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Crohn's Disease Forum » Surgery » Strictures & Obstructions » Intestinal Blockage / Obstruction Support Group


 
01-24-2014, 11:09 PM   #181
nini_mini
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Wow! you two have been through the ringer with blockages. Its unnerving to know that they can happen at any time with adhesions from surgery. I wish you guys the best of luck in the future with not getting them.
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Name: Nina
Crohn's Dx: april 2012
Symptoms: since Jan. 07'
Surgery on 11/6/13. Open/emerg.bowel resection, closed up with glue!
Current meds: oxycodone for pain 5-325, zofran 4mg prn, phenergan 25mg prn, remi 5mg every 8 weeks -_- boo!
Currently: "dying" from searing hot razors and a stabbing vice grip on both sides of my colon
01-25-2014, 07:22 AM   #182
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Thanks Dave, feeling not bad today, bowel moved today so will be settled for a couple of days. I have been on low residue diet for forever but even that doesn't work. Toast, tomato soup and 0% yoghurt. The smell of food cooking is hell ans I still do the majority of the cooking is yuk and puts me off everything. I am a foster carer to. 2 teens so try not to let them see me at my true state, smile and hide upstairs when things are so bab. The other thing is that all my obstructions start exactly 3/4 hours after evening meal so I can feel ok all day therefore eat a bit and then wham 9-10 at night it starts. Sometimes it subsides in the early morning but if I am still in agony then I call ambulance once the kids are going to school. It's awful and unpredictable and no- one seems to know what to do.
01-25-2014, 07:34 AM   #183
Fosterfamily2303
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i get a lot of partial blockages...and when i go to er for the pain they just givee paineds amd send me home. Mine thank god seem to always clear on their own. My pain is intense waves tjat come and go. All i do is stay in tje bathroom. after about and hour in a half i poop...throw up amd pass out for 30-40 min and feel better . i know now when they coming and just pass it wih the tramadol i have. But its qorse then labor pains!!
02-10-2014, 04:45 PM   #184
devin.moyer
 
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I was just recently diagnosed with Crohn's Disease. A CT scan showed an intestinal blockage, a colonoscopy showed 2 polyps and 4 ulcers in my large intestine. I am active duty military and had a few questions. First question, does anybody know if the military will medically discharge me because of this disease? I am getting different answers from everybody. My GI says i will most likely be discharged, my PA says no. Second question is, will an intestinal blockage possibly cause lower back pain?
02-11-2014, 05:45 AM   #185
Grant
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Hi devin.moyer, I wouldn't guess how the US military react to such a disease. What I can tell you is that I was medically discharged from the Royal Navy with it in 1986.
Hope you get well soon
Rgds
Grant
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1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
Loperamide
Calcichew
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
02-11-2014, 04:25 PM   #186
Jennifer
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Hi devin.moyer and welcome to the forum!

I haven't served myself but we do have some other members who are in the military who haven't been discharged because of Crohn's.

As for the back pain, yes a blockage can cause back pain (I had both middle and lower back pain with my obstruction). Crohn's in general can cause inflammation in the joints though. I have osteoarthritis caused by Crohn's and it mainly affects my spine and hips.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
02-11-2014, 05:44 PM   #187
devin.moyer
 
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Ok, good to know. After talking to my doctor, they told me i will go in front of a medical board, and they will decide whether or not i get discharged based on if the army needs people or not and whether or not i would be considered a liability, which really scares me because the army is trying to down size, and i will be put on a non-deployable profile, which they may look at as "this guy can't deploy, what is the point in keeping him in." Is there a military support group? I didn't see one, didn't know if i just missed it or if it doesn't exist.
02-12-2014, 12:32 AM   #188
Jennifer
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I don't believe we have one yet but I can definitely make one as that would be very beneficial. I'll edit this post with the link to the support group.

Edit: It has been created. Feel free to join and post and hopefully other members will follow. http://www.crohnsforum.com/showthrea...530#post747530
02-12-2014, 12:33 AM   #189
devin.moyer
 
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Thank you
02-12-2014, 07:06 AM   #190
dave13
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can you join this new group if you haven't been in the military?I would be interested in doing so.
02-12-2014, 02:32 PM   #191
Jennifer
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Yes dave13 you can join any of the support groups.
02-12-2014, 03:50 PM   #192
fozheart
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I have felt a partial blockage since I tapered off of my prednisone, at the beginning of January. Pain has gotten so bad, and I am going for a CT in a few hours. I am nervous about what they will find.
02-17-2014, 08:00 AM   #193
Whit
 
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Fozheart,
I asked my family doctor about whether or not I always have to have a CT scan and she said no, that a regular exray could be used instead. I'm concerned about all the radiation. Good luck with yours.
Whit
PS-After my hospital visit and CT scan I was tapered off prednisone and started on Pentasa. I had quit all drugs three months before I ended up in the hospital with an obstruction and decided to make sure I'm on something all the time to help with the intestinal blockages.
02-17-2014, 08:36 AM   #194
dave13
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What timing for these posts fozheart and Whit.I see my GI today for the first time since my resection for a blockage.I'm quite nervous about it.It's been close to three months of waiting.I am currently on no meds.I can relate to the pain of blockage fozheart,that was my introduction to crohn's.My blockage was found comparing x-rays,CT scan and an ultrasound.Always associated ultrasounds with pregnancy,it showed a great image of my blockage.My surgeon feels my GI will recommend a non-steroidal med to help me stay in remission.5-ASA perhaps.I have to go to work after so I hope our first meeting goes well.I don't feel like putting on the happy face at work and answering questions today.Yesterday was my first full shift at work and today I will be late because of this GI visit.I've been out of work for so long and the week I start working again I have to miss time for a doctors visit.I was so tired after work yesterday,I wasn't sure I would make the whole shift.I'm nervous about going back full time,but I can't afford not to.I am currently in remission so I will focus on that happy thought and do the best I can with everything else.Good luck Whit and Fozheart!
02-17-2014, 07:17 PM   #195
Whit
 
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Dave,
I was diagnosed at age 68 after 40 years of no diagnosis except maybe IBS. Good luck with your GI visit. One question you might be able to help answer is how does one know he or she is in remission? At some point I'd like to get off the Pentasa at least for a while.
Best of luck,.

Whit
02-18-2014, 10:13 AM   #196
dave13
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Dave,
I was diagnosed at age 68 after 40 years of no diagnosis except maybe IBS. Good luck with your GI visit. One question you might be able to help answer is how does one know he or she is in remission? At some point I'd like to get off the Pentasa at least for a while.
Best of luck,.

Whit
My surgeon told me I was in remission because the resection removed the 'active' crohn's.He so cheerfully told me I will need more surgery in the future but for now I am in remission.My GI put me on Pentasa yesterday,but my insurance provider is giving me grief about it.They don't want to pay for it.My GI's office is gonna try and get that sorted out today.I have to check back with them tomorrow.Have you had any side affects from the Pentasa? My GI prescribed 500mg twice a day for me.He said it is usually taken four times per day but thought twice a day would be good for me.This is good news to me in case I have to scrape the $ together to pay for it out of pocket.One prescription would last me two months instead of one.I currently don't know how I would do that,so I hope my provider comes around.Well Whit,hears hoping you can get off it for awhile and I can get on it!

Hi Fozheart,how did your scan go?
02-18-2014, 11:25 AM   #197
fozheart
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Hi Dave and Whit!

Hmm... this drug Pentasa sounds promising! How long have you been on it, Whit? Do you feel that it is helping as much as prednisone? As far as radiation goes, I have had soo many tests over the years...CTs, Xrays, MRI's, etc., because I have quite a few other problems. (if you read My Story, it is ridiculous.) But, I am still standing, and that is a blessing! But oww.. I am feeling some little "waves" of pain right now, in the area of my previous resection. I am on Flagyl and Cipro, which has helped considerably in some ways, but the actual blockage site is unchanged. I am just going to have to stay on liquids as much as possible. My doctors have not seen my CT yet, but the radiologist ruled out a perforation. (Yay!) I need to get my colon dr. and Gi to look at it, and get on a steroid sparing agent. I have a hard time organizing all of my specialists together, and also paying $50 for each visit.

Dave- I sure hope your insurance will pay for the Pentasa! I did not realize that it was an expensive drug too! I am glad that your GI visit went well- I know you were nervous about not knowing what to expect. I am wondering what the cause of your initial blockage was? I hope that you can keep up with your shifts at work- I know that I couldn't do it!

Thank you both for your replies... it feels better having people that understand! I hope that both of you are feeling good today.
02-18-2014, 04:38 PM   #198
dave13
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Hi fozheart,I'm doing much better after my meltdown about the insurance.My surgeon and GI are both stumped about my blockage.I guess it was in an odd place as well,more near the top of the jujunum.I first thought it was in the duodenum.They both seem to agree I must have had it for quite some time.They think it was just very gradual until it reached that critical point.Where it was I was told it couldn't be seen with a scope from above or below.It happened so suddenly though.I feel I'll be able to get back to work o.k..I'm finally feeling better after the surgeries.I'm fortunate to have an understanding employer who has showed great patience.I've been out since November.It feels longer.
02-19-2014, 07:59 AM   #199
Whit
 
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Fozheart & Dave,
I have only been on Pentasa for three months and am just getting off Prednisone after my last hospital visit so I don't know for sure how it is working. My most recent blood test showed an elevated white blood count meaning I probably have a low grade infection in my lower intestinal tract which would account for my overwhelming fatigue. I'll see a new GI at University of VA Monday and see what he wants to do about it.
Pentasa is very expensive but I am on Medicare so that takes care of most of the expense. I am fixing to read your info Fozheart. It sounds like you have had a hard time.
Best to you both
Whit
02-21-2014, 08:47 PM   #200
fozheart
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Let us know how your appointment goes on Monday, Whit!
02-24-2014, 01:12 PM   #201
The Real MC
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The past two weeks I had have minor flare-ups of abdominal pain, nothing severe to put me in the hospital.

Last week I started rubbing my abdomen and felt something move. So as I narrowed the rubbing down to a smaller area I realized it was right over one of the resections of my intestines. As I kept rubbing I could feel more movement. Pain free since then.
02-24-2014, 09:57 PM   #202
dave13
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The past two weeks I had have minor flare-ups of abdominal pain, nothing severe to put me in the hospital.

Last week I started rubbing my abdomen and felt something move. So as I narrowed the rubbing down to a smaller area I realized it was right over one of the resections of my intestines. As I kept rubbing I could feel more movement. Pain free since then.
Wow,that's great! No doctors involved
02-25-2014, 06:25 AM   #203
Whit
 
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Went to a new GI at UVA medical center here in Charlottesville, VA and it was a great visit.
He wants to do a small study of my ileum using barium as a contrast to find out whether my obstructions are due to scarring which causes strictures or whether my obstructions are caused by inflammation. After this study we can decide whether I need surgery due to permanent scarring or stay on drugs to control the inflammation.
He took me off the Pentasa which he says is useless for treating inflammation in the small intestine and put me temporarily on entocort to treat any inflammation as he feels this an work better in the small intestine.
At least he has a plan whereas my previous GI just changed me from Asacol HD to Pentasa after my second obstruction without even examining me basically running the same drug program that didn't work the first time.

Whit
02-25-2014, 08:28 AM   #204
dave13
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this is good news,Whit! Great to hear your GI is being proactive.I'm still waiting to be approved for pentasa.I'll ask my GI what he thinks about entocort for my situation.Good to know your options.Glad your new GI isn't just a drug pusher and is actually doing something to help you.Keep us informed on how it goes!
02-25-2014, 11:15 PM   #205
fozheart
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Hi Whit and Dave,
So glad you are at a great facility, Whit! I was supposed to go to MCV to see a GI specialist, but can't afford it. I got my CT results back today. A lot of things on there, but the main thing my GP said make sense, in light of my non stop complaining of partial blockages and left sides pain, is that there is intussusception in the jejunum that is involved, and also lipoma polyp in the 3rd part of the duodenum. (Plus some other things I know nothing about.) We sent a letter to my colon surgeon. She wanted to start me on prednisone again along with methotrexate. I asked her about Entocort, and she just does not know enough about it. I was just surprised that the colon where my perforation and surgeries were, are ok...and that now there is a problem in the small intestine. I think you mentioned, Dave, that your problems were in the small intestine too. If I look at my stomach, I don't even know where the jejunum is! (I can look at a pix, but want to figure out in relationship from like my belly button, or ribcage, etc. Can you help? And, the doc explained what this intussusception of the intestine is...it kind of folds into itself. But how would that happen? Ohh... don't these things just make you tired?! I hope both of you are doing ok, on this Tuesday night!
Carol
02-26-2014, 06:37 AM   #206
dave13
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Hi Carol,
The way my surgeon explained it:There is no definitive point where the duodenum ends and the jejunum starts.If I understood him correctly.I assume he meant there is little physical difference.Small intestine looks like small intestine,even though they have different specific purposes.My pain was just above my belly button.The resection scar is from my belly button down.My pain was definitely at belly button level and a bit higher.It was an odd spot,I keep getting told.Towards the upper part of the jejunum.If you look down at your belly button,just above it is the area I'm talking about.
I looked up intussusception.Wow,I hope your docs can help you with that.It would be nice if crohn's stopped throwing new challenges at you!
I hope this helps.I do agree it can get tedious.We come to grips with one thing and crohn's throws something else at us.Keep the faith!
Dave
02-26-2014, 07:15 AM   #207
pink&green
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Been up all night with hubby pain on his left side where resection was I asked how long has he had the pain he said a few weeks

He was up all night running to the bathroom last I counted was 7x in 4 hours. We have an appointment with his CRS next Wednesday about the fistulas i will bring this up to her. I also told him to call his GI to see if he can give him something for the pain. He's not running fever so far I asked if he needs to go to ER he said it's not that bad.
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Hubby Diagnosed 12/15/90
1/3 colon removed
12 inches of small intestine removed
Appendix removed
2007 Hemorrhoids removed
2006 resection:
2005 first perianal fistula(removed 3x & lanced still keep coming back)
2014 partial nephrectomy (stage1)
Previously medications:Humira-anaphylaxis reaction, Remicade, Cimzia, Entyvio
Current medications:
B-12, 6mp, flagyl, prednisone,
Tramadol(fistula & joint pain)

LeeLee
02-26-2014, 08:30 AM   #208
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Ibuprofen or any NSAID might be the cause of the continuing issues. It is a big no no for Crohns and maybe IBS. Look into other pain meds or prednisone for inflammation management. Has Cimzia or Remicade been explored? It did heal up my fistula but became less effective after a few months. Your reaction maybe different.
02-26-2014, 09:36 AM   #209
pink&green
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Thanks carbuncle, he is currently on Remicade 4 years now, fistulas are still there he just called his GI spoke wit the nurse she said she would let the DR know and call him back.
02-26-2014, 10:34 AM   #210
fozheart
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Hi Carol,
The way my surgeon explained it:There is no definitive point where the duodenum ends and the jejunum starts.If I understood him correctly.I assume he meant there is little physical difference.Small intestine looks like small intestine,even though they have different specific purposes.My pain was just above my belly button.The resection scar is from my belly button down.My pain was definitely at belly button level and a bit higher.It was an odd spot,I keep getting told.Towards the upper part of the jejunum.If you look down at your belly button,just above it is the area I'm talking about.
I looked up intussusception.Wow,I hope your docs can help you with that.It would be nice if crohn's stopped throwing new challenges at you!
I hope this helps.I do agree it can get tedious.We come to grips with one thing and crohn's throws something else at us.Keep the faith!
Dave
Thank you for your quick response! Umm, yeah.. I pressed right where you said- right above the belly button, and OUCH! Maybe I will make a thread to see if anyone else has had this intussusception problem. Mostly, I wonder how it would have happened! Yes, we are are always ready for a new surprise in our journeys!
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