Crohn's Disease Forum » General IBD Discussion » Microscopic Colitis » Just Diagnosed w/ Lymphocytic Colitis

02-02-2012, 03:43 PM   #1
New Member
Join Date: Feb 2012
Location: Frederick, Maryland
Just Diagnosed w/ Lymphocytic Colitis

Hi. My name is Sandra and I am 39. I have been sick since summer and was just diagnosed. I am a full-time student but on LOA this semester until my symptoms are under control. I have had difficulty educating myself on the disease and the meds, since quality information seems limited. Maybe I can get some assistance from those you who have experience with these illnesses and treatments.

My doctor started with Asacol without any improvement and has switched me to Entocort. I started yesterday. I am having some side effects that I do not like. Trembling, anxiety, vision issues, and a feeling of complete exhaustion. Are these normal and will they subside? I understood the side effects would be less in comparison to the Pred. Thanks...
02-02-2012, 04:33 PM   #2
Angrybird's Avatar
Join Date: Nov 2011
Location: Cambridge, United Kingdom

My Support Groups:
Hello Sandra and welcome to the forum Entocort is considered more system 'friendly' than Pred, we are all different however us some of us will not do so well on this (I didn't which is why I always get pred). See how you get on over the next day or so but if things do not improve get straight onto the doc. Also have a look at our treatment forum as there will be plenty of info about this drug there. Keep us updated on how you get on.

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
02-03-2012, 05:32 PM   #3
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Hi Sandra and welcome. I have Lymphocytic Colitis as well. Sorry to hear about your diagnosis

I've started a Lymphocytic Colitis Support Club where we've collated some decent information. And within our treatment forum you'll find a lot of threads on Entocort.

We're here for you anytime. Give the club thread a read and say hi in there

Again, welcome!
It's good to be back
02-03-2012, 08:46 PM   #4
Miss Underestimated
Senior Member
Miss Underestimated's Avatar
Join Date: Mar 2011
Location: Norfolk, Virginia
The entocort side effects lessen over time - I had the nervous system reaction - trembling and very edgy. They do control the disease; you won't be on it forever.
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.

Crohn's Disease Forum » General IBD Discussion » Microscopic Colitis » Just Diagnosed w/ Lymphocytic Colitis
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