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12-28-2011, 04:34 PM   #1
helzbelz
 
Join Date: Nov 2011
Location: buckinghamshire, United Kingdom

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leg pain

just had first dose of humira and also on pred just started with unusual pains in legs, not hugh pain but definately not right, also feeling of weakness,has anyone else experienced this while on either of these drugs
12-28-2011, 05:51 PM   #2
mickey
Senior Member
 
Join Date: Dec 2011
Location: Illinois
check side effects of med and see if that is it. Make sure you are up and moving around for at least a good 30 min walk each day to keep that blood circulating!
12-29-2011, 12:45 AM   #3
Gunny
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Join Date: May 2011
Location: Fort Gordon, Georgia

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Mikey is right, keep moving. I would get restless legs in the evening time when I stopped moving, but never really had any pain. It would resolve with a simple walk, or if bad enough, I would just do some squats and it would resolve. Hope yours is as simple a fix as mine was.
__________________
DX Crohn's 1996
2 resections, most recent: Feb 2011 w/positive margins at illeum and now w/new skip area with section of Jejunum affected
Questran
B12 1000 micrograms monthly
40mg/0.8ml Humira injections every 2 weeks
Acidophilus
Multivitamins
Metamucil
Iron suppliment
Nexium 40 mg daily
01-06-2012, 07:46 PM   #4
suschex
Suzanne
 
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Join Date: Oct 2011
Location: Texas

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I took my 8th injection on Tuesday and have had terribly sore quad muscles for the last two or three days. It feels like my quads used to feel after really long training runs (back before I was sick). Don't feel it when just sitting but walking and getting up and down hurst. I am up and moving all day, everyday so very little sitting. It is the same in both legs and the injection site was left leg only and is not sore or bruised at all.

Sorry I am no help as far as what it means but I thought I would at least let you know I have the same thing or at least something similar going on. I have not had this after the other injections.

I hope you are feeling better by now!
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Suzanne
Crohn's Disease - October 10, 2011

Current Meds
Prednisone
Entyvio

Past Meds
Humira
Lialda
6-MP
Remicade
Etc.......
01-07-2012, 05:41 AM   #5
cscnursegina
New Member
 
Join Date: Jul 2011
Location: Litchfield, Connecticut
I honestly feel like I have the body flu.. it goes away after 2 days... I tell my husband that I get my humira break when it's time for my shot. It's not fun... I get tired easy and I depressed. But like I said, it goes away as abruptly as it begins... my doctor has no idea why this happens.

-Regina

My good news just after the new year- i'm in remission!! What a way to start 2012!

Humira, asacol, B12 shots, Vita D, Aloe vera juice, Maalox by the gallon it seems, prevacid, those are JUST my IBD meds... I have a VP shunt in my brain for idiopathic intracrainal hypertension.... i'd be curious if anyone else has this too.....
01-07-2012, 07:30 AM   #6
suschex
Suzanne
 
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Join Date: Oct 2011
Location: Texas

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I honestly feel like I have the body flu.. it goes away after 2 days... I tell my husband that I get my humira break when it's time for my shot. It's not fun... I get tired easy and I depressed. But like I said, it goes away as abruptly as it begins... my doctor has no idea why this happens.

-Regina

My good news just after the new year- i'm in remission!! What a way to start 2012!

Humira, asacol, B12 shots, Vita D, Aloe vera juice, Maalox by the gallon it seems, prevacid, those are JUST my IBD meds... I have a VP shunt in my brain for idiopathic intracrainal hypertension.... i'd be curious if anyone else has this too.....
So happy for you that you are in remission!!!!!!!!!

I am curious about the remission. So, even though you are in remission, you still feel tired and not well with the disease as well as the depression? I guess I am just new to all of this but I thought if I could get into remission I would feel they way I did before I was ever sick.

Please don't take my questions as rude or doubting your experience at all, I am just trying to understand what my lie ahead of me on this new journey.

Again, HUGE CONGRATS on remission!!!!!!!!!!!!!!!!
01-07-2012, 04:03 PM   #7
cscnursegina
New Member
 
Join Date: Jul 2011
Location: Litchfield, Connecticut
Honestly i'm new to Crohn's myself... I was diagnosed in April of 2011. I have a very agressive doctor also I am very much into alternative therapies as well.
My depression stems from me becoming disabled and not being able to work. I worked very hard to get to where I was career wise. I was a heart and lung transplant nurse in one of the most intense ICU's in the world. No bragging here, but it was an amazing career. Being on a medication that knocks your immune system down there is no way I can work as a nurse, nor could I handle the stressful environment. Not all my challenges are from the IBD. I have had 3 brain surgeries in 2 1/2 years. A lot of my pain stems from headaches... if it's not my head.. it's my hinder-ender.

Hope that helps clarify things for you. Don't lose the faith!

-Regina
01-07-2012, 09:35 PM   #8
suschex
Suzanne
 
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Join Date: Oct 2011
Location: Texas

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Honestly i'm new to Crohn's myself... I was diagnosed in April of 2011. I have a very agressive doctor also I am very much into alternative therapies as well.
My depression stems from me becoming disabled and not being able to work. I worked very hard to get to where I was career wise. I was a heart and lung transplant nurse in one of the most intense ICU's in the world. No bragging here, but it was an amazing career. Being on a medication that knocks your immune system down there is no way I can work as a nurse, nor could I handle the stressful environment. Not all my challenges are from the IBD. I have had 3 brain surgeries in 2 1/2 years. A lot of my pain stems from headaches... if it's not my head.. it's my hinder-ender.

Hope that helps clarify things for you. Don't lose the faith!

-Regina
Wow, you have just really been through it with so many things...I am so sorry for all you have lost! I am glad you have reached remission with the CD at least! Thank you for sharing your story!
01-07-2012, 11:14 PM   #9
Lorimichelle85
Member
 
Join Date: Jan 2012
Location: Virginia, USA
Watch the leg pain!!!! I had pain in just one leg with minimal swelling and a little warm to the touch and had a large blood clot in it!!! They are not sure if it was my Crohns Disease or my pregnancy(at the time I was 8 months) or my past abdominal surgery! The hematologist tested me for everything in the book and I have no clotting disorders that he could find but he said it could be an absorption issues from folic acid or B12 due to the Crohns or small bowel resection. Then again it could be the meds too but now that I lived this I want everyone to be aware. Blood clots go to the lung and you have a Pulmonary Embolism (Sp?) Which can kill people..( Just want you to keep in mind dont mean to scare anyone )
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