there now and using a toilet the usual way lol!

finding out i needed the surgery in june, then actually having it done in july, i had 1 month to mentally prepare, i was all over the place, i convinced everyone i was fine with the whole thing but i was very teary- it all just happened to fast.

this forum was an absolute life-saver. i've been through it, parts were tough but life is now amazing and i just wish i had it done sooner.

i always wanted to share a couple of pictures because if i can make one person who is potentially facing this op feel a little less scared about the whole thing, then that would make me very happy.

my surgery was open surgery- to remove the entire large intestine, rectum and anus. some people are lucky enough to have it done laproscopically if the surgery is well planned in advance but mine was classed as an emergency.

the 1st pic is around 4-5 days post op. the plaster to the left is where my drain was.


this pic is how my wound and bag currently look like. i still have the little dots (from where the staples were lol) and please note the pic is taken into the mirror so my bag is actually on the right.


and another...


this pic i have to apologise for the posing- it was one of my first nights out and i was quite excited lol. just wanted to post it to show that the bag is not visible under tight clothes...because in my opinion after this surgery you are definatley not limited in what you wear.


if you have pics to share in this post- feel free!
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Last edited by littlefreebird; 11-07-2011 at 08:01 PM.
11-07-2011, 08:07 PM   #2
Emily
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You are looking great! i'm glad you did this! before my surgery, I was desperate to see what I'd end up looking like. Hopefully this will be useful for people going into surgery, I know I'd have appreciated it before. anyway here's me as of a few minutes ago.

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Age 24
  • Diagnosed with Crohn's at age 7
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11-07-2011, 08:11 PM   #3
xJillx
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Thanks for sharing, ladies! I think this thread will be helpful for many.
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I am still sick and so confused...
11-07-2011, 08:14 PM   #4
Crohn's Mom
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thanks for sharing ! I am so happy you are doing so well

I would share Gab's pictures but she may hunt me down after LOL.
I'll ask her and see what she says for sure tho
11-07-2011, 08:14 PM   #5
suschex
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Thank you both so much for sharing your experience and pictures! I am new to all of this but know that I may be headed in that direction. You both are very strong, brave women for going through this and sharing with such bright attitudes! Thanks again and I wish you both continued health and recovery!!!

Suzanne
11-07-2011, 08:17 PM   #6
Nyx
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I have pics of mine up here already somewhere...I'd take a new one but I'm much fatter now...lol
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Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

11-07-2011, 08:21 PM   #7
Nyx
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Found it....mine's on page 3. My scar still pretty much looks like that, it's very red even after almost 2 years.

http://www.crohnsforum.com/showthrea...t=scars&page=3
11-07-2011, 08:25 PM   #8
littlefreebird
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thanks everyone and thanks emily for sharing, that has healed up really nicely for you!

nyx, you're scar looks very similar to mine, purple-ish and mine has stretched/ widened also. thankyou for sharing
11-07-2011, 10:12 PM   #9
Right2Rong
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I feel that when one becomes chronically ill you can turn into one of 3 people. You either become very angry, very depressed or learn to be happy in spite of it. Even though sometimes we may go through the first 2 before we get to third it is always better. Congratulations on coming out ok. You have made me feel better and a little less scared just in case my Crohn's gets to that point. Thanks for such a positive attitude.
11-08-2011, 03:08 AM   #10
Gav
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Brave to post pics ladies. Looking great and it will certainly help people who will be scared at the life changing effects of major surgery.

I see myself as lucky that the positioning of my stoma means I don't have to limit what I wear.
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UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
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11-08-2011, 05:35 AM   #11
bigtruck
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Looking good. Did you have your surgery in the royal? I had my op on 12th sept in the royal I had about 40 cm off small bowel removed and a temp (hopefully) ileostomy. Unfortunately I also had a psoas abcess which resulted in a total hospital stay of 5 weeks. Good to see how well u look.
11-08-2011, 06:47 AM   #12
robbo87
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Lookin good! Im jealous of how well you scar has healed!
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ferrous sulphate
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ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
11-08-2011, 07:07 AM   #13
Grumbletum
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It's good to hear ( and see :-) ) how you brave people are doing so well. Thanks for posting - you'll be an inspiration to many, I'm sure x
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Last edited by Grumbletum; 11-08-2011 at 09:57 AM.
11-08-2011, 07:36 AM   #14
__JK__
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Glad it all went well and your lookin great now.

Here's my little beauty!



2 op's through the same hole last one 17 months ago. They stappled me up the first time around but last time they glued me back together! Stitched me on the inside and glued the skin back over the top. It was quite odd. made me feel a bit worried really that it might unstick :P

JK
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11-08-2011, 10:54 AM   #15
Emily
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Nice pic JK, I remember when mine was that shade... it fades to pink ever so slowly. I'd love to see more pics from anyone who's willing to share, it's really interesting! As a side note, in my pic I am one year post op and had a laparoscopic surgery so mine is little... but still, it took me a while to be not embarassed in a bikini this summer I think I hate the little laparoscopy scars more than the big incision itself.
11-08-2011, 11:06 AM   #16
Misty-Eyed
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Yes this is what I'm talking about!

Last week I posted a video of my stoma and another pic here;

http://www.crohnsforum.com/showpost....&postcount=103

I took some more today which is a month after my laproscopic op.

Without bag;


Closeup without bag;


With bag;


And I also took some close ups of the scars as you can't even really make them out on the pic. I put a small kirby clip next to them for size.







And no, I'm not deformed in the last one. It's the one in my belly button!
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11-08-2011, 11:10 AM   #17
chrisnsteph1022
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Thanks for sharing. I'm terrified of ending up with a bag (mostly because of my own vanity), so it helps to see you wear it so well! You look fantastic!
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11-08-2011, 11:12 AM   #18
Misty-Eyed
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Oo sorry my photos are so big!!! lol. I did try to resize them but with no luck :/
11-08-2011, 01:34 PM   #19
robbo87
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whilst were at it i thought id put one up aswell, but youll have to excuse the poor quality and the strange hairy belly!... lol still a scar from the gastostromy above the mucous fistula but where i had a drain isnt so bad.

11-08-2011, 01:38 PM   #20
chrisnsteph1022
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You have two bags? I don't understand.
11-08-2011, 02:11 PM   #21
robbo87
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You have two bags? I don't understand.
the smaller patch isnt a bag as such, its a patch that covers a mucous fistula. i think what i have is referred to as a loop ileostomy. Not much comes out of this really other than small amounts of mucous. although the smell of it is horrible!..
11-08-2011, 02:45 PM   #22
Terriernut
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May I take this moment to wolf whistle at all of you gorgeous lovely ostomates???
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DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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11-08-2011, 03:55 PM   #23
hannah-rose
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Some pretty sexy stomachs in this thread! *echoes Misty's wolf whistle*

And littlefreebird wow! You're stunning! Great abs!
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11-08-2011, 04:09 PM   #24
Emily
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oops didn't realize this was the stoma subforum my bad! I just hadn't seen a thread like this before. whoopsies!
11-08-2011, 04:19 PM   #25
Terriernut
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oops didn't realize this was the stoma subforum my bad! I just hadn't seen a thread like this before. whoopsies!
We all have scars! Dont be embarrassed...WE arent! You should see Nyx in her swimsuit...Uh huh....she rocks!
11-08-2011, 04:24 PM   #26
__JK__
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oops didn't realize this was the stoma subforum my bad! I just hadn't seen a thread like this before. whoopsies!
I saw what thread it was but any excuse to show what i'm hiding under my shirt is a good excuse
11-08-2011, 04:37 PM   #27
Terriernut
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I saw what thread it was but any excuse to show what i'm hiding under my shirt is a good excuse
Whooo hooooo....made my day!!! (it's good to be old, I can get away with these things!)

Misty
11-08-2011, 05:02 PM   #28
spcwife23
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yall make those look good,lol im glad everyone is healing and doing good, and pray this help everyone go into remission
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11-08-2011, 05:22 PM   #29
hannah-rose
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I saw what thread it was but any excuse to show what i'm hiding under my shirt is a good excuse
Nice pants but I bet you put the good ones on for the photo and the rest are from MnS
11-08-2011, 05:26 PM   #30
__JK__
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haha yeah I was talking about the pants not the scar!
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