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Crohn's Disease Forum » Surgery » Medication AFTER Proctocolectomy


11-28-2011, 10:31 PM   #1
jaggartini
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Medication AFTER Proctocolectomy

What medication do you take after you have surgery? I'm heading toward Restorative Proctocolectomy if god is kind to me.

I'm guessing some sort of pain killer for a start but is there anything else?

Thx
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Ulcerative Colitis since 2004

Currently taking:
4 x 1g sachets Pentasa (every morning)
5mg x Prednisone
Probiotic Daily

Allergic Reaction to Imuran May 2011.
Reaction to Cyclosporin Nov 2011.
I've said no to Methotrexate as it sounds toxic and GI doesn't like using it.
Next stop may be surgery.

Had a major flare last Nov, hospitalised where I haemorrhaged. Ended up in ICU and blood transfusion.

.
11-30-2011, 01:17 PM   #2
glum chump
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I had a subtotal colectomy (proctocolectomy is upcoming!) with a permanent ileostomy. Since my surgery, I'm on a 'medication vacation.' I was on Dilaudid (for pain) after surgery as well as IV antibiotics (I had excess surgical fluid that was infected). Two months after surgery, I finished all meds and have taken nothing since.

I continue to take multivitamins, Vitamin D, and fish oils, but nothing other than that. I am enjoying life in remission and want to give my body a break after years and years of toxic Crohn's meds.

I wish you all the best if you decide to go the surgery route. In the meantime, if methotrexate works for you, then that would be great!

Regards,

Kismet
11-30-2011, 02:55 PM   #3
Terriernut
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jaggartini, you might want to post this here in the stoma subforum as well:
http://www.crohnsforum.com/forumdisplay.php?f=46

I know some still continue on AZA or some other drugs, however, since you have UC, technically you should be able to go without meds with no colon.
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
11-30-2011, 08:31 PM   #4
Nyx
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I was on Demerol and Gravol immediately after my surgery, after 4 days I went to just plain old Tylenol (and that was mostly for back spasms not from the surgery itself). Currently I'm not on any Crohn's meds and haven't been for almost 2 years.
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

11-30-2011, 08:36 PM   #5
Crohn'sFor Life
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If you have UC, then you will be cured when you remove your colon. You will be able to throw away all the meds you currently take.

I am now drug free.
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Diagnosed July 2, 2009 Crohn's Colitis

Colon removed September 26, 2011.
Pathology showed UC instead of Crohn's.

I have arthritis that is very similar to RA, but not RA because I had UC.

Autoimmune related itch.

Meds: 15 mg/week Methotrexate for RA
Cetirizine for the itch
12-01-2011, 04:40 PM   #6
ameslouise
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I'm med free, too, after my permanent ileo in March!

- Amy
12-01-2011, 04:53 PM   #7
Terriernut
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Ames and Cindy...Since you both have Crohns and not UC, can I assume that you both have Crohns Colitis? Where it's only the large colon that was affected?
12-01-2011, 06:01 PM   #8
Misty-Eyed
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I took tramadol for pain but now I'm on nothing!! Woooo!!! I can even eat whatever the hell I like.. I won't be trying wheat berries though! Tee hee hee
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
12-01-2011, 08:28 PM   #9
Nyx
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@Misty...nope I only have Crohn's. I've never been diagnosed with Crohn's Colitis. I've had some activity in my mouth and eyes, but most of my activity has been in my colon, anus, and rectum. I'm knocking on wood right now that I haven't had a recurrence of symptoms...but I have a scope every year so if there's anything going on I'll be back on meds asap.
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