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Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira side effects reversible?


01-28-2012, 05:59 PM   #1
nogutsnoglory
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Humira side effects reversible?

I started humira and was wondering if I develop psoriasis, lupus, seizures etc can you get off and eliminate those diseases or they stick with you?
01-28-2012, 06:37 PM   #2
PsychoJane
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I have been told that they don't last once the medication is stopped. I'm not sure or yet convinced though.
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Diagnosed UC 1999 then refractory CD.
Past Meds: Prednisone, asacol, cyclosporine, cyclophosphamide, mp6, Humira

Currently taking: Omega-3, D-3, med-free for the time being.
~~Oh! n sorry if what I write seems strange at times, English is not my main language!~~

You'd like to chat and feel facebook would ease this point,
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01-29-2012, 10:54 AM   #3
nogutsnoglory
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That's good at least but obviously wouldn't apply to say cancer.
01-30-2012, 07:03 PM   #4
Miss Underestimated
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From what I've read, the side effects go away once the medication is stopped - but the cancer - I think the statistics are pretty bad - if you are the one that gets it. Statistically, the chances of getting it are very slim - the chances of getting cancer from the Crohns are higher than the chances of getting cancer from taking Humira. But the cancer from taking Humira is almost always fatal.

It's a matter of keeping it in perspective. But if you are the one - perspective goes out the window.
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*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
02-21-2012, 12:04 AM   #5
Cupcake
 
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I had to end my treatment started in June of 2010 on humira in April of 2011. I was having neurological issues which felt like pins and needles in my hands and feet. I also had MS like issues, losing my balance and overall large amounts of body pain.

I feel I have a bit of nerve damage, as I still loose the feeling in my hands and feet, but I am watching to see what is happening on the current lawsuit filed against Humira for nerve damage. It was something I had wished I had learned about - how it had been sited in studies for creating nerve damage - before I had taken on this new medication. Hindsight is always 20/20.

You just never know with these medicines. They can work like a charm, or not be the right fit with you. The best you can do is find supportive medical professionals who aren't afraid to admit if they don't always know the answer and will help you seek out what is needed to find the right treatment for you.
03-08-2012, 04:06 AM   #6
Spooky1
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i've done nothing but cough since i started humira, about two years now although i was only on it for around 8 months! hope i'm okay, gastro bloke ordered chest xray which i should go and book.
03-08-2012, 08:22 PM   #7
Miss Underestimated
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I've been lucky so far. Stuffy nose - and 3 of my medications list that as a side effect. I can live with a stuffy nose. knock on wood.
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