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Crohn's Disease Forum » Surgery » Stoma Subforum » Goodbye colon!


 
01-03-2012, 02:31 PM   #1
2thFairy
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Goodbye colon!

Total colectomy next Tuesday with hopes for J-pouch. Just wanted to say thanks to this forum for helping me get mentally prepared for this. I feel like I am miles ahead going into this than I would be without you guys.

Thanks for being here!!!!

-Karen

edit/update: Surgery postponed for another week--January 17
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation

Last edited by 2thFairy; 01-05-2012 at 07:35 PM.
01-03-2012, 03:15 PM   #2
Terriernut
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Karen! Best of luck with the op! Keep us updated please.

Fingers crossed this will be your cure! Oh I sure hope so!
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
01-03-2012, 03:22 PM   #3
Nyx
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Good luck!! Hope it all goes well for you!
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

01-03-2012, 03:34 PM   #4
Angrybird
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Good luck!! Hope all goes well and this gets things sorted for you. Keep us updated
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
01-03-2012, 03:36 PM   #5
moogie
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Best of luck to you!!!

Stay strong
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I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Remicaide
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day


3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!
01-04-2012, 01:05 PM   #6
shazz
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Good Luck.
Fingers crossed for you. xxxxxxx
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DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
01-04-2012, 01:08 PM   #7
DustyKat
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Sending you loads and loads of love and luck for a very successful surgery and a fab and speedy recovery!...

Dusty. xxx
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Mum of 2 kids with Crohn's.
01-04-2012, 01:25 PM   #8
lari
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I hope all goes well with you. My next surgery will be a colonectomy too. I don't know if I spelled it right. But they are going to take my whole colon out. I haven't decided when I want to do this yet. I keep putting it off.... please keep us updated on your recovery. I wish you the best
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I can get cranky, impatient, and stupid when i dont feel good. But if you cant handle me at my worst.... then you dont deserve me at my best. "
n0085: crohns 2001
Colostomy 2003 - hernia surgeries- 07, 08, and 2010.
Current parastomal herniia and hernia leftside
blood transfusions 2012 -- entercort 20mg - 7mos.
01-04-2012, 01:52 PM   #9
Gav
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Karen,

All the best with this op. Good luck on your journey. I will have my fingers crossed it goes swimmingly and that you recovery is steady and quick!

Gav
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UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
Wish You Were Here
01-04-2012, 02:14 PM   #10
glum chump
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Good luck, Karen! I'm sure your surgery will be absolutely successful, and hope you make a quick recovery. Looking forward to hearing from you about how it all goes...

Wishing you great health,

Kismet
01-04-2012, 03:07 PM   #11
Emily
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Best of luck! May the surgery be a success, and your recovery be as quick and smooth as possible!
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Age 24
  • Diagnosed with Crohn's at age 7
  • Partial colectomy at age 18
  • Total colectomy with ileostomy at age 23
infliximab & azathioprine
01-04-2012, 06:05 PM   #12
seaofdreams
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I hope everything goes well! You sound so amazingly calm and strong, I'm sure you'll get through it with no troubles.
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~ Nicci

"Never feel guilty for being sick and try to stop comparing yourself and your life to others. You're doing the best you can under the circumstances you have and you're doing great."

Diagnosed with Crohn's in August 2009
Medication: 20mg Methotrexate injection weekly
Supplements: Folic Acid|Vitamin D|B12|Iron Complex|Magnesium Complex|Calcium|
01-04-2012, 06:19 PM   #13
Brian'sMom
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Karen,
My son's aunt is contemplating this surgery. If you wouldn't mind keeping us posted on how the surgery goes for you I'd be most appreciative. She asks my opinion, but I don't know anything about this. Also my son has crohn's while she has UC. She goes next month to talk to her doctor about having the surgery. She's 36 yrs old, but was diagnosed with UC when she was 20. She's never been in total remission and she's tiring of the whole thing and although she was against having her colon removed initially, at Christmas she was sounding like she was onboard to 'get on with it', as she put it.
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
01-05-2012, 11:34 AM   #14
Misty-Eyed
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Good luck. I love life without my colon!! You'll do great!
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
01-05-2012, 01:03 PM   #15
2thFairy
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Well, surgery pushed back a week. New surgery date of January 17.
I just want this over with at this point.
01-05-2012, 01:11 PM   #16
Terriernut
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Oh dear! That just popped your bubble! I can feel it over here! (empath) The shits! Why did they do that!!!???
01-05-2012, 01:54 PM   #17
2thFairy
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Yep. Ah, well.... everything has a reason, I 'spose.
01-05-2012, 02:04 PM   #18
Terriernut
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Well, there must be a good reason, and lets hope it is because it wouldve turned out worse for you on that date.

You will think I'm being silly...but let me tell you a secret. I was due for my emergency op 21st Dec 2010. Been starved for days by then. I didnt want it that day. It was the equinox, there was all sorts going on, a lunar eclipse, you name it! I said 'self...this ISNT a good time for surgery'. Well, it didnt happen that day, it happend the following evening, which actually was better. Theres always a reason. Anyway, god rest her, the girl who got in on my spot...didnt make it thru surgery.
01-05-2012, 02:29 PM   #19
2thFairy
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Wowsers...now that's a story. Sure glad things worked out the way you needed them to.
01-05-2012, 02:33 PM   #20
Terriernut
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Toothy (thats your nickname in my head...sorry), wow am I EVER glad it worked out too!!!

Theres always a good reason for things though isnt there? There must be a good reason for yours to be delayed. I'd like to think someone was watching out for me upstairs.
01-05-2012, 04:39 PM   #21
Mr Bedfordshire
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best of luck!

i had emergency j-pouch formation and in the end had 3 ops to get it sorted with temp bag. now all reversed.

keep us all posted.
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Mr Bedfordshire (Dunstable)

Started with Colitis 2003 after salmonella?!..
J-Pouch from 2005
Crohns Diagnosed 2010
Current meds:
**Started remicade-October 2011**
2g Pentasa Granules
Codeine (the ONLY thing that stops me going a lot!!)
esomeprazole, omega 3 and D Vitamins.
01-05-2012, 06:29 PM   #22
DustyKat
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Anyway, god rest her, the girl who got in on my spot...didnt make it thru surgery.
Holy cow, that sends shivers down ya spine! brrrrrrrrrrr.

I sure hope that things work out for you this time Fairy. Waiting is the pits!

Dusty.
01-05-2012, 07:21 PM   #23
Snap
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Hello! Just sending you lots of healing wishes and hope and strength and all that! Go slow when you get home from the hospital. Hope your nurses are awesome to you--and we are all thinking of you in hopes of a speedy and uneventful recovery! Dana
01-05-2012, 08:06 PM   #24
ameslouise
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Hi Karen - Good luck on the 17th! The waiting is the hardest part!

Are you having the colon removed and the j-pouch created in the same surgery? Or will it be two steps? It's a big deal, either way. I had mine done in two steps because my colon ruptured.

It was almost ten years ago, but feel free to ask any questions - I'll see if I can remember any details!!

- Amy
01-05-2012, 08:12 PM   #25
2thFairy
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The plan is for a 2-step surgery, but due to prior abdominal surgeries and a belly full of adhesions (small bowel stuck to itself) J-pouch may not be possible at all. Won't know until surgery.

I will probably wear you out with questions once this all gets rolling. Thanks!
01-07-2012, 02:10 PM   #26
Terriernut
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Karen, ya'll ready??? I'd like to see a big TOOTHY grin from you after you're all healed up and ready to take on the world!
01-07-2012, 03:15 PM   #27
2thFairy
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I'm certainly working on it. I've been wearing a bag since yesterday so I can start getting used to it. The ostomy nurse gave me different kinds to try so I can see if I have an allergic reaction to the adhesive.
01-07-2012, 03:25 PM   #28
Terriernut
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Thats a great idea! Hows it going so far then...no reactions?
01-07-2012, 03:38 PM   #29
2thFairy
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So far so good!

Wet bag after a shower kinda sucks.
01-07-2012, 03:45 PM   #30
Terriernut
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Most definetely!! Thats why most of us like two pieces so we can change after showering! I HATE a wet bag.
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