Hello everyone, Im 23 years old and I was diagnosed with Crohns disease on the 19th of November there. I've been going through hell and feel so down over the last months or so an feel the need to come on here and share my feelings with fellow sufferers. My partner/family and friends have been supportive but they dont really understand what I go through and at times I feel so isolated. 
Basically in July last year I found myself getting severe stomach cramps and dioreaha, feeling so tired and exhausted, so I went to the GP was put on stomach tablets, didnt work so went a month later for stool and blood tests. Results came back as bad news, very low Iron count and blood in my stool was refered to the hosptial, had to wait 2 months to see the doctor and battled on with no help or medication. Seen the consultant and had to have a colonoscopy (oh god I wouldnt wish klen prep on my worst enemy) and a barium xray test, so low behold I had crohns disease and my small bowel is an awful state on the xray.
In that time I have lost 2 stone and lost my appetite, look pale, everytime I drank alcholol I vottimitted, can I just say Im not a heavy drinker and dont smoke but I do enjoy going out the odd time, so when it effeced this I was devastated, I've had to drop out from playing for my football team, but I started my course of entocort. They definelty calmed the sypmtons down a bit but I went back in mid December for a check up and the Doc decided my bowel was in a bad state and he was worried the fact I hadnt put any weight on.
So now Im on prednisone and azathioprine, multivitamins, and calorie milshakes.
I felt great for 2 weeks there over Christmas (which is all I could of asked for), no cramps and seemingly regular toilet visits and more solid stool. Was able to go out and drink without being sick, But I've been reducing the prednisone every week by a tablet Im down to 5 a day now, but over the last 2 days my stomach has been feeling tense and I've been getting slight stomach cramps, my stool was a bit looser today, Im worrying because Im reducing my prednisone the symptons are slowly coming back?
I'l be devastated if this is the case because for 2 weeks I was the happiest man in the world and I felt like I've got my life back but I've felt so down these last 2 days!
Im due for a check up again on the 16th of this month.
Sorry for rambling on a bit, I just needed to get this off my chest as the last 6 months of my life have been pure hell. Im sure there is people on here who have experienced the same sort of thing and Im sure there is people who have it far worse. Im just so desperate to get my life back on track and Im praying I can come off these horrible tablets Im on and the symptons go into remission. But Im a bit worried they wont work or maybe Im worrying to early!
I took my health for granted and never thought something like this would ever happen to me! I have the utmost respect for people who have battled this basically all their lifes. People try and support me which Im grateful for but they think they understand but they dont truly know what it feels like. Im grateful to be alive as there is people far worse off but every day I live with resentment and fear. Why did this happen to me? I live a healthy and active life! I find myself filled with resentment and bitterness when I should be grateful as there is people far worse but I cant help it. All the hospital check ups, the horrible medicines, the blood tests, the pain! I wish it would all just go away!
Thanks so much for taking the time to read my post, Im sorry I just needed to get all that off my chest, any comments are greatly appreciated.
Hope & Faith & Courage & Strength.
Basically in July last year I found myself getting severe stomach cramps and dioreaha, feeling so tired and exhausted, so I went to the GP was put on stomach tablets, didnt work so went a month later for stool and blood tests. Results came back as bad news, very low Iron count and blood in my stool was refered to the hosptial, had to wait 2 months to see the doctor and battled on with no help or medication. Seen the consultant and had to have a colonoscopy (oh god I wouldnt wish klen prep on my worst enemy) and a barium xray test, so low behold I had crohns disease and my small bowel is an awful state on the xray.
In that time I have lost 2 stone and lost my appetite, look pale, everytime I drank alcholol I vottimitted, can I just say Im not a heavy drinker and dont smoke but I do enjoy going out the odd time, so when it effeced this I was devastated, I've had to drop out from playing for my football team, but I started my course of entocort. They definelty calmed the sypmtons down a bit but I went back in mid December for a check up and the Doc decided my bowel was in a bad state and he was worried the fact I hadnt put any weight on.
So now Im on prednisone and azathioprine, multivitamins, and calorie milshakes.
I felt great for 2 weeks there over Christmas (which is all I could of asked for), no cramps and seemingly regular toilet visits and more solid stool. Was able to go out and drink without being sick, But I've been reducing the prednisone every week by a tablet Im down to 5 a day now, but over the last 2 days my stomach has been feeling tense and I've been getting slight stomach cramps, my stool was a bit looser today, Im worrying because Im reducing my prednisone the symptons are slowly coming back?
I'l be devastated if this is the case because for 2 weeks I was the happiest man in the world and I felt like I've got my life back but I've felt so down these last 2 days!
Im due for a check up again on the 16th of this month.
Sorry for rambling on a bit, I just needed to get this off my chest as the last 6 months of my life have been pure hell. Im sure there is people on here who have experienced the same sort of thing and Im sure there is people who have it far worse. Im just so desperate to get my life back on track and Im praying I can come off these horrible tablets Im on and the symptons go into remission. But Im a bit worried they wont work or maybe Im worrying to early!
I took my health for granted and never thought something like this would ever happen to me! I have the utmost respect for people who have battled this basically all their lifes. People try and support me which Im grateful for but they think they understand but they dont truly know what it feels like. Im grateful to be alive as there is people far worse off but every day I live with resentment and fear. Why did this happen to me? I live a healthy and active life! I find myself filled with resentment and bitterness when I should be grateful as there is people far worse but I cant help it. All the hospital check ups, the horrible medicines, the blood tests, the pain! I wish it would all just go away!
Thanks so much for taking the time to read my post, Im sorry I just needed to get all that off my chest, any comments are greatly appreciated.
Hope & Faith & Courage & Strength.
