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Crohn's Disease Forum » Your Story » Success Stories » What has helped you feel better as a crohnie?


11-19-2011, 10:42 PM   #1
social me
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Location: columbus, Ohio
What has helped you feel better as a crohnie?

Has anything worked for you to help make you feel better or maybe even help put you into remission?

This is what has helped me:

Recieving B12 bi weekly for 3 months and then 1 a month to fight the drained no energy feeling.

Probiotics, for me a must.

I am always anemic despite taking iron pills or not so my doc started me on iron infusions. really helps with feeling awake and alert. More energy as well.

Gluten Free (HUGE HELP) though I splurge I am not superwomen you know.

Lactose free

NO ALCOHOL ..boo hoo. But not worth the pain I am left in.

Calcium/magnessium/zinc pill

Lamictal- now this is a bi polor med, however it is also used as a mood stabilizer to keep me from getting to down during bouts of anxiety and depression. I know some other people with crohn's suffer from anxiety and depression because of the limitations a crohns flare can do to you. After 2 weeks I noticed a huge change. Now if I go without it By day 2 I start feeling down and anxious. This just helps fight off the lows and unsettled feeling you feel at times.

Hope this has helped anyone and if you think anything has helped you please share, it might make someone feel better too.
__________________
Meds:
Pristique- Anti dep.
Lamictal- Anxiety
Asacol 400mg 2pills 3x daily
Remicade First treatment for Crohns 4-12-11
B12 shots once a week

Been on Remicade for over 2 years for other immune disorder I have. Docs not sure this treatment will be effective for me as a treatment for Crohns.

Come to me and I will give you rest -- all of you who work so hard beneath a heavy yoke for I am gentle and humble, and you shall find rest for your souls; Matthew 11: 28-29 TLB
11-19-2011, 11:52 PM   #2
brianncc
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Thanks for the ideas. I am all about the probiotics. I am starting to think about trying Kombucha Tea from Whole Foods. Your suggestions do help!
11-20-2011, 12:06 AM   #3
outlier
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Alcohol helps me thorough a lot i am sure my liver will thank me for it later.

this forum and talk to friends and family has really helped me the most. that and learning how to talk to doctors, pt for non intestial issues. wish i had a silver bullet but that's really the truth
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Diagnosed: Crohn's Oct '09
Extraintestinal: scleritis May '08, GERD Aug '09, ankylosing spondylitis Feb '10
Current Meds: Humira, Asacol, Dexilant, domperidone, Tramadol and a whole lot of vitamins
No more sulfasalazine, Methotrexate, Xibrom, Pred Forte and Iron
11-20-2011, 02:31 AM   #4
mnsun
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Probios (alternate a couple strains--multis/s. boulardii/l. plantarum throughout the day, 10-30billion a day, generally speaking--a lot of brands dont work), enteric coated fish oil (3-5 grams omega 3s, per day), yerba mate(lesser source of caffeine--might cause problems in some), and lots of water. Walking every day/trampoline or getting out in nature helps--dig your hands in soil, plant something. Do some light yoga or meditation/visualisation/breathwork in spare moments, whatever you can handle. Get affectionate pets, cats are low maintenance. Herbal teas (ginger/peppermint/camomile with stevia).
11-20-2011, 03:26 AM   #5
Grumbletum
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Location: Western Isles, United Kingdom

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Definitely diet. Specific Carbohydrate works best for me as caffeine, sugars and sweeteners, gluten and yeast are my worst triggers.
Finding a GP who is on the ball and really listens. Also being assigned to an IBD nurse since I started on Remi.
And the forum, which is where I come first as you are always sure of comfort and support here :-)
__________________
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
11-21-2011, 03:39 PM   #6
social me
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Thanks everyone this is helping me I hope you too get some help from me or other posts. Thanks All.
11-21-2011, 06:48 PM   #7
hangingon
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no alcohol, no dairy, and managing anxiety/depression are key for me. i also take a probiotic daily and am working on cutting out caffeine. i have thought about cutting out gluten, but haven't taken steps to do so.
__________________
total colectomy in 1999, ileostomy for 3 months then reconnected, now i have a j-pouch. one fistula with a seton, and 2 more that just popped up..
currently taking 30mg of pred

dear Buddha, please bring me a pony and a plastic rocket.
11-24-2011, 07:17 AM   #8
Norseman
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Location: Harstad, Norway

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Acceptance...once you can get yourself into that state of mind, it becomes okay. Even during the worst flare ups when you wanna scream the worst abuse you can at womever you believe created you like this...learned that in the army when there was not much you could do to change what happened aroyund you, and the only way forward was to deal with what was directly in front of you...
11-24-2011, 05:32 PM   #9
kllyeve
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Location: Edmonton, Alberta

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This forum has helped me the most. Being able to get help and support almost instantly has been huge to my moods. There is always someone who is going through close to what you are.

Having people who DON'T get tired of hearing how bad I am feeling and DON'T judge me for my treatment decisions has been an enormous help in coming to terms with having a chronic condition.

Thanks everyone!!
11-25-2011, 12:47 PM   #10
LuckySeven
 
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Location: Ottawa, Ontario
Humira
Methotrexate
Calcium, vitamin D, vitamin B12, folic acid
Marijuana
11-25-2011, 01:29 PM   #11
SnowDay
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Location: Ireland

Having people who DON'T get tired of hearing how bad I am feeling and DON'T judge me for my treatment decisions has been an enormous help in coming to terms with having a chronic condition.

Thanks everyone!!
I agree, i judge myself enough as it is, last thing i need is more judgement in my life. Big +1 to this site being great
__________________
Dx'd w Leaky Gut Syndrome in 08. Had eczema(autoimmune), chronic fatigue, asthma and suspected crohns(booked for an endoscopy).

Been on cyclosporine, currently on vit d3, zinc, probiotic, digestive enzymes, getting iv drips of vit C, B complex, folic acid, niacin and EDTA twice weekly and living on an all poultry diet. WANT CARBS
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