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Crohn's Disease Forum » Diet, Fitness, and Supplements » SCD and Paleo Diets » Specific Carbohydrate Diet Support


 
03-29-2012, 11:33 AM   #91
Tantija
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Congratulations, Caldotis!

Very happy about your results and that you are so optimistic! Well done!
I usually cook lunch for two days as it also saves time because I do not really eat in the evening. My biggest meals of the day are breakfast and lunch.
03-29-2012, 12:18 PM   #92
Gstar
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Promise! If such great benefits are already being noticed, they will continue Congrats btw.. There will be rough patches, when fighting colds, etc.. But naturally, everybody battles through those.. Staying strict to the diet always ensures the fastest healing.

As for the prednisone.. Don't go to crazy with dropping the dosages in such a short time. Like everything else, its about balance. Allow your body time to compensate for the loss of dosage being consumed, so your body can adjust and kick in your own production. Keep up the great work! Its all about meal prepping and prepping for tomorrow's meals (to save time).. Cook in batches..
03-30-2012, 04:26 AM   #93
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Hi Gstar,
I am sorry, what do you mean by "...fighting colds..."? Does it related to the SCD?
Thanks!
03-30-2012, 05:11 AM   #94
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Hi Tantija,

I have seen you have been doing great work yourself on these threads regarding SCD, Kudos to you! Obviously you enjoy helping people, great work and mentoring!

All I was trying to reference with the cold reference, is that it is normal for anybody to fight and type of bug or virus that may be picked up. People with IBD, it seems their immune systems kick into high gear per say when they fight the same bug and this is what usually mimics a 'flare'.. Not a case that all your symptoms are beginning to regress from some unknown reason. There is usually a reason. At the beginning of the diet this is very true, as time progressess.. Bumps in the road generally mimic the same time as 1 day flu's etc..

Have a good day and keep up the great work!
03-30-2012, 06:18 AM   #95
Tantija
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Hi Gstar!

Thank for the reply. I have lost quite a lot of weight when I started the diet but managed to get it back. I am not on any medication so my immune system is quite alright. You are right the reasons of flares could be very diferent. After 14 years I know that my is more emotional if I am stressed or upset very much about something my intastines got cramped and food stuck with a lot of pain. I am sure you know how it is

Have a nice day!
03-30-2012, 09:15 AM   #96
David
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That's fantastic Caldotis, good for you
04-14-2012, 06:50 PM   #97
Spooky1
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I tried this diet twice. must say that i have fructose intolerance (severe migraine and psoriasis). did plenty for my mood, as it did with my sisters M.E and mood. but the food went through in green bile. was on it a minimum of 3 months each time. I also had huge issues with the dairy. Yes, bloating, mucus and a thumping hangover feeling after it. On a positive note i will also say that i don't collapse so much physically. i didn't notice myself becoming healthier, cos i just had the same old stomach cramps and longer loo visits, but i did feel as though the fatigue left me a bit.

Must say, my liquid feed is virtually all carbs! not sure its doing me any good though, still run to loo. still have stomach cramps and colonoscopy of two weeks ago still revealed stricture with ulcerations and bleeding, omg, what does help crohns?

Hows that diet going David?
04-15-2012, 06:43 PM   #98
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Has anyone lost weight on the diet if you needed to?
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Axial Arthritis, Hiatal Hernia, Anxiety
After being on every type of medication Humira seems to be working.
04-16-2012, 01:22 AM   #99
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David not every allergic responce leads to anaphlactic shock. Things like bee stings, nut allergies, sea food allergies and antibiotics (prob more stuff that I cant think of or know about)
can get worse. Like every bee sting you get can be worse than the last one. Same with PCN.


Other than that I am totally overwhelmed with all I read on this thread!! And I didnt even try the diet!

Ya know a 30 day program (like rehab for IBD) we can get intense informatioin and tips on how to live with thses lovely things. Private rooms and bathrooms must!! Sounds good to me!
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Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


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Ok, my family Dr told me to cut down on the stress- a husband, 3 kids, and 3 dogs!
04-16-2012, 07:13 PM   #100
Lisaa
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i had started the specfic car diet in january, and loved it!!!!!the only problem was that i am too weak to eat the veg part of the diet, so i am restricted to mostly meat, bananas and a few other things like swiss cheese. i am at the point where my doctors are very very pushy with humira and remacade, which i DO NOT want to go on. when i was taking 6mp i had an adverse reaction-- my white blood cells count dropped to a 1 (normal range is 4.5-13). medicines had really no positive affects on my disease. currently i still take colestid(because of a bowel resection) and prevacid. i had to stop the diet about 3 weeks ago because i was nervous about how much weight i continued to lose. (im 5'8 and was 122 lbs when before my flare last summer, i weighed 185 lbs). since stopping the diet i feel TERRIBLE!!!!! i tried eating things that my doctor had suggested, his list of go-to foods included sugary cereals and even cinnabuns!-which i avioded, i tried things like soft pretzels and toast and even that KILLED me. cheese is the worst, a slice of pizza sent me into convulsions while i was on the toilet--terrible!! i JUST went back on the diet, i weigh 127 lbs and have decided so long as i can stay above 115 i am sticking to the diet. is anyone else so frustrated that doctors do not recognize diet as part of the issue?
04-17-2012, 05:26 AM   #101
Tantija
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Hello everyone!

I think it is quite easy to lose weight with this diet if you want to (no sweets, chocolate, bread, pastries, biscuits, cakes, sugar ). I did lose some weight again, but not much. With our disease you do lost wait when you have D all the time, or inflammation is high, so the people who has lost weight for these reasons I think will gain the weight back. I do not worry about the weight at the moment, it is still normal 63kg with the height of 164sm, I just feel weaker. But is probably something to do with my very low blood pressure (80/60; 75/45). But I am so happy that my inflammation markers are absolutely normal! Although I do have again sometimes D and cannot understand the reason...
I am going to see the gastro doctor in the beginning of May and very curious how he will react on my news about the blood tests and the diet. Will he decline it at all? Or will his scientific curiosity will be intrigued?
04-17-2012, 04:46 PM   #102
raechel
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David- Are you still on this diet? If so how have you been feeling? Do you feel it is working for you?
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Diagnosed 2007, 1 resection in dec 2010 (12 inches of illeum and cecum), several abcesses.

Meds I've tried:Stelara, Pentasa, Entocort, Prednisone (over and over again) Remicade, Humira, Flagyl, 6MP, Imuran, Methotrexate.. I'm sure there's more I can't think of...
04-18-2012, 09:44 AM   #103
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Spooky, I noticed you have fructose intolerance, which I have as well. I am not on any meds, as I was allergic to Pentasa (and anything else with sulphonamides). I am doing pretty well with the low-FODMAPS diet for the fructose situation (and related SIBO) as well as incorporating/personalizing the SCD diet and making the SCD yogurt (too much sugar in any store brand yogurt) and SCD broth every two weeks. You may want to check out LFM's in the Wiki section of this forum and consider that, as it is similar to SCD, but better for those with the fructose issue. Even if any of you doesn't subscribe wholeheartedly to a particular diet, I think it's healthy for anyone to watch out for refined sugars, starchy carbs such as grains/beans/veggies (cook all other veggies), and beware of dairy and how each/any of these groups affects you. Also, look out for chemical additives/colors, fake fibers, etc. and just stick to whole foods where you understand the natural ingredients involved. Tots, This certainly can seem so overwhelming at first, but it isn't if you just start out with some sensible, healthy guidelines and then, perhaps, someday you might be excited to start a food plan that has been a major help to many, i.e. SCD and low-FODMAPS, which are well-researched and supported by upstanding teaching hospitals. You'll have so much support here if you do! But, if you don't, just hang in there and try to apply some of the good advice it extols about reading labels and being careful about certain, likely irritating, food groups. As with anything, if it's difficult to get on board, just ease yourself a little at a time and see how it goes! It can test your patience and sense of humor at times, but keep it light. It can feel really positive and wonderful physically, as well as great to know that you have some say in the direction of your health. Sincere best wishes and good luck!
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IBS since my 20's; Crohns 2001 @ 41
Major Flare, ileo-cecal resection 2001
Diag. SIBO 2011; 3 SIBO flareups
Past Meds: Prednisone & Pentasa-allergic (2001),
Entocort (2009), Xifaxan-30 days (2011,12,13)
Current Meds: HRT mitigates my symptoms+
Low FODMAPs Diet, SCD yogurt & broth
Supp: Multivit.; Calcium w/ D/Mag.; B-12 sub-lingual; Nordic Nat'ls Ultimate Omega; Blood Builder Vegan Iron
Vitamin D-50,000IU 8 wks.,now 2,000IU
04-18-2012, 09:49 AM   #104
David
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David- Are you still on this diet? If so how have you been feeling? Do you feel it is working for you?
I have decided to go off it as I don't notice any real difference after the initial first two weeks of improvement. However, my experiences shouldn't sway anyone as I have Lymphocytic Colitis which, while a form of IBD, is different from UC and CD.
04-18-2012, 11:42 AM   #105
raechel
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I have decided to go off it as I don't notice any real difference after the initial first two weeks of improvement. However, my experiences shouldn't sway anyone as I have Lymphocytic Colitis which, while a form of IBD, is different from UC and CD.
Thank you for your honesty :-) I am not sure this diet would be for me either as it kind of seems opposite of what I tolerate. From food journaling etc. I have noticed that carbs are the one thing that rarely make me sick, where as most veggies (cooked or not) do me in everytime. Plus, as weird as it seems chicken is the worst food for my gut. It's great that this diet has worked for so many, but I'm just not sure it would be the right fit for me given my triggers and already extremely limited diet. It has been interesting to read everyone elses experiences though, and I wish everyone the best of luck!
04-23-2012, 10:06 PM   #106
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David, how long did you try the SCD for?

I'm at the beginning of my third week on (aiming for a one month trial). I improved initially in the first week, then hit 20 mg on my prednisone taper and started to have some Crohn's symptoms come back. I was hoping it would smooth my transition off steroids, but that doesn't seem to be the case. Wondering if maybe I should go back to the intro diet for a few days? Has anyone else tried this? Or maybe it's just not for me, right now.
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04-23-2012, 10:27 PM   #107
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Almost two months. Potentially not long enough for true results to emerge, I admit. I also admit great frustration that my form of IBD is "rare" enough that I don't know if I'm wasting my time or not which was the out my mind needed to get me to give up. Plowing the road is hard. I have the utmost respect for those with CD and UC who plowed the SCD road initially. I also have the utmost respect for those of you who stick to this kind of stuff long term.

Point being, no study should use my data Or maybe that should be a
04-28-2012, 02:45 PM   #108
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Desiree, I lost 40 pounds in 10 months when I was on SCD. My weight loss stopped when I began to eat a lot of almond flour sweets. Since going off it over the holidays I've gained back 15 (and not feeling good either).

To those of you interested, nutsonline sells affordable and legal nut flours.
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07-20-2012, 08:10 PM   #109
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Hello all- I've read this entire thread with great interest and I'd like some feedback from those of you that have had success with the SCD diet. I started the diet about a week ago. I stayed on the intro diet for 6 days and then today, I started adding some other foods. I have not noticed an improvement with the diarrhea. I had one day this week in which the diarrhea was actually increased significantly from my baseline-- the other days I have maintained my baseline from prior to the diet. I have noticed a difference with other symptoms as I've had no gas, no bloating, and no migraines/headaches. For those of you on the SCD diet, how long did it take for the diarrhea to resolve? I was just recently diagnosed with CD and I've only had the diarrhea for about 8 weeks (other GI symptoms- gas, bloating for a few years), so I had expected it to resolve very quickly on the diet. All the success stories I read seem to be people who have struggled with CD or UC for years and then resolve the diarrhea within a few days. I'm feeling a little discouraged...
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07-20-2012, 09:56 PM   #110
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I bought the book Breaking the Viscious Cycle and it's on it's way to me by mail now. I am really keen to try following the diet in this book to help me control my crohns disease. It seems quite a few people have had success with it!
Here goes...
07-21-2012, 01:52 AM   #111
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Hi Katybuckeye, Welcome aboard!! There is no one answer to when/if the SCD will make a difference for you, but I want to encourage you to hang in there for a few months if you can. You will need time for your system to calm down and you won't know for a while exactly what your personal triggers are. Keep in mind, if you are female (pardon the assumption Katy?), your hormones play a role (check out the women's forum on this), and if you know if you are fructose intolerant or not, that plays a role outside of the SCD, as SCD does not account for that (see SIBO-hydrogen breath testing, fructose intolerance & low FODMAPS plan in Wiki section and my older posts). SIBO is fairly common with IBS (common precursor to CD) & Chrohnies and your D will continue on the SCD if you have it or fructose intolerance. There's an easy, noninvasive test for fructose intolerance. You may want to mention it to your GI specialist. All I can tell you from my personal experience of going on the SCD and then to low-FODMAPS has been nothing but positive. I wish you the best. You have a great attitude. You are optimistic or you would not be willing to try this, and you are empowering yourself to put yourself in the best health. Remember that even if you don't see miraculous things happen with the SCD or any particular foodplan, it's a great step in overall wellness and strengthening your immune system in the fashion of "first do no harm," by removing many potential common irritants. It's a journey. My husband used to run track in high school and he is always telling me, "It's not a sprint. It's a marathon." That helps me whenever I feel frustrated or impatient with anything! However you decide to manage your health, know that you are not alone. Take care.
07-21-2012, 02:26 AM   #112
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A shout out to Lisaa! I'm a born and raised Jersey tomato as well, so wanted to say "hi" and welcome. And a resounding YES to the fact than many docs aren't on board with nutrition, unless they have a personal interest. I've spoken with MD and GI residents about this and they just get zero training in this area, so the best they can do is refer out to a licensed dietitian who specializes in IBD issues. I've had some better luck at my local teaching hospitals in regard to this. Perhaps the GI dept. at Princeton may be more on top of it? It doesn't help that IBD issues are only just becoming more studied and clarified...There's still a lot of mystery to it and it's so individualized. But I can tell you that before I was diagnosed, my regular MD kept telling me to eat a bland diet and toast, etc., and I found that plain breads made me feel awful! I was tested (negative) for Celiac 11 years ago, but have since have learned that I cannot tolerate fructans and am non-celiac gluten intolerant (see low-FODMAPS). One thing I do want to stress with the FODMAP plan is that it has an elimination phase, just like SCD, and then a challenge phase. So, one has the opportunity to find out what specific foods/food groups are irritating. It's a great structured way to find out what bothers you and be potentially able to expand your diet over a period of time. It is very similar to the SCD but accounts for specific sugar/carb intolerances in a very methodical way. There are dieticians who specialize in this around the country and it is very well-researched at top hospitals internationally. Ultimately, it is all you, your research, support here, and your dietician if you go that route. Consider looking around for a GI specialist that is "into" nutrition. They are out there, just tend to be in the minority, unfortunately. But hang in there! You're heading in the right direction.
07-21-2012, 02:45 AM   #113
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Lisa, Here is a good link in regard to the fructan/carbs malabsorption:
http://blog.kitchentherapy.us/2010/0...book-giveaway/
07-21-2012, 10:07 AM   #114
KatyBuckeye
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Thank you for the information on SIBO and fructose intolerance. I'm am going to look into that further. I think it is still too early to tell with the SCD diet, but today is going very well, so far. I am convinced that diet factors are strongly tied into CD and I am also convinced that diet is going to help me
07-22-2012, 07:05 AM   #115
scd
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This thread has been started a long time ago but I'm seeing some replies still going on here...I'm hoping someone will be able to reply to my beginner questions as its my first few days on the diet (if Im even doing it correctly).

I've been diagnosed with SIBO twice, the first round of antibiotics didnt work after the course ended, and probiotics made me worse from the beginning. I now have some antibiotics perscribed, but I don't want to start using them until a few weeks on this diet...I want to see if I can feel a difference. I don't know if I'm imagining it or not since its only been 3 days, but from the first day I started I could feel that my bloating, constipation and general discomfort was much better. I even took only one pill for my IBS related symptoms rather than the 2 I take daily, and my digestion still seems better. Maybe its making a difference because I used to eat pasta everyday, or at the very least 4 times a week. Sometimes I had it for both lunch and dinner and was the only meal I'd eat all day. I guess that's making the difference, although I'm sure I'm not following the diet properly yet (eating raw vegetables and such).

I'm mostly wondering about the cheeses now. From what I understand there are allowed cheeses, such as cheddar cheese...But, they're supposed to be unprocessed? Is cheddar cheese from the deli considered unprocessed, or legal in this diet?
07-29-2012, 11:31 AM   #116
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Hi SCD! So glad you are tying diet to manage your condition I started SCD just over 2 months ago and I felt the difference immediately as you seem to be. After 4 days of eating homemade chicken soup I was able to advance to the intro diet (was in a BAD flare), after 8 days I was on the full blown SCD diet and symptoms were almost completely gone! I have made a few mistakes and paid for them with symptoms, my most recent one vegetable oil. I consumed it on Monday and went back to the Intro diet to relieve my symptoms. Today is Sunday and I have a slight tender tummy but it's almost completely better.

As for cheeses from what I understand, they have to be aged cheeses like Parmesan, Cheddar, Colby, Grieyer (sp?), Swiss, Havarti, Feta, etc. Nothing like American or Velveeta. Cheese is actually my go-to snack when I don't have anything to munch on. I am actually coming up with a cracker recipe today for my SCD blog Cheese makes great crackers even just by themselves.! Just sprinkle some shredded cheese in piles on some foil or parchment paper and bake them at like 400 for like 3-5 minutes but check constantly! Once they are all melted in little circles and just starting to brown on the egdes they are done. Cool them for a crunchy cracker FYI cheddar tastes EXACTLY like a cheeezit! I hope this helps =D

Good luck to you! It's been a few days since your post, how are you doing now?
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Diagnosed Crohn's/Colitis/RA/Hypothyroid in 2000
Endometriosis 05
Resection after resection, drug after drug
Ostomy placed, Rectum removed 2010 etc etc etc..

MED FREE! Working with GI on the SCD Diet to manage my Crohn's =D
I'm VERY new to the diet. Seems certain foods cause my symptoms. Testing that theory!

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07-29-2012, 11:36 AM   #117
Snoflayk505
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Fish slows healing!! Wait to eat fish until you are symptom free
07-29-2012, 03:04 PM   #118
ravensfan88
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Fish slows healing!! Wait to eat fish until you are symptom free
Where did you read that fish slows healing?

I've always been under the impression that fish actually helps with healing.
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Current Medication
Remicade - 10mg/kg (5th infusion 8/21/12)
TPN infusion (12 hour cycle every night)
Escitalopram 10mg - once daily
Lomotil - (2.5mg) up to 3 times daily
Ursodiol 500mg - twice daily
Align Probiotic - once daily
Vitamin D3 1000iu - twice a week (because of elevated liver enzymes)
07-29-2012, 08:24 PM   #119
Snoflayk505
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My Chinese Medicine herb clinic. I am trying to heal from my rectal removal surgeries and abscesses and they told me not to eat fish cuz it slows wound healing. Here is an article I ran across also. Sounds like it's up in the air.

I've been hesitant to even tell people that. I don't know enough about it myself to recommend it actually I'm just listening to my doc =P I'm not actually sure if it would even effect IBD in that way so probably best for me to rewind and pretend I ever posted that lol but the is some research I guess suggesting it slows healing. Here's one article....

http://researchnews.osu.edu/archive/pufawounds.htm
08-01-2012, 03:34 PM   #120
Caldotis
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Fish slows healing!! Wait to eat fish until you are symptom free
Hmmm...not so sure about that. Omega-3 fatty acids (which most fish have loads of) seem to be good for healing.
http://www.ncbi.nlm.nih.gov/pubmed/20041815
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