Crohn's Disease Forum » Treatment » Remicade/Infliximab » Did Remicade work for you? How so?

02-07-2012, 08:47 PM   #1
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NicoleKS's Avatar
Join Date: Aug 2010
Did Remicade work for you? How so?

Did it reduce the amount of times per day you were running to the bathroom? Reduce your stomach pain? Reduce your sed rate/inflammation? I'll be getting my 3rd infusion this Friday and I'm still hoping it will do something for me. I'm waiting to find my "miracle" drug that puts me into some sort of remission....
Symptoms of Crohn's: 17 years
Officially Diagnosed: July 8 2010 with Crohn's of the ileum.
Current IBD meds: 12.5mg Methotrexate weekly, Lomotil, Baclofen and Roxicodone as needed.
Failed IBD meds: Asacol, Entocort, Prednisone, 6MP, Humira, Remicade, Azathioprine, Librax.

Symptoms are still uncontrolled.
Fistula developed January 2011.
Resection on February 3rd, 2011.

My poor gut and my poor butt!

02-07-2012, 09:29 PM   #2
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Location: Grimsby, United Kingdom

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It helped me a lot but didnt notice the full effects until the 4th infusion. I only go to the toilet 2-4 times a day now (with no D), no stomach pains at all, have put on weight (which i needed) and im feeling normal again, its amazing. I did notice a bit of a difference after the 1st infusion, but even after the 4th i was umming and arring if it was working properly (guess i was being impatient lol) But so far its worked out great
Current Meds:
2x 1200mg Mezavant, 3x50mg Azathioprine, Infliximab (6 weekly)
02-07-2012, 10:42 PM   #3
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Join Date: Sep 2010
Infusion number 5 is where Remicade started working for me but that was my first infusion at 500mg, the other 4 were at 350mg. It's been working wonders since then and my 7th infusion is scheduled for the end of February. I'm going between 0 and 1 time a day, feeling fine as far as chrohn's symptoms are concerned (first time in 2 years!) and now that I've been off of Prednisone for a couple of months I'm recovering from those side effects as well. Before Remicade started working I was going upwards of 12 times a day. However, it's now suppressed my immune system so much that I've been fighting a case of what the doctor's now think is cellulitis for about 2 months now.

Good luck to you Nicole I know how it feels to be waiting for that normal feeling again. You'll reach it one day just keep fighting.
Diagnosed with Crohn's September 2009

50mg Imuran - Jun 2010
increased to 150mg Imuran - Jan 2011
5mg/kg Remicade every 8 weeks - Mar 2011
stopped Imuran - Aug 2011
7.5mg/kg Remicade every 8 weeks - Nov 2011
Remicade is still working - Nov 2014
Colonoscopy shows no Crohn's! - Dec 2014

Current meds - 7.5mg/kg Remicade
02-07-2012, 11:30 PM   #4
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Vickiinicolulis's Avatar
Join Date: Feb 2012
Location: worthington, Indiana
has anyone had any stiffness as a side effect from remicade. husband quit taking it due to after second infusion, day before his third one he got a bad stiff neck still cant move hardly. so he wont do the remicade anymore. also was on TPN at time so only time will tell Love & peace
02-09-2012, 07:48 AM   #5
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I could cry tears of joy right now. This morning I woke up and I had a "normal" BM for the first time in 16 years. It's a pretty amazing feeling.
02-09-2012, 08:46 AM   #6
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Location: Western Isles, United Kingdom

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That is great :-) A combination of Azathioprine and three Infliximab infusions seem to have done the trick for me.
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
02-09-2012, 10:08 AM   #7
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Location: Tennessee

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Congrats! I noticed great improvement just 2 days after my first infusion. I've had two now and am using the bathroom twice a day (still loose) and having minimal pain.
dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
FB support group
02-09-2012, 12:13 PM   #8
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NicoleKS's Avatar
Join Date: Aug 2010
Crap crap. I just got a call from my Gi saying my sed rate is continuing to climb. It's in the 30s now. That's still "mild" inflammation. I wish it would go down, not up. I guess I'm not at that remission point yet. Arghh!!
02-10-2012, 03:41 PM   #9
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Join Date: Jan 2011
Location: Boisbriand, Quebec
I went from 15 times a day to about 5 times a day. Most of my bm are now soft not liquid. My GF thinks that's a bad thing because now I fart like crazy!!! MOUAHAHAHAHA evil laugh

Pain in the stomach is 95% gone. I still make lots of noise but no pain. AND I can eat veggies again except for mushrooms... for some reason I see them in the toilet whole.

I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day

3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!

Crohn's Disease Forum » Treatment » Remicade/Infliximab » Did Remicade work for you? How so?
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