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12-29-2011, 10:20 AM   #1
ChampsMom
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Join Date: Mar 2011
Location: North East Coast - USA

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Good News!

We had Alex' quarterly blood work and check up the other day and he's doing GREAT!

He's gained 11.1 lbs and grew an inch in the last quarter - which means he's gained over 26 lbs since March! I can't get over the change in him.

His inflammation markers were all NORMAL (haven't said that in a while!) the only issues is his iron and vitamin D levels are low - so he's on supplements again.

I'm SO excited for him. I'm going to try and post a picture of him from last year hockey season to this year - the difference is PHENOMENAL! When I got the picture for this year I almost fell over...

So grateful for all the wonderful information and loving support this group provides (even when I'm not responding to things - you do! Thanks!!)

Heart-filled thanks!!!
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Shell

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
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Priesthood Blessings
12-29-2011, 10:32 AM   #2
dodie74
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Location: west coast scotland., United Kingdom

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Fabulous news!! is a great feeling when all is well. Hope it continues for 2012. all the best. xxxx
12-29-2011, 01:43 PM   #3
Tesscorm
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Location: Ontario

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What great news!!! So happy for him and your family!
12-29-2011, 05:16 PM   #4
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Thanks for the fab update Shell! This is soooooo fab to hear!

I feel your excitement hun and it is so deserved! I am so happy for Alex...Onwards and Upwards!



Dusty. xxx
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Mum of 2 kids with Crohn's.
12-29-2011, 09:15 PM   #5
AZMOM
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Thrilled for you all!!!!!!!!!!

You made my day.

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
12-30-2011, 08:58 PM   #6
Dexky
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Location: Kentucky

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Thanks Shell! A great story to close out 2011!!
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
12-30-2011, 11:03 PM   #7
Brian'sMom
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Location: Kansas

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Fantastic news for Alex and your whole family!! Thanks for posting so we can all shout out a YA HOO!!
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
01-03-2012, 04:36 PM   #8
LilyRose
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Join Date: Aug 2011
That is just great!! It is lovely to read your good news, and that you share it with everyone. I think it gives everyone a boost.

Fantastic!!!
LilyRose
01-03-2012, 04:41 PM   #9
Johnnysmom
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Location: Cincinnati, Ohio

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So happy for you!! What great news and a great start to 2012!!!! It gives me hope to hear some good news. Prayer for many many more years of health!

Tiffany
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Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
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