Hi...my name is Beth and my son Bruce has Juvenile Arthritis and Ulcerative Colitis. JA was diagnosed 3 years ago and UC was diagnosed last Feb 2011 wheN he had colonoscopy. UC is in lower left rectum. His Uc started with constipation which they say can happen"..funny all er docs and peeds doc thought he was holding. Hes 10!!!really?..they asked if he was looking for attention...WOW...talk about being alone. When he was younger he had problems with gerd and i went back to his old peeds gastro who did the colonoscopy and tried to get bleeding under control b4 sending him to hospital.He was put in hospital for 6 days last March, 2011. Took canasa suppository nightly, 60 mg of prednisone, 800 mg of Asacol and no eating for 5 days. His bleeding was bad, lots of large clots, blood and coffee grounds...my poor child freaked and my hands shook when calling the dr. Poor Bruce thought he was dying, and the his arthritis started flaring, I took pics and showed Dr. We live 2 1/2 hours away, dr had me send it to his phone... dr said ...hospital NOW! This goes hand in
hand with his arthritis. Stopped bleeding by the fifth day. He took 60mg of prednisone for awhile until he developed glaucoma and he was taken off slowly. Glaucoma gone
and we started Oriencia for JA cuz the enbrel shots were not working.
We have since changed meds for his arthritis. Remicade was the only option for his arthritis except for humira. We needed to get arthritis under control and at the time his UC was nowhere to be seen. He is now taking remicade 300mg
every 3 weeks, celebrex 200 mg daily, and asacol 800mg daily. He hasn't had a flare
since his onset last year. So we decided to cut Asacol in half. It only took a week for
him to flare. He started last Thursday with stomach pains and the next morning he
went 4 times and total motility for the day was about 12 times. Started canasa Friday
night and 30 mgs of prednisone as well and went back to 800 mg daily of asacol.
His bowel movements are better...more snotty mucus and blood but only now going about 4 times a day. His remicade infusion is on thursday march 1st. Pretty sure that this was the result of reducing his asacol. Feel bad but we wouldn't have known.
My question is...Is he that close to having a flare for being on a lower dose because
the flare came on fast? You would think that the remicade every 3 weeks would be
helping!?....:stinks:
So any info would be of great help.
hand with his arthritis. Stopped bleeding by the fifth day. He took 60mg of prednisone for awhile until he developed glaucoma and he was taken off slowly. Glaucoma gone
and we started Oriencia for JA cuz the enbrel shots were not working.
We have since changed meds for his arthritis. Remicade was the only option for his arthritis except for humira. We needed to get arthritis under control and at the time his UC was nowhere to be seen. He is now taking remicade 300mg
every 3 weeks, celebrex 200 mg daily, and asacol 800mg daily. He hasn't had a flare
since his onset last year. So we decided to cut Asacol in half. It only took a week for
him to flare. He started last Thursday with stomach pains and the next morning he
went 4 times and total motility for the day was about 12 times. Started canasa Friday
night and 30 mgs of prednisone as well and went back to 800 mg daily of asacol.
His bowel movements are better...more snotty mucus and blood but only now going about 4 times a day. His remicade infusion is on thursday march 1st. Pretty sure that this was the result of reducing his asacol. Feel bad but we wouldn't have known.
My question is...Is he that close to having a flare for being on a lower dose because
the flare came on fast? You would think that the remicade every 3 weeks would be
helping!?....:stinks:
So any info would be of great help.