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Crohn's Disease Forum » General IBD Discussion » Traveling with Crohn's


 
11-29-2013, 10:47 PM   #91
Careyearl
 
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Take some Lysol wipes and clean the seat and all around it. I did that as well as hotel rooms etc to make sure it was clean. You have to keep on living but use some strategies to make it a bit easier.
11-30-2013, 07:12 AM   #92
LodgeLady
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I have a pretty basic question. My 13 year old just started Remicade about a month ago. What have you done to avoid all the germs on airplanes? I'm half tempted to have him wear a mask the whole time, but I know he'd roll his eyes at that one. I'm a bit of a germaphobe myself. Any suggestions?
I wear a N95 mask every time I fly on an airplane. I have never gotten sick once I started wearing it. Before that I always seemed to catch something a day or two after flying. People look at you a little funny but I don't care. I tell the person I'm sitting next to that I'm not sick but that I don't want to get sick. Once I say that it seems to break the ice and I have no problems with others flying.
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11-30-2013, 09:49 AM   #93
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I always use lysol wipes on the arm rest, head rest, window (if I'm in window seat) and most importantly, the tray. I read a study once about the dirtiest place on a plane and it was the tray, and the back seat pocket. I also have a dear friend who is a flight attendant and she tells me all the disgusting things people do on the pull out tray. Ewwwww. I fly quite a bit and have never gotten sick specifically from air travel. Just make sure to wash hands more frequently and he'll be good to go.
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12-06-2013, 05:01 AM   #94
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I travel quite regularly both professionally and personally. The only thing I would add on the medicines is when I'm on immunosuppressants I get my doctor to give me a prescription for a Zpack, in case I pick up a respiratory bug. I always do a little research on the public restroom situation before I head out. It gives you an opportunity to think through strategies before you leave and prepare. I just returned from China and that research was a life saver!
12-08-2013, 05:46 AM   #95
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hi
12-11-2013, 07:21 AM   #96
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I went to China for what was meant to be a year, ended up being 16 months. I did pretty much everything on that list, apart from the simple foods part, well, meat buns are kind of simple, but highly seasoned noodles/meat/fish/everything else, maybe not so simple.
I had 3 months worth of Azathioprine with me, and paracetamol, but I could get more if I needed, dirt cheap there, had rehydration capsules and everything. I even had insurance in case. I was meant to somehow get a repeat prescription of Azathioprine while I was over there, but it seemed like alot of trouble... and I didn't want to bother my boss, at the risk of being sent home because I was 'sick'. But as it turned out. I didn't need it. I went 12 months pretty much without meds. The only time I visited the doctor was when I had a really bad cough/cold and in China they just stick an IV in you for a few hours over a few days and you've fixed. For cold's and simple things I mean... but otherwise apart from the occasional niggle from things I ate(mostly when I ate western food I might add), I was fine. I stopped drinking alot of fizzy drinks over there too, and drinks that were super cold. Because pretty much everyone I spoke to said warm/hot water is better for you. It's why everyone where I was carries these flasks around with them... for tea and hot drinks... not sure I believed it while I was over there though lol. Still. 12 months with no drugs and eating what I liked. It's bizarre and my doctors can't explain it... specially after coming back to the UK it's pretty much all gone to hell.
12-11-2013, 02:49 PM   #97
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Your thread kinda supports the thought that over processed foods in western diets aren,t great for you!
12-11-2013, 03:21 PM   #98
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Indeed it does. But I ate what I assumed was processed Chinese food while I was there too. These delicious hot dogs which I used when I cooked my own stuff hehe. And there was alot of street food which can't have been good for you, hot dogs, fried pancake roll things, processed fish and pork and meat balls, more deep fried stuff hehe. But I was eating alot of tofu and rice cakes and fish and all the other meats. With various kinds of noodles. And rice and soups. But in comparison, I only seemed to get niggles of any kind from McDonalds, and pizza... KFC popcorn chicken was ok, and I think the chicken burgers were too. But the cheaper place further from the town center had nicer burgers anyways. If I was hankering for western food hehe. 5-6yuan(50p-60p) for a beef burger or chicken burger. Small. but delicious.
01-11-2014, 08:52 AM   #99
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Be careful with anti-malarial meds!

I started working in Africa (Angola) back in August. I was prescribed Malarone as a prophylactic anti-malarial. On my second hitch in October I had a terrible flare that I attribute to the malarone. It was this flare that actually led to the colonoscopy and crohn's diagnosis. After talking to coworkers, many healthy folks have had issues with malarone. I am no longer taking it or any anti-malarial.

Sauerkraut seems to really help my digestive system. I actually made some while in Africa in December. I go back soon, I am going to pack some homemade sauerkraut in a cooler in my check bag. Otherwise, I bring lots of food with me (isopure protien shake, lots of nuts, beef jerky, and quest low carb protien bars).
01-17-2014, 09:29 PM   #100
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Hi there.

I just got back from a trip back and forth from Sydney-USA ... 2 weeks after surgery (had no way of changing my ticket).

Other people have mentioned a number of things. Two things that helped me immensely on my return trip: Personal fan (lots of travel stores sell small fans), and an inflatable pillow for comfort.

I need decent air circulation because of my constant heat/hot flares.

Take care.
01-18-2014, 04:09 PM   #101
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Hi there.



I need decent air circulation because of my constant heat/hot flares.



Take care.

Mr Bleu. Is hot flares a symptom of crohns? I always feel hot and even get clammy hands and feet and I've had crohns since 2007!


Crohns Disease-Diagnosed 2007
03-08-2014, 04:47 PM   #102
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Traveling is scary,I always worry about getting sick.Especially on a cruise . I have thoughts of what if I get an obstruction? Which I've never had, but these are things you think about when traveling.
05-20-2014, 07:10 AM   #103
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Hi all,
I'm flying to Paris in a week and am somewhat concerned since my Crohn's is very active and seems to often get worse when I travel. Not on the trip itself, but when I get home for some reason. Does this happen to anybody else? I'm really curious if other people also have a belated reaction to travel.

My situation can fluctuate drastically from one week to another, so I'm taking cyprol and flagyl just in case along with a few cans of modulen and will hope for the best.

I found a great smart phone app called toilets in Paris which directs you to the nearest public toilet (brilliant!!!). I assume there are similar apps for other Euro. cities.

Last time I traveled was right after I got a P.E.G (gastro stoma) and it must have been visible through my shirt since a security guard insisted on seeing what it was. After that I switched to looser clothing not to be hassled about it.
05-21-2014, 09:55 PM   #104
Mehita
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Does anyone know how medical insurance works when you travel internationally? We have insurance here in the US but will be going to Australia for two weeks. If my son were to get sick in Aus and need medical care... how does that all work out with US insurance?

(I haven't had time to call the insurance company directly yet.)
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05-22-2014, 08:14 PM   #105
DustyKat
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You would need to take out travel insurance Mehita, plus there is no reciprocal health agreement between our countries.

Sarah is going to the US next month and has taken out travel insurance. It was well over double the normal travel insurance costs but that was because they covered for her Crohn’s.
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05-23-2014, 01:19 AM   #106
glory_h
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Hi all,
I'm flying to Paris in a week and am somewhat concerned since my Crohn's is very active and seems to often get worse when I travel. Not on the trip itself, but when I get home for some reason. Does this happen to anybody else? I'm really curious if other people also have a belated reaction to travel.
Yes, I notice when I travel I am generally okay, especially during the first few days of the trip. I tend to get constipated if anything (stress?) but no problems with D. It's when I get home that I play catch up and have about a week of troubles.
05-29-2014, 05:12 PM   #107
Bonzo 4
 
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I know what you mean I was just in New Orleans over the weekend no problem came home, and bam I've had the runs real bad. But when I go to Europe I'm ok what the hell psychosomatic !'


06-17-2014, 06:13 PM   #108
LodgeLady
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I am in a traveling funk. I really want to vacation this summer. I don't see my new specialist for 2 weeks. I have no idea if I'll be trying any new meds or getting further testing. I am hoping to at least wean from this Entocort but don't know how that will go. I really want to get away but I'm too afraid to plan anything.


07-09-2014, 10:40 PM   #109
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I recently went on a 2 month stint overseas to Italy, Greece, UK and USA (finally, after being far too scared to travel for so long). Apart from a couple of bad days, mostly due to sheer exhaustion, I was totally fine! I took a whole range of medications with me, including Antibiotics, Oxycodone, Ondansetron and Prednisolone as well as over the counter meds such as Imodium and Buscopan, and I only needed a couple of Imodium and a couple of Oxycodone's during my entire trip!! Nothing I ate or drank bothered me in the slightest, and now I'm so annoyed at myself for being so worried for so long! I did however take out a great travel insurance policy with Southern Cross Travel Insurance, which covered my Crohn's and gave me piece of mind. I'd recommend anyone from Australia using them! They were so much cheaper (1/5 the premium!) than CoverMore (the only other insurer that would cover Crohn's Disease).

I really want to help give other IBD sufferers some comfort and confidence to travel. I feel like we work ourselves up so much sometimes, that we miss out on some really great experiences. Just because one person had a bad experience, doesn't always mean you will - I had a sensational time!! Nothing could stop me.
09-06-2014, 03:42 PM   #110
EvieBaby
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I went to Spain to stay with my mum and while I went prepared with everything under the sun I only needed some immodium. I've never felt as good as I did while I was there. I could eat most things and one day actually passed a semi solid stool which is unheard of for me. I should move there!
09-06-2014, 03:54 PM   #111
Bonzo 4
 
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Evie that's awesome!!! I always get worried when I travel abroad or anywhere . Good for you!!!


09-06-2014, 03:57 PM   #112
EvieBaby
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I was so worried because we spend a lot of time out doing things and not knowing where a toilet was was terrifying but I was so surprised! Things are pretty rubbish now but that break of feeling relaxed and generally well was one I haven't felt in so long!
09-06-2014, 03:58 PM   #113
Bonzo 4
 
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Sometimes for me if I don't think about it too much I'm fine. I believe a lot of it is psychosomatic .


09-06-2014, 04:01 PM   #114
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I don't take any meds at all, I don't believe in them, I don't have it as bad as a lot of people here. I don't like the side effects that come with them and the guarantee that it will do more harm than good. I eat drink anything and everything .


09-06-2014, 04:16 PM   #115
EvieBaby
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I think that's a really good attitude to have. I'm considering asking my doctor to take me off the humira injections. I don't feel like they're of any benefit and I'm not taking anything else. I agree though that a lot of it is in my head. The thought of having a problem is generally going to cause one!
09-06-2014, 04:20 PM   #116
Bonzo 4
 
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Trust me I'm going on a meditaranian cruise and I always fear I will get sick, and nothing happens .


09-06-2014, 04:21 PM   #117
Bonzo 4
 
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How long have you had crohns?


09-06-2014, 04:24 PM   #118
EvieBaby
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I was diagnosed in 2005 but its just slowly been getting worse. I had a Seton done on Thursday and that's my first surgical intervention. Its made me feel very low to be honest but I'm just having a bad day today!
09-06-2014, 04:24 PM   #119
Bonzo 4
 
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Seton ?


09-06-2014, 04:25 PM   #120
EvieBaby
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Its like a stitch thing. I had an anal fistula so this is apparently to help it drain and heal. Its not very comfortable though! How long have you had yours?
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