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03-04-2012, 08:39 PM   #1
happypanda
 
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Do your friends ask to see your stoma?

I'm a Chinese Medicine student and therefore have a lot of friends that are TCM students as well. It's been great to have friends ask to see Berry and not treat me as different, or ignore that I have had this major surgery. It makes my new normal seem like the old normal. I think Berry kinda enjoys the attention, if they are lucky it will dance for them.
It's actually been funny for me to see all the ways that they try to ask to see Berry with out actually asking. I usually get to ask them if they want to see it.
I have half wondered if I'll be the Western Pathology guinea pig when they get to Crohn's....
03-04-2012, 08:47 PM   #2
giftedbyadoption
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I'm a Chinese Medicine student and therefore have a lot of friends that are TCM students as well. It's been great to have friends ask to see Berry and not treat me as different, or ignore that I have had this major surgery. It makes my new normal seem like the old normal. I think Berry kinda enjoys the attention, if they are lucky it will dance for them.
It's actually been funny for me to see all the ways that they try to ask to see Berry with out actually asking. I usually get to ask them if they want to see it.
I have half wondered if I'll be the Western Pathology guinea pig when they get to Crohn's....
LOL... no as of yet no1 has asked to see Road Runner
He never behaves though so its best that way

I also do not wear a clear pouch so would have to take the whole thing off
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Asthma: since birth
IBS: chronic constipation ect... since age 2
Chronic sinus disease: Age 6
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FMS:2000
Lymes:1999
RA: 2006
severe~depression 1980
colonic inertia/ Colonic Dysmotility~NO mobility in the the colon Nov~2011
Surgery January 17~12 ileostomy/4~life whole colon removed( Clover ~was born!)
On to many med's to list over 12 pills a day and Remicade every 30 days
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03-04-2012, 11:41 PM   #3
Nyx
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I've shown Oscar to most of my friends. They were all curious and supportive, so I figured what the heck! No one ran screaming and they're all still my friends...lol And now they have a good idea of what I live with every day.
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

03-05-2012, 08:38 AM   #4
robbo87
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Only one friend has ever seen my bag, but no one besides my sister who was helping me at first has seen my actual stoma. and none of them have asked to see it, 1 or 2 friends have an idea of what it is but I still don't think they quite get it. Sometimes I'd like show them so they can see it for themselves so they might realise what I live with and that there's a reason I act the way I do at times... particularly when playing football etc
I get the impression my friends who i play football with think im just being soft for not wanting to go in goal or not being physical enough, and I know it's because I don't want anyone barging into my stomach or having a football hit me, so at times like that it is really frustrating.
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03-05-2012, 04:39 PM   #5
Terriernut
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No one has seen Stan. I showed my so called partner Grahame (just the bag, not Stan) in the hospital once. As he's never asked to see me or Stan again neked since...oh well.
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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03-05-2012, 04:51 PM   #6
giftedbyadoption
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No one has seen Stan. I showed my so called partner Grahame (just the bag, not Stan) in the hospital once. As he's never asked to see me or Stan again neked since...oh well.
Misty,
ARE You serious NOT you naked HUH.... thats awful WTH ugh... I hope you dumped him?
Man my husband drives me nuts wanting me naked lol...
I was emptying the other night and he wanted to brush his teeth EWWWWWWW true love I guess he said well its just part of you like when you are sitting on the toilet ummm... hello dear when I use to poo which was once every 60 days if I was lucky you did not brush your teeth lol...
03-05-2012, 05:08 PM   #7
Terriernut
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Yes, I'm serious. At my age I shouldnt be surprised. That part of my life is over I'm afraid.
03-05-2012, 05:52 PM   #8
happypanda
 
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No one has seen Stan. I showed my so called partner Grahame (just the bag, not Stan) in the hospital once. As he's never asked to see me or Stan again neked since...oh well.
What a jerk! Hearing that makes me a sad panda.
I would hope that when I meet someone and explain the Stoma situation they would understand. After all Berry has saved my life allowing me to get out and meet new people.
I hope that you find someone that isn't bothered by Stan!
03-05-2012, 06:26 PM   #9
giftedbyadoption
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AMEN....
And Misty will look @ that smile karma baby is what I say ugh makes me a sad Panda too ....
As you can see I love Panda's mine is dancing @ the bottom lol...

You are not old Misty what are you 30??
Geez I am going to be 43 and I am not old... I mean I know my belly dancing is over lol.. and my bikini days ( but hell I am SO GLAD for that ) shhhhhh... dont tell hubby he loves hem I HATE them lol...

I know I have some confidence issues with hubby now but he could care less what is there he just wanted to do it lol...
We have been together since we were 15 so I know this is huge for him to see me with a whole new body honestly the hernia bothers me more then Road Runner
03-05-2012, 08:38 PM   #10
Nyx
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It's kind of funny that this convo just came up. A friend of ours that actually hasn't asked to see Oscar just asked us the other day what he looks like...my fiance said he looks like "a little brain with a dollop of poo in the middle"...lol My friend didn't want see him after that...I nearly died laughing!
03-05-2012, 08:48 PM   #11
QueenGothel
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Misty,
ARE You serious NOT you naked HUH.... thats awful WTH ugh... I hope you dumped him?
Man my husband drives me nuts wanting me naked lol...
I was emptying the other night and he wanted to brush his teeth EWWWWWWW true love I guess he said well its just part of you like when you are sitting on the toilet ummm... hello dear when I use to poo which was once every 60 days if I was lucky you did not brush your teeth lol...
lol, my daughter might be having surgery for a ileostomy soon. I am going to have to help her name it. Typically a man for woman and a woman for a man? It is like a car.
03-05-2012, 09:08 PM   #12
giftedbyadoption
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lol, my daughter might be having surgery for a ileostomy soon. I am going to have to help her name it. Typically a man for woman and a woman for a man? It is like a car.
I am sad your little girl will go through this
But I was just talking about this yesterday on another post .... how I am not sure if I am thankful I didnt as a child or angry
I lived 42 years in pain and the last 10 with a terrible time eating anything and would end up in bed in the couch after eating pretty much everyday.

I pray for your little one I was 2 when my tummy issues began god bless her
03-05-2012, 10:46 PM   #13
QueenGothel
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Thanks for the prayers. I'll take them. Doing a lot of research on here about stomas. Seems like a way better situation then beingin cronic pain for a lifetime. Hoping it is UC and Crohns is not hiding in her guts somewhere. Take care.
03-05-2012, 10:54 PM   #14
giftedbyadoption
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Thanks for the prayers. I'll take them. Doing a lot of research on here about stomas. Seems like a way better situation then beingin cronic pain for a lifetime. Hoping it is UC and Crohns is not hiding in her guts somewhere. Take care.
Me too....
I didnt have crohns I had I had IBS and colonic inertia/ Colonic Dysmotility.....
So it would have helped me to have it as a child.
Keep us posted ...
03-06-2012, 01:50 PM   #15
Misty-Eyed
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Misty is one hot piece of ass and I'm positive lots of peeps want to see her nakie. Just putting that out there!

But no, no one wants to see mine including my bf!
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03-06-2012, 02:04 PM   #16
Terriernut
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"You are not old Misty what are you 30??"

30? More like almost 50, but thank you!

And Michelle...you are very sweet!!! And I'm afraid that Ollie is so big again now that nakedness would frighten anyone!
03-06-2012, 02:18 PM   #17
giftedbyadoption
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Misty is one hot piece of ass and I'm positive lots of peeps want to see her nakie. Just putting that out there!

But no, no one wants to see mine including my bf!
thats nuts your BF should silly man
03-06-2012, 02:23 PM   #18
Misty-Eyed
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Misty.. You forget that men mainly look in another area!!!

Lizz.. No, he's not. He doesn't mind my bag at all but seeing my stoma is something entirely different. He didn't want to see my colonoscopy pics either!! I'd rather he tell me he doesn't want to see it than get freaked out by looking at it.
03-06-2012, 02:24 PM   #19
Terriernut
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BF are intimidated by stomas generally speaking!
And Michelle is HOT. But I bet BF wants her all well first.

Stomas are trash talkin, givin it shit large, big men on the block sorts. Mostly, they should be covered up. We wouldnt want them to get MORE attitude after all!
03-06-2012, 02:28 PM   #20
giftedbyadoption
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Misty.. You forget that men mainly look in another area!!!

Lizz.. No, he's not. He doesn't mind my bag at all but seeing my stoma is something entirely different. He didn't want to see my colonoscopy pics either!! I'd rather he tell me he doesn't want to see it than get freaked out by looking at it.
Ya I guess.... has he seen you deliver a baby yet?? LOL... because once thats seen a stoma is a piece of cake my hubby says. Or Sinus surgery he said , that poor many saw me go through 5 sinus surgery's and and 10 feet of packing to see all that packing come out and all my sinus inurts I guess he figures a small brain is nothing he thinks the stoma is a mini brain lol...

My son was to big for me and when I pushed him out my tail bone just snapped so he has seen it all and he is a very squeamish man to had to put his head between his legs so he wouldnt faint before he cut the cord MEN.... big chickens they are ....
03-07-2012, 10:47 AM   #21
AlliD511
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Nope, my folks and SO have seen my stoma (Jace - which means Healer) but that's about it. Most of my friends know about Jace but they're pretty respectful about him, I'd probably show him if they asked! But in general, most people don't even notice.

Misty, I'm sure you'll find that guy who doesn't mind your stoma, I just know he's out there!
03-07-2012, 11:48 AM   #22
Misty-Eyed
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Ya I guess.... has he seen you deliver a baby yet?? LOL... because once thats seen a stoma is a piece of cake my hubby says. Or Sinus surgery he said , that poor many saw me go through 5 sinus surgery's and and 10 feet of packing to see all that packing come out and all my sinus inurts I guess he figures a small brain is nothing he thinks the stoma is a mini brain lol...

My son was to big for me and when I pushed him out my tail bone just snapped so he has seen it all and he is a very squeamish man to had to put his head between his legs so he wouldnt faint before he cut the cord MEN.... big chickens they are ....
lol noooo I am childfree! I'd have to have a c-section with all my problems down there anyway! But wow, your husband is a brave man! And so are you for going through that! Thumbs up to you both!
03-07-2012, 11:52 AM   #23
Misty-Eyed
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Misty, I'm sure you'll find that guy who doesn't mind your stoma, I just know he's out there!
Not sure if you were refering to me or the other Misty, but I am very happy with the guy I have right now, even if he doesn't want to see my stoma. He sat in the hospital for over 9 hours by himself when I had my op and he drove nearly an hour to see me everyday while I was in hospital. He also takes time off work to take me to my appoinments and lets me cry mascara on is cream jumpers when I get bad news. He may not want to see my stoma but he's still a keeper.

Oh, and once he came for a walk with me up the ward till I had blood dripping down my leg. He dealt with that pretty well considering, getting me towels to wipe it with! Haha!
03-07-2012, 04:50 PM   #24
giftedbyadoption
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Pretty SURE she meant Misty you are Michelle correct but Misty eyes??
He sounds great
And honey if you can do the stoma surgery a C-section is nothing
03-08-2012, 03:20 AM   #25
kossy
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I can't really recall anyone wanting to see Jeb, he's a handsome fellow, I don't know why anyone wouldn't want to see him. Frankly, I am mad that no one has asked! My wife isn't scared of him. She usually comes into the bathroom while I am changing him and hang out with me. What a great way to hang out on a Saturday night for her, huh?
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03-08-2012, 01:54 PM   #26
Ang
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Didn't know we should name them ... Dh is still embarrassed about his. I find it fascinating, haven't had a change to properly examine it, the nurses get a little peeved everytime I open the sheets and start examining their patient lol! I did promise the kids they can put stickers on dads bag everyday when he comes home!
03-08-2012, 02:01 PM   #27
Terriernut
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Ang, I think stickers on the bag is a FAB idea for the kids! Brilliant!
03-08-2012, 02:08 PM   #28
Ang
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Ang, I think stickers on the bag is a FAB idea for the kids! Brilliant!
Thanks, I am trying to make this experience a positive one so if my son has his removed there are no negative associations.
03-08-2012, 02:46 PM   #29
Terriernut
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Not sure if you were refering to me or the other Misty, but I am very happy with the guy I have right now, even if he doesn't want to see my stoma. He sat in the hospital for over 9 hours by himself when I had my op and he drove nearly an hour to see me everyday while I was in hospital. He also takes time off work to take me to my appoinments and lets me cry mascara on is cream jumpers when I get bad news. He may not want to see my stoma but he's still a keeper.

Oh, and once he came for a walk with me up the ward till I had blood dripping down my leg. He dealt with that pretty well considering, getting me towels to wipe it with! Haha!
Michelle, you have a 'Keeper'!!!! What a guy!
03-08-2012, 03:46 PM   #30
giftedbyadoption
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I can't really recall anyone wanting to see Jeb, he's a handsome fellow, I don't know why anyone wouldn't want to see him. Frankly, I am mad that no one has asked! My wife isn't scared of him. She usually comes into the bathroom while I am changing him and hang out with me. What a great way to hang out on a Saturday night for her, huh?
lol...
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