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01-06-2012, 05:50 PM   #1
JudithC
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Join Date: May 2011
Location: Maine

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Dose #1

Ok...Finally did it. Had my first dose of Remicade this morning and so far, so good. I had to ask for the pre-meds though. Now we'll just wait and see I guess.
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Judy

now:
Remicade
Vitamin D
Vitamin C


tried:
Entocort
Pentasa
Prednisone
01-06-2012, 06:39 PM   #2
KayleighMeek
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Location: Southampton, United Kingdom

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Fingers crossed everything goes ok for you. Remicade was the best drug I have been on I wish I could go back to it. I hope it gives you long term relief x
01-06-2012, 07:02 PM   #3
SarahAnne
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Location: Panama City, Florida

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Here's hoping it works wonders!
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Dx'd Crohn's April 1996
Bowel Resection w/appendectomy Oct 1996
Gallbladder removed Nov 2005
4 procedures in March/April 2010 to remove a kidney stone
Dx'd Dyshidrotic Eczema April 2011
Dx'd Pancreatitis July 2011
2nd bowel resection 10/12/11 - I have 130cm of small intestines left!
Dx'd Chronic gastritis April 2012

Currently taking:
Cholestyramine powder 1-2x daily
Remicade 5mg/kg every 8 wks
Vitamin D3, B12
01-06-2012, 08:15 PM   #4
Lisa
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Location: New York

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Hope it works well for you!.....and, when I started Remicade, I did NOT get any pre meds - in fact went @5 years without......
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
01-09-2012, 09:08 AM   #5
JudithC
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Location: Maine

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So, stools are better, but joints are really aching, and what's going on with my feet? Soles are very tingly. Tummy pains have lessened quite a bit though.
01-09-2012, 09:11 AM   #6
moogie
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Location: Laval, Quebec
Good luck,

And sometimes we get symptoms because we expect them.

Relax and let us know how it goes.
__________________
I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Remicaide
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day


3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!
01-11-2012, 08:20 AM   #7
JudithC
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Location: Maine

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Thank you for reminding me of that Moogie. Of course you're right.
01-19-2012, 04:44 PM   #8
moogie
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Seems like it's going well for you :-)

How are you feeling?
01-19-2012, 05:37 PM   #9
JudithC
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Location: Maine

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Thanks for asking. I think I'm feeling better. My stools are better, coming less often and more formed. Tummy feels less inflamed and the tummy pain is lessening. Dr. is pleased but is watching me closely regarding the flu like side effect symptoms. These may not come up again, if so, we'll figure out another way to deal with them.

I'm very excited, and feeling positive about this at this time.
01-23-2012, 12:49 PM   #10
moogie
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Very good indeed.

It's all normal stuff to me....

Keep up the moral. And enjoy the new feeling of well being
02-10-2012, 05:27 PM   #11
JudithC
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Location: Maine

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Have done my 3 loading doses and feeling much better. Lost 7 pounds (and that's a good thing for me). tummy is no longer distended, cramping is almost all gone, stools are as normal as I've seen in years. The achiness in the body is something we are watching and now that I'm off for 6 weeks we'll see if that gets to ease off more and more. In the meantime, I'm taking a deep breath. Ahhhhh.
02-10-2012, 07:18 PM   #12
SarahAnne
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That's fantastic Judith! It's worked wonders for me, hope it continues to do the same for you!!
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