I am a mom trying to support my son with crohns. I am trying to figure out the best source of information so I can help my son. He has had crohns for quite some time, but it went undiagnosed for a long time He has a Gi, been through !ot of problems and does not have it under control. Do other Crohn's patient bruise easily? How many flares do most people have? Anyone have pain when CT doesn't show a problem? Anyone only on remicaid? Does anyone have slot of nausea and doesn't feel like eating
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Family member
- Thread starter Nancy
- Start date
Jessi
Moderator
Hi Nancy! Welcome to the family!
We have so many people here that are supporting their children with IBD. Maybe you can find some comfort and answers in this sub-forum: http://www.crohnsforum.com/forumdisplay.php?f=49 Or this sub-forum: http://www.crohnsforum.com/forumdisplay.php?f=90
How old is your son? Has he been checked for anemia? I flare every year for around 7 months. But I am on Remicade, currently, and have not started a new flare!!! I usually start in October, so this is a really good sign for me. Remicade is the only drug I'm on and it's working wonders for me. We do have a Remicade sub-forum, too: http://www.crohnsforum.com/forumdisplay.php?f=58
I hope I've been able to help you feel better about some of your questions. There are loads of people who will understand what you're going through. You came to the right place! :hug:
We have so many people here that are supporting their children with IBD. Maybe you can find some comfort and answers in this sub-forum: http://www.crohnsforum.com/forumdisplay.php?f=49 Or this sub-forum: http://www.crohnsforum.com/forumdisplay.php?f=90
How old is your son? Has he been checked for anemia? I flare every year for around 7 months. But I am on Remicade, currently, and have not started a new flare!!! I usually start in October, so this is a really good sign for me. Remicade is the only drug I'm on and it's working wonders for me. We do have a Remicade sub-forum, too: http://www.crohnsforum.com/forumdisplay.php?f=58
I hope I've been able to help you feel better about some of your questions. There are loads of people who will understand what you're going through. You came to the right place! :hug:
xJillx
Your Story Forum Monitor
Hi Nancy and welcome. Unfortunately, everyone is so different. Some people have several flares a year, some can be in remission for years. Some people have nausea, others don't. It's such a tricky disease!
If your son is having issues with bruising, you want want to get his iron levels checked. Also, Jessi makes a good point to be sure he isn't anemic.
As far as a clear CT scan, I have had clear image tests even though inflammation & ulcerations have been seen during a scope.
I sure hope Remicade works for your son. It has done wonders for many!
If your son is having issues with bruising, you want want to get his iron levels checked. Also, Jessi makes a good point to be sure he isn't anemic.
As far as a clear CT scan, I have had clear image tests even though inflammation & ulcerations have been seen during a scope.
I sure hope Remicade works for your son. It has done wonders for many!
David
Co-Founder
- Location
- Naples, Florida
Greetings Nancy,
I'm glad you found your way here as I think you can find answers or at least anecdotes related to most of the questions you posted above. I would suggest creating new threads in the forums linked above and asking specific questions there. People will be sure to do what they can to help as there's so many helpful people here.
I wish you and your son all the best
I'm glad you found your way here as I think you can find answers or at least anecdotes related to most of the questions you posted above. I would suggest creating new threads in the forums linked above and asking specific questions there. People will be sure to do what they can to help as there's so many helpful people here.
I wish you and your son all the best