- Location
- Finger Lakes area of New York St.
Hi, I'm new here but have been active on j-pouch.org for several years. It's a similar forum for those of us who are about to or already have had our colon removed. I "lived with" UC for over 30 years and also developed Polymyalgia Rheumatica about 10 years ago. 3 years ago my colonoscopy was not good with possible precancerous cells and a lot of ulceration. Long story, short...2 surgeries for total colectomy and J-pouch formation. Developed infected abcess and was on IV picc line antibiotics for 8 weeks. Third surgery was required to repair hernias (mesh) at main incision and stoma sites. (when they tell you not to lift anything after surgery, they mean it).
After things calmed down following the surgeries, I was getting pretty used to the new normal. This summer I got what I thought was a spider or tick bite on my left shin. It got very red, sore, and ozzed puss. GP treated with antibiotics which did nothing. Another GP decided it could be Erethema Nodosum. It seemed to improve on its own after about 6 weeks but soon another new spot developed on other shin. This area was worse with multiple "hot" spots. Dr. put me on more antibios. and 40mg tapering dose of prednisone. The pred seemed to help but when finished the area got worse than before. GP called Rheumatologist who treated me for the PMR and got me appt. on short notice. (normally takes 3 months to see this Dr.)
This brings me pretty much up to date. The Rheum. diagnosed it as Pyoderma Gangrenosum and put me on 60mg Pred, Azithioprine and antibiotics. I hate all the drugs. The pred has me very wired and moody (not to mention the unseen side-effects.) But it is clearing up.
I'm looking for advice on treatments especially how you keep it from re-occuring. One thing I just read about is Manuka Honey. Anyone tried it?
Thanks for reading!!
After things calmed down following the surgeries, I was getting pretty used to the new normal. This summer I got what I thought was a spider or tick bite on my left shin. It got very red, sore, and ozzed puss. GP treated with antibiotics which did nothing. Another GP decided it could be Erethema Nodosum. It seemed to improve on its own after about 6 weeks but soon another new spot developed on other shin. This area was worse with multiple "hot" spots. Dr. put me on more antibios. and 40mg tapering dose of prednisone. The pred seemed to help but when finished the area got worse than before. GP called Rheumatologist who treated me for the PMR and got me appt. on short notice. (normally takes 3 months to see this Dr.)
This brings me pretty much up to date. The Rheum. diagnosed it as Pyoderma Gangrenosum and put me on 60mg Pred, Azithioprine and antibiotics. I hate all the drugs. The pred has me very wired and moody (not to mention the unseen side-effects.) But it is clearing up.
I'm looking for advice on treatments especially how you keep it from re-occuring. One thing I just read about is Manuka Honey. Anyone tried it?
Thanks for reading!!
You've been on a bumpy road. I hope someone here will have advice or answers to your questions. If you're interested in manuka honey or other foods to help treat symptoms, you may find what you need in our diet forum. 