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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Does Remicade make you tired?


View Poll Results: Does your infusion make you tired?
No 5 17.86%
Yes, the day of the infusion, and I do pre-meds 7 25.00%
Yes, the day of the infusion, and I don't do pre-meds 6 21.43%
Yes, the day of and the day after the infusion, and I do pre-meds 6 21.43%
Yes, the day of and the day after the infusion, and I don't do pre-meds 4 14.29%
Voters: 28. You may not vote on this poll

01-19-2012, 07:42 PM   #1
chrisnsteph1022
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Does Remicade make you tired?

I have my first infusion in 14 hours! So excited. I'm going home afterwards and planning on resting. I've noticed a lot of posters saying they are tired afterwards, so I'm just curious.
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dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
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01-19-2012, 08:30 PM   #2
ThanksP
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I'm tired afterwards but I'm not sure if it's because I'm sitting in a comfy chair, snuggled up with a blanket for two hours, or from the Remi. Usually I go home and take a short nap and I'm good to go.

And no pre-meds for me.

Good luck on the first infusion! Hope it starts working ASAP.
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01-19-2012, 08:36 PM   #3
vanilla_chai
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good luck! I went into it wary bc I have a coworker who didn't take it well but it hasn't done anything to me other than make me absurdly thirsty the first time (prednisone did the same the first big dose, apparently its my body's reaction to new meds) and one time I got athletes foot. That was crazy, I went from being unaware of it to 2 hours after I finished the infusion all the skin under my toes was peeling and raw but the otc cream took care of it with no problem

I do have a friend who says it makes her tired but she said it didn't happen until being on it for about a year.

hope its works well and doesn't give you any trouble
01-20-2012, 06:58 PM   #4
Roxymusic
 
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Sleepy due to Benadryl but not tired. In fact steroid kept me up all night first 2 doses. Third one (yesterday) I slept some
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DX Crohn's 1971
Crohn's Surgeries 1971, 1974, 1984x2, 1993, 2007,2016
11 Kidney Stones from 1996 due to resections
All the standard drugs/advice from the 70's 80's 90s
Now: Lyrica & Cymbalta (Neuropathy)
Fish Oil, B12 injection monthly
Dec 21 2011 started Remicade
February 2012 off of Pentase!
Nov 2014 Back on Imuran
Jan 2015 off Remicade
Mar 2015 on Humira
June 2016 on cimzia
Dx short Bowel July 2017
01-20-2012, 07:22 PM   #5
chrisnsteph1022
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They gave me benedryl, so I dozed off and on during the infusion. Once I got home, I was fine. I'm a little tired, but not enough to take a nap. Hopefully tomorrow will go well! I have to take my 4yo to a birthday party.
01-23-2012, 12:33 PM   #6
moogie
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Up to my fifth infusion I was tired for about 24 hours.

I take my infusions at 3h30 pm and I spent that evening and that night in bed and the next day I was fine. So maybe it was just the pre meds after all.

I'm realy happy for you.
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Remicaide
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Getting 5mg now. full dose. cost 5500$ )
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3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!

Last edited by moogie; 01-24-2012 at 04:18 PM.
01-27-2012, 11:15 AM   #7
CyCrohn'sGuy
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I always fell asleep during the infusion..... I'm on Humira now and generally don't feel anything when I take the shot....
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Surgery: 24th August 2010 - perforated Ilieum (80 cm removed)
6th November 2010 - Blood Clot in left lung due to surgery
01-27-2012, 12:20 PM   #8
Lisa
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When I had no pre-meds I didn't really notice a difference - maybe a little tired, but that could have been because I get up at 5am those days to be at work by seven (I take a half day off from work)....

Now I get solumedrol and benadryl IV and the benadryl kocks me out pretty much for a couple hours - but by the time I'm done with my infusion I'm ready to go.....after the last one I went to work and didn't have any difficulties.....
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While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
02-05-2012, 08:42 PM   #9
kllyeve
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I'm tired infusion day because of the pre meds - IV benedryl just knock me out.

Second day I seem to be weirdly energetic - like manic almost.

Third - Sixth day the nausea and headaches come to visit( apparently the "remicade" flu). I've only had 3 doses and the nausea and headaches are less after infusion 3 than infusion 2.

Day 5 after infusion 3 I have had killer heartburn and abdominal pain for which I had to take painkillers for. Its easing off now and I will be calling dr to let her know mon.
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