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08-16-2015, 04:41 PM   #151
buttER
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I'm going to Japan as well, next spring (going to see the cherry blossoms!). I'm a bit nervous but mainly excited. I just hope my stomach behaves itself. I've been trying to learn phrases that will be helpful - "toire wa doko desu ka?" means "where is the toilet/bathroom?"
Hi Cat-a-Tonic
That is great, I had a huge smile on my face for the whole Japan trip......except.....I did feel quite ill with the food. I never worked out what it was, perhaps the soya beans or soya sauce. That spoilt a few evenings. The little rice traingles with sour plum inside however I thought were heavenly. And some of the "sweets" also made from rice flour.
I'm sure you will, but take some trusted items with you. Also beware, I thought I was getting a lovely chilled carton of apple juice and it turned out to be chilled green tea. Also nice, but not when you are expecting apple juice.
Anyway, once you go into the japanese toilet you might never want to come out again, they are fantastic!!!!!!!! Once you know which button(s) to press for optimum comfort!!!!
Etiquette: if there are slippers in the toilet it means you have to take off your shoes outside and wear those slippers in the toilet.
I am jealous, please enjoy your travels for me too.

ps sorry if someone has already written similar stuff, I just saw Japan and my memories got triggered.
08-16-2015, 04:42 PM   #152
buttER
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Just to let you know, I had a pillcam (capsule endoscopy) on thursday and took a flight on friday. The capsule set off the detection device and I'm glad I kept the hospital papers with me (and the phone number of the specialist nurse) to prove that my story was true.
08-17-2015, 09:20 AM   #153
Cat-a-Tonic
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Thanks, King of Orange! I do pretty well with things like soy sauce and other soy products, so that should be fine for me. Rice and fish and seaweed and sushi and miso and noodles are also all fine for me, so I should have a lot of food options. I don't do well with caffeine (migraine trigger) so I will avoid the green tea that look like juice, and I have to avoid other food triggers such as coconut and sesame seeds. Those rice triangles with plum sound delicious. Thanks for the info! And yeah, I'm excited, I've heard that the toilets are amazing. I'm not going until April, but I will definitely post some photos after my trip.
12-14-2015, 03:46 AM   #154
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It's awesome reading all your tips on here and hearing your stories about you successes. I am taking a gapyear next year, mainly in Australia which should be fairly safe, but starting in Asia (China, Japan, Vietnam, Cambodia) which I am a little nervous about.

I have started writing blog posts about things I am doing to prepare for the trip, but any other advise is always welcome!

I cannot post the link as I need more replies. but I will do later on if people are interested.
12-14-2015, 04:51 AM   #155
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Hello all. The wanderer returns!! Got my annual birthday notification and I'm home for Christmas so helllloooooooo.. I've missed you all. Sorry for being MIA and neglecting my monitor duties. Dodgy mobile Internet means I don't get on much. But I'm hoping to get fast Internet when I go back in Jan. In Glasgow with DS in his baltic student flat
🐧❄⛄
Still very happy and well in Myanmar. I've transferred to a post at Yangon University and am teaching English Lit so am in my element. Have my own flat now too and access to supermarkets so mainly cook for myself so tummy is mostly happy. Myanmar food is not very palatable unfortunately and swimming in oil so with the malabsorption issue just goes straight through. In my last posting we were offered a lot of food. It's very rude here to refuse any kind of gift so my poor housemate had to eat it all.
For George above - hi ☺ - and other travellers in Asia - you should be fine as there is such a variety of food unless you are in remoter areas. I love Thai food and just come back from a holiday in Indonesia where the food was fab. Asian beers are very good apparently but I can't do beer. I stick to bottled water and red wine if I can find it! I don't eat street food - just not worth the risk.
Look forward to hearing about your adventures George - let me know if you are coming to Burma.
Hope you are all well and if not, hang in there and hope you are getting the help and support you need.
Having just passed my 3 year remission mark, I am celebrating the support, advice, hugs, tears and humour you all shared with me when I was first ill. Now looking forward too 🎅👪🍷🌲🍗🎄🎁
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12-14-2015, 01:31 PM   #156
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Welcome back. Glad you have green in remission so long.😊
12-19-2015, 07:46 AM   #157
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Thanks Grumbletum!

I booked my flights on Wednesday and I handed my notice in yesterday!! so after christmas I have 6 weeks at work, then off on my adventure!

Thanks for the advice, I plan on staying in places a little longer than just a few days so I can rest and hopefully cook my own food! I think that will be the main two things!

I will keep you all updated with how things get on when I'm out there, hopefully I can convince a few other people who feel as limited as I sometimes can, to get out there and explore.

Burma is on the list, but its towards the end of my Asia part, so if i get ill I will be skipping it and going back after a few months in Australia! so I might send you a message closer to the time, any tips of where to go would be greatly received!
12-20-2015, 04:55 AM   #158
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Absolutely! Have a great Christmas a d look forward to hearing about your experiences ☺
12-20-2015, 09:35 AM   #159
earthshine
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Hope your journey is a wonderful one. Happy you are able to do this.
01-17-2016, 09:48 AM   #160
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Incase anyone is interested, here's what I am doing to prepare for my trip. If anyone has any other ideas, I'd love to hear them.

http://georgeforaday.co/2015/12/14/t...ive-the-world/

I hope it helps someone who like me, became quite lost when I was first diagnosed and struggled to find a balance.
01-17-2016, 10:31 AM   #161
earthshine
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Would love to read your site George. Thank you for sharing.

Would it be possible to type out name of link, the link is not working on my end
01-17-2016, 05:44 PM   #162
Georgeforaday
 
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not sure why thats happened... http://georgeforaday.co/2015/12/14/t...ive-the-world/

try that.
01-17-2016, 06:38 PM   #163
earthshine
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I could not get to the site via link but found your webpage online! I was able to navigate to the page you linked
04-21-2016, 01:56 AM   #164
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Anyone have input on travelling to 3rd world countries with more infectious diseases while on immunosuppresants? My brother is getting married in India this Fall...have been told by some doctors not to go, but another who I really trust and IS Indian and GI IBD specialist says dont even worry about it...says If super worried go off the 6mp for a couple weeks prior but do not stop the Humira. Was just worried about the TB there and other infections that could become complications on these strong drugs.
04-25-2016, 12:11 AM   #165
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Keep medications in your carry on bag. I have arrived at my destination but my luggage didn't. It took a week to get my luggage.

Also if you are going to leave any of your meds in your hotel when you leave your room lock them in a safe.

Last edited by luDena; 04-25-2016 at 12:34 AM. Reason: Hit send on Accident
04-28-2016, 02:41 PM   #166
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Anyone have input on travelling to 3rd world countries with more infectious diseases while on immunosuppresants? My brother is getting married in India this Fall...have been told by some doctors not to go, but another who I really trust and IS Indian and GI IBD specialist says dont even worry about it...says If super worried go off the 6mp for a couple weeks prior but do not stop the Humira. Was just worried about the TB there and other infections that could become complications on these strong drugs.
I don't have any advice in regards to traveling to 3rd World countries. But I wanted to tag Madhu.

Her husband is on Remicade and they currently are on a trip to India. She might be able to give some advice.
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04-28-2016, 09:04 PM   #167
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Incase anyone is interested, here's what I am doing to prepare for my trip. If anyone has any other ideas, I'd love to hear them.
I hope it helps someone who like me, became quite lost when I was first diagnosed and struggled to find a balance.
Great post! I admire people like you George. I just came back from Mexico, the most developed part (Playa) and had hard time matching food with my Crohn's... Although fish there is so fresh and fantastic - should have stayed on fish alone. Anyway , good luck !
--george
04-28-2016, 09:07 PM   #168
earthshine
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Happy to hear a happy story and that you were able to travel.
05-04-2016, 10:00 AM   #169
Cat-a-Tonic
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I wrote up a synopsis of my recent trip to Japan with regards to how the trip affected my IBD.
http://www.crohnsforum.com/showthread.php?t=77471
(In a nutshell, most of the toilets were great, the food was really easy on me, and I felt really well!)

I had been so nervous about going to Japan, all the "what ifs" involved with travelling halfway around the world and not being able to speak the language and the volatility of my health and so on. Fortunately though I did great and had a wonderful trip. I spent 3 weeks in Japan and loved every minute, I already want to go back! I'm so glad I was able to take a trip like that and it's just inspired me to be more adventurous and to travel more. Now I can't wait to have more adventures!
05-22-2016, 08:01 PM   #170
Madhu
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Anyone have input on travelling to 3rd world countries with more infectious diseases while on immunosuppresants? My brother is getting married in India this Fall...have been told by some doctors not to go, but another who I really trust and IS Indian and GI IBD specialist says dont even worry about it...says If super worried go off the 6mp for a couple weeks prior but do not stop the Humira. Was just worried about the TB there and other infections that could become complications on these strong drugs.
Hi aypues, sorry for the delayed response. Just noticed the tag. Assuming you are the one with IBD, are you currently flaring? My husband is in remission now, so his GI gave us the green signal for travel. There is not much to worry about TB here. It has been mostly eradicated in india, as you probably know. You just have to be careful with the pollution when going out, and my husband seems to be doing just fine so far. I have a lot of wipes and hand sanitizers with me to keep clean. Only if someone with TB coughs on you or like, you are likely to get TB. I think the chance is fairly less. Good luck
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07-31-2016, 09:48 PM   #171
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Just thought I'did share my experience. About a year ago I flew with my Humira pen from Arkansas to New York. I was absolutely terrified they were going to open my pen or even confiscate it. I went ahead and packed it in my carry-on. I put it in its carry case with the prescription label. I was pleasantly surprised when everything went extremely smoothly. The TSA was kind and understanding. Nobody manhandled or opened my medicine. They even went as far as to hand screen my medicine when I told them I was concerned about the radiation if they x-rayed it.
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07-31-2016, 10:11 PM   #172
Susan2
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Just thought I'did share my experience. About a year ago I flew with my Humira pen from Arkansas to New York. I was absolutely terrified they were going to open my pen or even confiscate it. I went ahead and packed it in my carry-on. I put it in its carry case with the prescription label. I was pleasantly surprised when everything went extremely smoothly. The TSA was kind and understanding. Nobody manhandled or opened my medicine. They even went as far as to hand screen my medicine when I told them I was concerned about the radiation if they x-rayed it.
Great to hear about such a positive experience.
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08-01-2016, 04:49 AM   #173
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I travelled with my Humira a few weeks ago, too. The TSA folks were great. I hooked the cooler bag to my briefcase and told them what it was before I put it through. They just swabbed the ice packs and were good. Didn't even really care about the pens. One guy gave me a tip that I should make sure it's frozen still (it was). They get suspicious when it's just a gel pack.

08-02-2016, 12:29 PM   #174
soap94
 
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this thread is so awesome. I have found a lot of necessary info here
08-20-2016, 01:28 AM   #175
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I went to Japan a while back. A few days before going I started to have a flare and I was genuinely worried I might have to fly back home. I had promised my wife and didn't want to back out. I took 4 cans of Ensure with me and that was all I had on the flight over. I was very picky what I ate as I didn't want a blockage. After I got back I had a well period for about 4 weeks but it is flaring up again.
I sort of wonder if a holiday boost your immune system?
12-14-2016, 12:41 AM   #176
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My son is diagnosed with Crohn's disease couple of years ago and we are planning to go to India soon for a month long vacation. He developed antibodies for Remicade and that is out from the list. He's currently on entocort (6mg). We are planning to take him on 3mg entocort. Once. .we are back. .we'll start Humira. Please advise if it's safe to travel.

12-14-2016, 09:50 AM   #177
Madhu
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My son is diagnosed with Crohn's disease couple of years ago and we are planning to go to India soon for a month long vacation. He developed antibodies for Remicade and that is out from the list. He's currently on entocort (6mg). We are planning to take him on 3mg entocort. Once. .we are back. .we'll start Humira. Please advise if it's safe to travel.
My husband is on remicade for the past year and we recently went to india for a month. I was so petrified he would fall sick but he was actually fine. His doctor gave us antibiotics to carry, incase of D issues. Did you talk to your son's doctor about travelling? I suggest you discuss and take all precautions before leaving. Have a good trip
12-14-2016, 10:00 AM   #178
momof8yrold
 
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My husband is on remicade for the past year and we recently went to india for a month. I was so petrified he would fall sick but he was actually fine. His doctor gave us antibiotics to carry, incase of D issues. Did you talk to your son's doctor about travelling? I suggest you discuss and take all precautions before leaving. Have a good trip
Thanks a lot Madhu. We did speak to his doctor. He's okay with my son traveling. Is it okay if I PM you? Sorry. .if I'm asking for too much.

12-14-2016, 10:01 AM   #179
momof8yrold
 
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Anyone have input on travelling to 3rd world countries with more infectious diseases while on immunosuppresants? My brother is getting married in India this Fall...have been told by some doctors not to go, but another who I really trust and IS Indian and GI IBD specialist says dont even worry about it...says If super worried go off the 6mp for a couple weeks prior but do not stop the Humira. Was just worried about the TB there and other infections that could become complications on these strong drugs.
Did you finally travel to India? How was your experience?

12-14-2016, 10:02 AM   #180
Madhu
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Thanks a lot Madhu. We did speak to his doctor. He's okay with my son traveling. Is it okay if I PM you? Sorry. .if I'm asking for too much.
Not at all. Feel free to ask me anything
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