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Crohn's Disease Forum » Treatment » Low Dose Naltrexone » A question About when starting LDN


01-02-2012, 08:44 PM   #1
kimmidwife
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A question About when starting LDN

Hi All,
I am going to speak with my daughter's doctor tomorrow about LDN. She is 14 yo with severe crohns . My question is she is on Entocort right now. She has been on it for about 3 weeks. Should we continue to wean her off. or should we leave her on a low dose when starting the LDN and then wean her off once it kicks in? She was put on the entocort to try to keep her crohns in check while starting remicade (which was a disaster. She had a severe allergic reaction to it). WHat do you all think from your experience with LDN?
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
01-02-2012, 11:48 PM   #2
samilou
 
Join Date: Jul 2011
Don't know about Entocort but our 11yr old daughter was on 40mg of pred when she started LDN over 13 weeks ago but did not get much benifit from LDN until she was at 10mg of pred.
01-03-2012, 12:24 PM   #3
kimmidwife
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THanks Samilou.
How many milligrams is your daughter taking?
01-03-2012, 04:13 PM   #4
samilou
 
Join Date: Jul 2011
She is on 3mg and we rotate 1nite transdermal cream and the other nite liquid and might go to liquid soon since her system is absorbing now. Started with the cream because she was in such bad shape.
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