Share Facebook
Crohn's Disease Forum » Surgery » Stoma Subforum » All of you rock!


02-05-2012, 02:25 AM   #1
kossy
Senior Member
 
kossy's Avatar
 
Join Date: Jun 2011
Location: westland, Michigan
All of you rock!

I've had an ileostomy for over ten years now. I've been through a lot of crazy things, a lot of the times I had to figure solutions out myself a long time ago. I felt like an ostomy Mcgyver at times. I wouldn't say I thought I knew it all, but I thought I knew quite a bit. Everytime I come on here I am blown away by everyone's knowledge. I learn something new what seems like everyday about stoma/ostomie/skin issues.

You're all awesome!
__________________
Ron...

Crohn's since the early 80's
Ostomy since 2001
http://www.facebook.com/kossy16
02-05-2012, 03:45 AM   #2
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
I love this place too!
__________________
Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

02-05-2012, 08:31 AM   #3
Crohn's 35
Inactive Account
 
Join Date: Oct 2009
I will have been here 3 years and I still learn alot. Yes this place rocks, and we all have our moments
02-05-2012, 11:04 AM   #4
lari
Member
 
lari's Avatar
 
Join Date: Nov 2011
Location: memphis. U.S.A., Tennessee
I have had my colostomy for 9 years. I too have learned how to take care of myself by trial and error. On ny own. I just started coming here a few months ago and I have learned a lot. And I feel like I am not alone anymore with this stoma. There are others like me to share experiences. Too cool.......
__________________
I can get cranky, impatient, and stupid when i dont feel good. But if you cant handle me at my worst.... then you dont deserve me at my best. "
n0085: crohns 2001
Colostomy 2003 - hernia surgeries- 07, 08, and 2010.
Current parastomal herniia and hernia leftside
blood transfusions 2012 -- entercort 20mg - 7mos.
02-05-2012, 12:09 PM   #5
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I am very very thankful for this forum. I was lucky to have found it right before I had surgery. If it wasnt for ya'll, mentally I dont know if I wouldve come out with a positive attitude. And taking care of Stan, well. All the help received on here was so great!

It's an amazing place, with amazing people. And I'm soooo grateful to ya'll!
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
02-07-2012, 05:07 AM   #6
LukeE
Member
 
Join Date: Nov 2011
Location: Perth, Western Australia, Australia
well Terriernut has sumed it up for me excatly, Im bout to go for my resection and stoma tomorrow evening or the next morning and having this site has helped me more than any doctor or nurse that explains the process has helped, thank u all
02-07-2012, 08:18 PM   #7
ameslouise
Moderator
 
ameslouise's Avatar
 
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Good luck, Luke!

Ron, thanks for starting a thread just so we can all talk about how awesome we are!! Kidding aside, it's a great place to chat and learn and know that we are not alone, to share our ups and downs, and to make new friends.

And that's how I consider you all - friends.

xo xo - Amy
02-08-2012, 02:51 AM   #8
LukeE
Member
 
Join Date: Nov 2011
Location: Perth, Western Australia, Australia
thought i would share this with you all before my surgery, just posted pic up here is the link to the post .

http://www.crohnsforum.com/showthrea...d=1#post405341
02-09-2012, 12:20 PM   #9
2thFairy
Senior Member
 
2thFairy's Avatar
 
Join Date: Sep 2010
Location: Dallas, Texas

My Support Groups:
Yep...this place saved my sanity before and especially after my recent colectomy. I was not frightened by the various complications after surgery since everyone here had shared their experiences and how they handled them. Both my husband and I surprised ourselves at how well prepared we were when the time came.

Thank you all so much!
__________________
Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
02-10-2012, 06:23 AM   #10
Samboi
Senior Member
 
Samboi's Avatar
 
Join Date: Jan 2012
Location: Australia

My Support Groups:
I agree with all of the above.
The information and advice I have got from everybody on this site, especially in the stoma sub forum has been so invaluable to me. It has helped me put things in perspective, given me tips, and has really helped me come to terms with the realities of having a bag. It has also given me support, understanding and a lot of laughs.
I don't feel alone and isolated in recovery. It's nice to be able to share with others my experience, and learn of theirs.
So thank you everybody from me too.
__________________
Dx - Crohns Disease - 1992
Ileostomy - Jan 2012, Reversed Aug 2013
Pred works, all else seems to fail
Trying Vedoluzimab - running out of options
Neupogen
02-10-2012, 07:35 PM   #11
Snap
Senior Member
 
Snap's Avatar
 
Join Date: Nov 2011
Location: Illinois

My Support Groups:
Kudos to you all. I totally agree---this site is da bomb! It has saved my sanity, made me laugh (and still doin it)--and given me a wealth of information and tips! Bless you all! Dana
02-11-2012, 02:48 AM   #12
LukeE
Member
 
Join Date: Nov 2011
Location: Perth, Western Australia, Australia
hi guys im out of surgery 48hrs out, im not doing too bad expect went a lil backwards this mornign but doing ok now, still very sore and tender. I have already name my stome "Stewie" as my pjs pants i have is stewie from family guy so i welcome and introduce to my life for 12 weeks Stewie the stoma
02-11-2012, 02:50 AM   #13
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Glad you are out of surgery. May you feel a wee bit better every day! Welcome Stewie!
02-11-2012, 02:50 AM   #14
Samboi
Senior Member
 
Samboi's Avatar
 
Join Date: Jan 2012
Location: Australia

My Support Groups:
Congratulations on the birth of Stewie!
02-18-2012, 06:54 AM   #15
shazz
Senior Member
 
shazz's Avatar
 
Join Date: Nov 2011
Location: Plymouth, United Kingdom
You lot are the only ones who truly understand what i am going through.
You don't turn around and say 'what now' when i feel like crap. More often one of you will say 'oh I know how you feel, try this'.
Its a place where i can truly be myself. Have good laugh, a bit of banter and get loads of advice when i need it.
Thank you all for saving my sanity!
__________________
DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
Reply

Crohn's Disease Forum » Surgery » Stoma Subforum » All of you rock!
Thread Tools


All times are GMT -5. The time now is 01:15 PM.
Copyright 2006-2017 Crohnsforum.com