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11-23-2011, 04:19 PM   #1
Crohn'sGirl
 
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Join Date: Aug 2011
Location: Vero Beach, Florida
Celebration

Just wanted to take a minute to thank everyone on this forum who has been such a help to me with my new life with a stoma. I am now about 3 weeks post op and getting stronger by the day. I still have my days of feeling crummy and adjusting to life with a bag, but then I sit down with my family to eat dinner and I actually get to eat it all and not get up to run to the bathroom after three bites. I was able to go to the store and not run to the bathroom thinking "Am I going to make it?" I still feel like everyone can see this bag under my clothes, but since I got a smaller size wafer I feel better about appearance and was even able to wear one of my "tighter" tank tops which I thought I was going to have to throw away because it was going to be very obvious. I have the support of my family, but with it being Thanksgiving tomorrow I wanted to thank everyone on here and just say that I would never have been able to mentally or physically get through everything without the help of this forum. To anyone who may need to get an ileostomy or colostomy for your CD or UC, it is tough at first, I'm not gonna lie, but I have this whole new outlook on life now that I didnt know was possible with CD. I finally feel like I have a life aside from the Crohns for once and thats alot for me at 24. Dont give up the fight of this disease. Life is not over just because you have to have a bag. For me it is only the beginning!
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Meds: Tried Lialda, Humira, 6 MP, and Prednisone
Currently taking 6 MP and Remicade every 8 weeks

Diagnosed in 2010 with Crohn's Disease

Had ilestomy 10/31/2011 and learning to take one day at a time.
11-23-2011, 04:36 PM   #2
jaggartini
Member
 
Join Date: May 2011
Location: AUSTRALIA
What a great outlook you have ChronsGirl, good on you. I'm heading down the possible surgery path and my biggest 'Pro" if you like is being able to sit and eat and not run to the loo and not have to pop a billion pills and have side effects etc etc etc. It's nice to read that whilst surgery is going to be no walk in the park there is 'afterwards' and it's not going to be all that bad, it's just adjusting to the situation

Keep us updated how you are going as I'd love to hear.

Gx
__________________
Ulcerative Colitis since 2004

Currently taking:
4 x 1g sachets Pentasa (every morning)
5mg x Prednisone
Probiotic Daily

Allergic Reaction to Imuran May 2011.
Reaction to Cyclosporin Nov 2011.
I've said no to Methotrexate as it sounds toxic and GI doesn't like using it.
Next stop may be surgery.

Had a major flare last Nov, hospitalised where I haemorrhaged. Ended up in ICU and blood transfusion.

.
11-23-2011, 05:21 PM   #3
Misty-Eyed
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Join Date: Feb 2010
Location: United Kingdom

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Well that is good! I went into work yesterday for the first time and was telling everyone how I love my bag. All the positives and how I wished I had gotten one years ago. I think they just thought I was talking myself into being positive. But no, I meant it!
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
11-23-2011, 08:20 PM   #4
ameslouise
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Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Welcome to the club Crohn's Girl! Glad you are feeling well and able to enjoy those "simple" things in life again. It's amazing how good you can feel and not even think twice about having a bag!

Enjoy Thanksgiving! (But be careful of gravy!!) -Amy
11-24-2011, 10:39 AM   #5
Crohn'sGirl
 
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Join Date: Aug 2011
Location: Vero Beach, Florida
My mom makes gravy so she can make it very plain with water and buillion no pepper or stuff I cant have! Love my mom
11-24-2011, 12:23 PM   #6
robbo87
Senior Member
 
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Join Date: Dec 2008
Location: Wigan, United Kingdom

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Glad things are looking up for you
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My Story
Diagnosed 2008
Currently taking
omeprozol 40mg
codeine x4
laparimide
ferrous sulphate
folic acid

ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
11-24-2011, 01:10 PM   #7
Terriernut
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Join Date: Dec 2010
Location: United Kingdom

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Welcome Crohns Girl! I am thankful this day to be a part of this lovely group of people. I'm also thankful to be alive...because this time last year, the 17th of November 2010 I was first admitted to hospital for a perforated bowel.

I was also the xmas turkey last year. However, thanks to alot of help from this forum, I not only survived, but thrived. I dont know if I would be the sane balanced individual I am today without these folks. ( and if you believe I'm sane..........) But yes, the people on here really did make all the difference to me this past year or so.

Thank you from the bottom of my bag. I mean heart!!!
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
11-24-2011, 01:13 PM   #8
Crohn's 35
Inactive Account
 
Join Date: Oct 2009
Thank you from the bottom of my bag. I mean heart!!!
I love good humour!!!
11-24-2011, 01:20 PM   #9
Terriernut
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Join Date: Dec 2010
Location: United Kingdom

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I love good humour!!!
Dats cause you are a nutter too!!! Thats why we love ya!!
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