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12-11-2011, 07:22 PM   #1
hangingon
Member
 
Join Date: Nov 2011
today hurts :(

my joints hurt really bad today. tramadol doesn't even touch it. hot bath didn't work either. also having really painful D.... i am glad i have a GI appt on tuesday. i am so tired of pain.
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total colectomy in 1999, ileostomy for 3 months then reconnected, now i have a j-pouch. one fistula with a seton, and 2 more that just popped up..
currently taking 30mg of pred

dear Buddha, please bring me a pony and a plastic rocket.
12-11-2011, 08:11 PM   #2
suschex
Suzanne
 
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Join Date: Oct 2011
Location: Texas

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I'm so sorry you are having such a tough day today. I hope you are able to rest tonight and that Tuesday comes quickly for you! I know how hard the times are when the Tramadol doesn't even touch the pain and there is nothing else to take...big hugs!
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Suzanne
Crohn's Disease - October 10, 2011

Current Meds
Prednisone
Entyvio

Past Meds
Humira
Lialda
6-MP
Remicade
Etc.......
12-11-2011, 09:06 PM   #3
tiloah
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Join Date: Jun 2010
Location: Seattle, Washington

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I'm sorry you are hurting. I hope your GI visit is helpful.
12-12-2011, 09:33 PM   #4
SdN
Senior Member
 
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Join Date: Sep 2010
That really sucks I can relate to how you're feeling. Try to hang in there I know it's tough.
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Diagnosed with Crohn's September 2009

50mg Imuran - Jun 2010
increased to 150mg Imuran - Jan 2011
5mg/kg Remicade every 8 weeks - Mar 2011
stopped Imuran - Aug 2011
7.5mg/kg Remicade every 8 weeks - Nov 2011
Remicade is still working - Nov 2014
Colonoscopy shows no Crohn's! - Dec 2014

Current meds - 7.5mg/kg Remicade
01-28-2012, 03:53 AM   #5
hugodazzle
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Join Date: Jan 2012

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I can relate to how your feeling. I very often hurt all over. Are your legs really weak too? I work 25 hours a week but am finding it really difficult and am thinking of reducing my hours because I am good for nothing by the time I get home. My poor husband puts up with such a lot with me.
I know today is going to be one of those days, because I got up this morning feeling terrible. No energy, pain in pelvis and neck, just fealing dreadful.
02-05-2012, 12:02 AM   #6
Gue33
Senior Member
 
Join Date: May 2010
Location: Alberta
I hope your GI can help. By chance do they have you on something for Rheumatoid Arthritis?
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