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View Poll Results: Do you get mouth ulcers on a regular basis?
Yes 154 73.68%
No 55 26.32%
Voters: 209. You may not vote on this poll

 
05-25-2008, 05:43 PM   #1
Colt
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Mouth Ulcers

Do you get mouth ulcers?
05-31-2008, 04:55 PM   #2
FruitLoop
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Location: Crewe, United Kingdom
I get ulcers when my Crohn's is rumbling and they are bad when my Crohn' is bad - one of the way I know if Diarrhoea is CD or not is if I have mouth ulcers.

When my current flare up started they were so bad I was swilling my mouth out with salt water constantly.
05-31-2008, 10:04 PM   #3
jed
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so far i've been lucy not to get that symptom
08-03-2008, 08:00 PM   #4
Promise77
 
Mouth ulcers were my first sympton of Crohns. Doctors told me I had everything from Herpes to Thrush. I have battled with them (my face swollen so badly I could barely talk0 for years. In the last few months I have become obsessive about using mouthwash. I use it probably 6 or 7 times a day and I havent had any mouth ulcers since.
08-03-2008, 08:42 PM   #5
Colt
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Have you tried stopping the mouth wash briefly to see if they start to come back? Are you on any medications?
08-04-2008, 02:33 AM   #6
Agent X20
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Yep... that's another one on the list!
In the UK we have stuff called "Bonjella"... maybe it's called something else in other parts of the world. I find that if I start slapping it on at the merest hint of an ulcer it doesn't get much worse.
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08-04-2008, 11:09 AM   #7
SB6286
 
OMG MOUTH ULCERS SUCK!!!!!! Mine all went away except one but I had freakin' tons of them when I first started flarring. I couldn't even swallow food because they were even on my uvula..... I better stop talking before "they" hear me ..... lol
08-06-2008, 02:33 AM   #8
Lily24
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Hi all..

Currently I'm having very bad mouth ulcer..which i can better be calling throat ulcer because my throat is very pain ful...I barely can eat anything and i can't swallow anything..This is my first time getting this bad ulcer since i was diagnosed with Crohns..Anyone with these symptoms, please help me on what you did to make it reduce or go away coz I can even swallow my medicines..Very much in pain. Please help me in what type of food i shall take and so on...

Regards,
Lily
08-07-2008, 05:41 PM   #9
Gemma
 
my mouth ulcers were so bad at one point i couldnt eat or drink and it looked like someone had poured boiling waterin my mouth
08-08-2008, 08:33 AM   #10
SB6286
 
Lily24 said:
Hi all..

Currently I'm having very bad mouth ulcer..which i can better be calling throat ulcer because my throat is very pain ful...I barely can eat anything and i can't swallow anything..This is my first time getting this bad ulcer since i was diagnosed with Crohns..Anyone with these symptoms, please help me on what you did to make it reduce or go away coz I can even swallow my medicines..Very much in pain. Please help me in what type of food i shall take and so on...

Regards,
Lily

I've heard that taking vitamin c will make a huge improvement... seemed to work for me, I was to the point where I had to drink luke warm water because cold water would hurt, that only lasted a few days. Any immunosuppressant will get rid of them too (prednisone).
08-14-2008, 01:21 PM   #11
skinzdogg
 
I've only had a few over the years. Gone in a couple days.
09-16-2008, 10:47 PM   #12
ladyB
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I had them when I was 8. Got too many wrong diagnosis' .They were so bad I couldn't eat or brush my teeth! One doc had the nerve to say if I would just brush my teeth i would all clear up...Jerk.
I get them now if I am really flaring, but nowhere near as bad as when i was little.
09-17-2008, 05:42 AM   #13
rosie
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i dont get mouth ulcers.
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09-17-2008, 02:36 PM   #14
mrs. vr
 
I've had some doozies. A few times, they've been on my soft palate, all the way back to my throat. Oh, does that ever suck. It's almost funny when they start. One night recently, my husband and I watched three pop up on my inside lower lip, over the course of about 20 mins.
09-17-2008, 03:13 PM   #15
El_Guapo1976
 
I used to get them a lot and I got them in clusters. Never one or two but four or five. And they always seemed to come up in the same places. I also sometimes get the sores on the corners of the mouth.

Never used to take anything TBH. Sores I think are more of a problem as people see them and automatically think you've been doing something with someone disgusting..
09-17-2008, 03:17 PM   #16
mrs. vr
 
El_Guapo, THANK YOU for posting about the corners of your mouth. I get those, and the rheum tells me it's dry skin, the dentist tells me it's fungus, none of the stuff either of them tell me to do works, and it drives me nuts. It changes sides too.
09-17-2008, 03:26 PM   #17
El_Guapo1976
 
Hi Mrs VR

I sometimes get them on BOTH sides! I work as a Conveyancer, so you can imagine how embarrasing it can be when you meet clients and you can tell what they're thinking. But what can you say?

I find it happens when Im REALLY run down. What also helps when you feel the tingle is to put a bit of antiseptic cream on the little split in the skin just before you go to bed at night.

AND A BIG F U TO THE DOCTOR WHO THOUGHT IT WAS HERPES. P*****!
09-17-2008, 03:28 PM   #18
mrs. vr
 
my rheum recently suggested I try a product called orabase B. It has anesthetic and forms a sort of seal over it, so it doesn't get as irritated. It's pretty bad when you can't open your mouth to chew or talk because of them. Thankfully, I usually only have to see my own kids
09-17-2008, 03:28 PM   #19
El_Guapo1976
 
Oh...and if you're anything like me do you find you deliberately open your mouth wide? DON'T! That just makes that little split in the skin wider..
09-17-2008, 03:29 PM   #20
El_Guapo1976
 
Orabase? Is that over the counter?
09-17-2008, 03:29 PM   #21
mrs. vr
 
El_Guapo1976 said:
Oh...and if you're anything like me do you find you deliberately open your mouth wide? DON'T! That just makes that little split in the skin wider..
I do the same thing! I also pick at them, which is DOUBLE BAD.
09-17-2008, 03:30 PM   #22
mrs. vr
 
El_Guapo1976 said:
Orabase? Is that over the counter?
yes, although, I had a hard time tracking it down, the grocery store and pharmacy didn't have it. I think I found it at Wal-mart (which, i know doesn't help you)
09-17-2008, 03:31 PM   #23
El_Guapo1976
 
It really makes you appreciate the term "exquisite pain" doesn't it? lol
09-17-2008, 03:32 PM   #24
El_Guapo1976
 
Nononono

We have Walmart in the UK now..

Thanks for the tip. At worst, I can try and get it on prescription..
09-17-2008, 03:37 PM   #25
mrs. vr
 
Yes!

And...wow, Sam Walton would be proud!
10-18-2008, 03:52 AM   #26
Babe123
 
ive got a mouth ulcer at the mo and my god it stings !
x
10-27-2008, 02:53 PM   #27
Methofelis
 
Oh, how much I wish I could say no ... but yep, sure do get them. They SUCK.

In fact, I once got strep throat when I had one. The strep infected the ulcer, which spread it throughout my mouth and jaw. So anyone that gets strep and has a mouth ulcer : REMEMBER THAT! It is NOT FUN!
12-30-2008, 02:01 PM   #28
robbo87
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im currently suffering from mouth ulcers and they are absolutley awfull. i have one really big one on my bottom lip and various others dotted around my mouth and a really sore throat. i cant eat and it hurts when i drink. i had my colonoscopy yesterday so havent been given any medication yet so at the moment im really struggling with eating and drinking and not doin to well.

ive tried using listerine mouthwash and bonjela, they numb them for a short while but thats it, the pain soon comes back and it feels ten times worse. they are the most frustrating thing ever and the pain is getting unbearable.
01-28-2009, 02:11 PM   #29
Gustav2127
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I get them all in the back on my mouth so it hurts to swallow . . . errgh . . .
02-03-2009, 01:27 PM   #30
NatalieMT
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I find I'll get 3/4 all at the same time, really painful and annoying and they will last about a week before they go. Then I'll have say 4-6 weeks without getting any before the whole thing starts over again!
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