Share Facebook
Crohn's Disease Forum » Surgery » Stoma Subforum » Bags Blow Outs at Night?


02-09-2012, 08:04 PM   #1
hopeful
Senior Member
 
Join Date: Nov 2010

My Support Groups:
Bags Blow Outs at Night?

How many of us have experienced blow-outs at night? If so, how does it affect our sleep?

I have experienced several over the past few months, and I am afraid to sleep too long - so I drink a few cups of water each time I wake to empty the bag to make sure I don't oversleep.
02-09-2012, 08:38 PM   #2
Samboi
Senior Member
 
Samboi's Avatar
 
Join Date: Jan 2012
Location: Australia

My Support Groups:
I have developed a routine.
No food after 7pm. In bed asleep anytime before midnight.
I wake up between 4am-6am and empty the very puffy bag, back to bed and generally back to sleep.
The bag only ever gets puffy over night.
When I first wake up - I always try and trick myself that it's not as puffy as it is. I feel it a few times in my half sleep, accept that it is puffy, then get up and empty it.
My body just seems to wake me up.
__________________
Dx - Crohns Disease - 1992
Ileostomy - Jan 2012, Reversed Aug 2013
Pred works, all else seems to fail
Trying Vedoluzimab - running out of options
Neupogen
02-09-2012, 08:56 PM   #3
giftedbyadoption
Senior Member
 
giftedbyadoption's Avatar
 
Join Date: Dec 2011
Location: 21136, Maryland

My Support Groups:
I did the 1st week after surgery... my dr said the air is from breathing @ night you breath in s LOT of air.... I sleep with a under pad in my pants lol... its folded and nicely comfortably put in front so if I have a blow out its contained and not everywhere
__________________

Lizz


Asthma: since birth
IBS: chronic constipation ect... since age 2
Chronic sinus disease: Age 6
sur~x5
FMS:2000
Lymes:1999
RA: 2006
severe~depression 1980
colonic inertia/ Colonic Dysmotility~NO mobility in the the colon Nov~2011
Surgery January 17~12 ileostomy/4~life whole colon removed( Clover ~was born!)
On to many med's to list over 12 pills a day and Remicade every 30 days
facebook~
http://www.facebook.com/BARRYSPRINCESS
02-12-2012, 07:24 PM   #4
littlefreebird
Senior Member
 
littlefreebird's Avatar
 
Join Date: Jun 2011
Location: belfast, United Kingdom

My Support Groups:
samboi, i agree, its very strange- like a sixth sense that tells us when we need to empty. i have got into the awful habit of eating dinner as late as 10pm some nights. i'll go to sleep at 1am and i'll get up at maybe 4am and at 7am it's time to get up for work, both at 4am and 7am the bag is full completley. i've definatley been pushing my luck!
__________________
"We're all in the gutter, but some of us are looking at the stars."

Crohn's since 2000 (aged 10)--> full colon & rectum removal 2011.
02-13-2012, 07:03 AM   #5
hopeful
Senior Member
 
Join Date: Nov 2010

My Support Groups:
Does it make decrease the quality of your sleep, worrying that you must wake up at a certain time to empty your bag? I wonder why they don't invest better in creating an alarm system that will sense when the bag overfills?
02-13-2012, 07:10 AM   #6
Samboi
Senior Member
 
Samboi's Avatar
 
Join Date: Jan 2012
Location: Australia

My Support Groups:
I have no trouble falling asleep.
Once I have woken and emptied the bag, I sometimes have a bit of bother falling back asleep. Maybe once a week. Longest has been about an hour or so.
But then I go back to sweet dreams and wake up to the proper alarm - not a puffy bag!
02-13-2012, 02:23 PM   #7
Terriernut
Moderator
 
Terriernut's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Sorry this does happen! I think I've gotten to the point of even being asleep and checking it now. I can even gauge it...can I have 20 minutes more sleep? How about a cuddle with Freya (the dog) before I roll out and empty?

But, I eat my lightest meal at night now, and I think that has saved me alot of grief. And eating earlier.

You will learn what works for you!!
__________________
Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
02-13-2012, 05:50 PM   #8
robbo87
Senior Member
 
robbo87's Avatar
 
Join Date: Dec 2008
Location: Wigan, United Kingdom

My Support Groups:
Ive gotten into a routine where i wake up after 3-4 hours sleep to empty the bag, most of the time it is full of air, and although i've never experienced a blow out, because of the way i lie on my side, i very often end up with a leak, and this gets worse when the bag is full of air like a balloon.

on a few occasions i have slept right through and woken up feeling like the bag is going to explode at any moment. and on one occasion i woke up with crap everywhere, but every other time ive had a leak ive been able to spot it and just get up and change, or... leave it and sleep on my other side to make sure nothing else gets through.. lol


tbh id rather eat something before bed, if i dont i still get a high out put which will be watery instead of a bit thick
__________________
My Story
Diagnosed 2008
Currently taking
omeprozol 40mg
codeine x4
laparimide
ferrous sulphate
folic acid

ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
02-13-2012, 08:40 PM   #9
littlefreebird
Senior Member
 
littlefreebird's Avatar
 
Join Date: Jun 2011
Location: belfast, United Kingdom

My Support Groups:
getting up in the night is just routine for me now. i empty the bag semi-sleeping and usually in the morning i can't remember emptying during the night but know i have.
it's a pain though because my bedroom is upstairs and our only bathroom is downstairs towards the back of the house
02-15-2012, 06:44 PM   #10
rohrski
New Member
 
rohrski's Avatar
 
Join Date: Jan 2012
Same with me, I usually go to sleep around 10 and then I am up every 2 to 3 hours to empty, and yes if I didn't I would have a mess, I don't sleep well at all, It seems like I just get to sleep and I'm up again.
__________________
diagnosed crohns 1986
small and large bowell
resections
colostomy 1988
iliostomy 2011
02-16-2012, 04:07 AM   #11
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
Sometimes I'm lucky and will sleep right through. Other times the bag will just be full of air and I can just empty the air out from bed without getting up. Othertimes I feel the need to get up in the night to empty the whole thing.

I think my body is used to it now. I never used to sleep on my back at all, whereas now I'll fall asleep on my side but often wake up on my back where I've subconciously not laid on my side to squash my full bag and cause leaking.
__________________
Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
02-16-2012, 12:28 PM   #12
glum chump
Senior Member
 
glum chump's Avatar
 
Join Date: May 2010
Location: British Columbia

My Support Groups:
I tend to eat dinner by about 7pm, and then have a snack at 9:30 and then bed by 11. I empty my bag just before falling asleep, and sometimes, I'll wake up once to empty, and other times (like last night), I didn't get up till 6am to empty.

When I first came home, I would sleep on my back, and that seemed to result in the output gathering around at the top and causing a blowout. I used to set my alarm to wake me up every three hours, as well. I now sleep on my side with a pillow to have gravity do its thing and slide things downwards. I never think to set my alarm anymore, either.

I tend to eat a lot more fibre based foods during the day, and ease up on raw vegetables and other higher fibre foods at night. That way, my output isn't so thick.

I haven't had a night-time blowout in quite a few months. Not sure if that's just luck or something else, but 'touch-wood'!

Kismet
02-16-2012, 07:15 PM   #13
simon47
 
Join Date: Jan 2012
Location: calgary, alberta, canada
I do not have an ostomy, but realise it it always a possibility with my Crohn's. Do you folks have different size bags for night time ? You seem to have the annoyance of having to get up throughout the night to empty. I know a larger bag would be cumbersome during the day..but at night would it not give you a bit of a break (to sleep)? Just trying to educate myself as much as possible. thanks
__________________
simon, dx severe cronic Crohn's 2009, misdiagnosed since 1982 (ibs !!!) . right hemi colectomy (60cm) two fistulas, two strictures, apendectomy (23cm) abscess on illeum "size of hotdog bun".skip lesions .current meds..aza-200mg. humira. questran.
02-16-2012, 08:32 PM   #14
vonfunk
Bourbon Bandito
 
vonfunk's Avatar
 
Join Date: Jul 2010
Location: Toronto, Ontario

My Support Groups:
I use to have issues when I was using Coloplast. I find with the Hollister because it attaches with a fabric bandage type material it tends to absorb any leakage. I just use the large size bags all the time.
__________________
"Peer review or it never happened" - Oscar Wilde
Jason's colon
10/14/1980 - 06/21/2011
Goodnight Sweet Prince

02-16-2012, 11:07 PM   #15
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
Having a colostomy I guess I'm lucky as I very rarely have any output overnight. I guess my bowel sleeps when I do...lol I do have gas though...but I just usually burp it in bed - an added bonus to that is that it grosses my fiance out...lol
__________________
Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

02-17-2012, 08:15 AM   #16
DanHerefordshire
 
 
DanHerefordshire's Avatar
 
Join Date: May 2010
Location: Herefordshire Uk
you would think they would make bigger bags for night time use
__________________
Diagnosed 2002, crohns of the dudoneum, ele--"mental" diet six months of my life
omeprazole predesoline.. resection surgery X1 balloon dilation x2
still keep bouncing back!!
02-17-2012, 09:19 AM   #17
giftedbyadoption
Senior Member
 
giftedbyadoption's Avatar
 
Join Date: Dec 2011
Location: 21136, Maryland

My Support Groups:
you would think they would make bigger bags for night time use
You all sound like you need to start using what I am going to start using the EZ vent I get air at night and during the day.
My surgeon says it has nothing to do with what you eat or drink its the air you breath and how you breath it in
.I believe him because I have had 5 sinus surgery's and I breath terrible so sleeping is my worse and I get a lot of air intake that way sleeping that is.

http://www.exmed.net/p-1814-kem-osto...FULe4AodexlqQw
02-17-2012, 12:48 PM   #18
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
This thread jinxed me! I emptied my bag at 4am this morning then woke up at 5am to fid output all over my sheet and pjs

I don't know how but the seal wasn't on the wafter properly and it all leaked! Eeep!
Reply

Crohn's Disease Forum » Surgery » Stoma Subforum » Bags Blow Outs at Night?
Thread Tools


All times are GMT -5. The time now is 01:47 AM.
Copyright 2006-2017 Crohnsforum.com