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Crohn's Disease Forum » Your Story » World's oldest person with Crohn's Disease

01-02-2012, 08:21 PM   #1
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World's oldest person with Crohn's Disease

Hello, I am Anne. I've had Crohns Disease for over 33 years. I am now 88 years old. Does anyone know if anyone is older than me?

And before you ask, my grandson Dale is writing this for me. My fingers are too arthritic but its neat to find this website. I can use a mouse ok so will read posts but won't post unless he comes over.
01-02-2012, 09:48 PM   #2
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Join Date: Feb 2006
Location: Toronto, Ontario
Welcome to the forum Anne (and Dale)!

It is great to have you with us. We have members here of all ages (from the young to the young at heart ) and while I know we have had members who are senior citizens, I am not sure what the age is of the oldest member we have ever had.

I am happy for you to take ownership of that title until proven otherwise though .

If ever you and your grandson get the chance, it would be great to read a bit more about your story. Until then, we are happy to have you join us and hope you get a lot out of being a member of this community.
01-03-2012, 10:18 PM   #3
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Hi Anne and welcome! I must say, I don't think I have welcomed a member older than 88 years old. However, it is so wonderful to hear from such a veteran Crohnie. I hope your grandson will be over soon. I'd love to hear about your experiences. What treatment have you been on? Have you had any surgeries? What has helped/hasn't helped? You have obviously done something right, so let's hear it!

Once again, welcome to the forum! I look forward to hearing from you soon!

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
01-03-2012, 10:50 PM   #4
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Anne, I too am interested in hearing your story! Welcome!!!
01-03-2012, 11:33 PM   #5
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Hi Anne,

Welcome to the forum! I'm sure you must have some invaluable experiences to share! I look forward to reading them!

You'll find that this is a wonderful, friendly and supportive community! Feel free to ask any questions at any time!

01-04-2012, 12:31 AM   #6
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Hi Anne,

I really hope you post more of your story. It would be nice to hear from such an experienced crohnie. This is a great forum, lots of friendly people, here to support each other. I am really glad the two of you have found us.
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
01-04-2012, 11:30 AM   #7
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Hi Anne and welcome I second all of the above and would love to read your story.

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
01-04-2012, 01:18 PM   #8
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Join Date: Nov 2011
Location: Plymouth, United Kingdom
Hi Anne and welcome. I would also like to hear more of your story.

Welcome to Dale as well. xxxx
DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
01-04-2012, 01:26 PM   #9
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Hi Anne and welcome to the family.

33 years with CD?! Yikes! How are you coping now?

And how long have you had arthritis? Many of us here also have arthritis. Mostly Rheumatoid, I think. I have Psoriatic Arthritis, and have had it for 7 years now.

Please know that we are all here for you, even when you can't type your thoughts and concerns. Big hugs to you!

Dx'd with Psoriasis in 1993
Dx'd with Psoriatic Arthritis in 2004
Dx'd with Ulcerative Colitis on May 18, 2011

"Life isn't about waiting for the storm to pass... It's about learning to dance in the rain." ~Anon.
01-04-2012, 10:42 PM   #10
Miss Underestimated
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Location: Norfolk, Virginia
HI Anne! I'm 67. I got sick about 25 years ago but was only diagnosed 4 years ago. Tell your grandson you need Dragon speech software, then you can talk and your computer will type.
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
01-05-2012, 12:46 AM   #11
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Right... Dragon Naturally Speaking.
01-05-2012, 03:31 PM   #12
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∑ Stoma
Welcome Anne!!!!

So happy to have you here! I too would love to hear more of your story!
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
01-05-2012, 07:23 PM   #13
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Welcome, Anne and Dale! Thank you for joining our group.
Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
01-05-2012, 08:41 PM   #14
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Welcome Anne! I don't get around to welcoming new members like I should but you certainly peaked my interest. I'd love nothing more than my son someday, at your age, saying he's been dxed with crohns for 78 years!!

Actually, that's not true! I'd rather he say he was dxed 78 years ago but cured 75 years ago

I'd love to hear more!!
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club

Last edited by Dexky; 01-07-2012 at 06:56 AM.
01-06-2012, 08:28 AM   #15
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Welcome Anne and Dale.....I too have not seen/heard of anyone else on here with your wisdom/experience with age ..... Although I have been diagnosed myself for umm...about 33-34 years, I'm less than half your age still.....

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
12-25-2014, 05:23 AM   #16
Sick in Iowa
Join Date: Dec 2014
Just found this Forum. I have had Crohn's since 1980. I was told there were only about a dozen cases in the us then. One was a NFL player one was a Jr. Miss America. I am 50 now. It has been a long road. I was forced into a bowel resection at age of 25. Its been a long road since then. 35 years sick everyday.
10-08-2015, 06:48 PM   #17
Join Date: Oct 2015
My mom is now 91 years old and she has had Crohn's since she was 5 years old... Do the math and she has had Crohn's for 86 years. She is doing well.
11-15-2017, 01:49 PM   #18
Join Date: Nov 2017
Location: Indianapolis, Indiana
My mom is now 91 years old and she has had Crohn's since she was 5 years old... Do the math and she has had Crohn's for 86 years. She is doing well.
Wow your mom was diagnosed with Crohn's three years before the disease was discovered lol? Impressive... I was diagnosed at 7 years old when my mom found me curled up in my room laying in a puddle of blood I had vomited... This isn't a game or a joke man
11-15-2017, 02:24 PM   #19
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King Alfred the Great (849-899AD) suffered from what is strongly believed to be Crohn's disease. The condition existed long before it was described and named.

Crohns1952's mum could easily have had symptoms before Crohn formally identified it.

Last edited by nitty; 11-15-2017 at 06:33 PM. Reason: error in text
11-16-2017, 12:16 AM   #20
Join Date: Nov 2017
Location: Indianapolis, Indiana
Diagnosed and "believed to have" are two totally different things
11-16-2017, 04:39 AM   #21
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He doesnít actually say she was diagnosed when she was 5 years old, just that she has had Crohnís since she was 5 years old. Iíve had Crohnís since I was 16 years old, a perforated bowel when I was 22 years old and formally diagnosed when I was 26 years old. My disease started before diagnosis.
11-16-2017, 10:22 AM   #22
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Bearing in mind that your first message was responding to a post made over two years ago, I really can't be bothered to argue the semantics with you.

I don't usually comment negatively here when someone makes me cross, but this forum has a great reputation for being welcoming, friendly and supportive. Your first post was aggressive and mocking towards someone who had made a genuine and positive contribution to the forum.
Also, as eleanor_rigby pointed out, you appear to have misread the message that you were responding to.
I'm glad that, after two years, Crohn's1952 probably hasn't seen your reply.

Rant over. Life's too short.
11-16-2017, 11:03 AM   #23
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I was diagnosed with Crohns in 2010. In 2004 I had 6 ER visits in 3 months due to severe abdominal cramping. At that time I was misdiagnosed with severe IBS. For years before that I had diarrheah (sp?) from some "unknown" cause. 20 years before diagnosis I had boughts with bloody stools. I am sure that these were symptoms of Crohn's Disease that happened long before I was finally diagnosed.

I would say that we all have a time period where we had the disease before we were diagnosed with it. The disease happens before diagnosis.

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