Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » Steroid Enema Tricks?


 
03-07-2012, 01:37 AM   #1
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Steroid Enema Tricks?

Rowan has just been prescribed this form of enema. Any clues as to how to give this to a small child with the least amount of trama? Please respond quickly am supposed to give it in the morning.

It is not foam but a liquid enema.
03-07-2012, 07:22 AM   #2
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
No idea...we did the cortifoam. It bothered her a bit but, like everything else, she got used to it. Hate how that works. Good luck in the am...hoping Rowan tolerates it well and that it works wonders!
__________________
Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-07-2012, 07:24 AM   #3
dannysmom
Forum Monitor
 
Join Date: Oct 2010
Location: NY

My Support Groups:
I never did this ... but googled a few sites. I'd want to go with lying on her side, on a bed (with towels) and watching TV or a movie for distraction. Good luck!
__________________
Jeanne
Mom to Danny (16), sick since Dec 2008 but current diagnosis uncertain.

(Danny's story)
03-07-2012, 09:45 AM   #4
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Thanks Jeanne, I did what you said she is laying on her side in the bed now. It wasn't so bad. After the traumatic Canasa suppositories we used to have to do every night this was kinda easy. Knocking on wood...
03-07-2012, 02:24 PM   #5
nitty
Senior Member
 
nitty's Avatar
 
Join Date: Dec 2011
Location: United Kingdom

My Support Groups:
Just make sure that's it's the left side she is lying on, then some will spread along to the sigmoid colon.

Unless prescribed otherwise, I would give the enema as she goes to bed to prolong retention as much as possible. The only reason, I think, for not doing this would be if it leaks out and disturbs her sleep overnight.

Please note - I'm not speaking from personal experience of these (although I do follow this routine with suppositories), but I did used to administer other types of enemas when nursing years ago.

Good luck!
03-07-2012, 03:25 PM   #6
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
I didn't even think of left or right. But she was on her left. They told me to give it in the morning bc it would keep her up at night. None leaked out and it all was absorbed. Thanks for the info. Luckily the bed she sleeps on only would be comfy watching tv if she were on her left side.
03-08-2012, 02:57 AM   #7
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Sorry I am late to this Mary but it is good to hear all went well!

I too would have chosen the left sided position. Just one other tip, sometimes with children the enema can be easier to insert if you get them to push down like they are going to poop.

Good luck hun, I hope all continues to go smoothly. She surely is a champion, bless her.

Dusty.
__________________
Mum of 2 kids with Crohn's.
03-08-2012, 06:56 AM   #8
Lisa
Adminstrator
 
Lisa's Avatar
 
Join Date: Apr 2010
Location: New York

My Support Groups:
Glad it went well...another trick is to put a small pillow or folded towel under the hip to raise the bum.....

Kids do surprise you sometimes with what they put up with with no or little complaints!
__________________

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
03-08-2012, 11:12 AM   #9
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Well she was up 10x with prolapse due to gas all night long. Gave her the enema this morning. Screaming pain. The nutritionalist requested two days ago that I increase rowans milk to lactose free whole milk 16 oz a day. And to stop using white bread and use whole grains. Now she has excruciating gas pain. The milk was for the fat. The grain for the prolapse. I am cutting back her milk today to see if it helps. This stinks.
03-08-2012, 11:30 AM   #10
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I'm sorry little Rowan (and you) had another difficult night! Poor thing! I hope she feels a bit better today.
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
03-08-2012, 12:15 PM   #11
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Still having prolapse this morning. I am thinking LDN. Trying to get whole of GI for advice.
03-08-2012, 12:57 PM   #12
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
Hoping she is feeling better soon...poor Rowan
03-08-2012, 02:03 PM   #13
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
They don't support LDN in pediatrics. But we will give her other drugs. Even though they are doubting remicade/Imuran to work for her. Grrr!
03-08-2012, 02:28 PM   #14
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Awe Mary I'm so sorry for you and Rowan

__________________
~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
03-08-2012, 03:19 PM   #15
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
So sorry she is suffering like this. No one supports the LDN it seems you have to fight for it if you want to try it.
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
03-08-2012, 07:07 PM   #16
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Oh Mary, when oh when are you guys going to get a break.

Thinking of you both and keeping you in prayers.

Dusty.
03-08-2012, 07:13 PM   #17
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Hmmm, about the LDN. Ask them why they don't support LDN in paediatrics but they support the use of biologics in under 6 year olds when the literature states it is not recommended for use in this age group.

If they say it is because no studies exist then that is the reason the biologics aren't recommended for under 6 either. What's good for the goose is good for the gander!

Dusty. xxx
03-08-2012, 07:49 PM   #18
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
I was just reading up in it on the ldnscience.org I defiantly want to try it. I guess I could just go to another doctor like the other people did. Just scared to go to far from my bubble ya know.

She hasn't ate a bite beyond the 1/2 pc of toast she had this morning. she isn't bleeding but is still in a lot of pain. Now has to wear pull up bc she poos with farting. Poor kid.
03-09-2012, 08:46 PM   #19
imaboveitall
Senior Member
 
imaboveitall's Avatar
 
Join Date: Feb 2012
Location: Statesville, North Carolina
Hey Mary, just checking on Little Rowan, no relief yet it seems, I'm sorry to read this.
No words that will help, just love and understanding.
__________________
VIOLET AGED 16

Current tx:
Pediasure PEPTIDE 1000 cals nightly via NG tube
Imuran 150mg
Humira


Failed and/or past tx:
Remicade
methotrexate
prednisone
Flagyl
Pentasa
atenolol
Florinef
cyproheptadine
Humira
03-10-2012, 10:46 PM   #20
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Yesterday Rowan had a horrible day. She didn't get out of bed. She had kept running to the bathroom. Prolapse every time. I went through a box of 50 gloves in 3 days. She kept just leaking into the pull up which she never does. She cries when this happens. My DH and I haven't been sleeping much at all. She screams when she has pain won't stop until she goes to the bathroom and doesn't evacuate but prolapses and tells me to put it back in. Sorry tmi. I figured out if I just change her diaper (switch bc of cost) the prolapse doesn't happen. So idk if this helps but it is showing her that just bc her belly hurts doesn't mean she has to go to the bathroom. About 3x a day we let her use the toilet after meals and her swig of miralax. Hoping she is getting better.

I got her to drink a shake unfortunatly she threw it up bc of her iron pill. Need to wait longer after eating to feed it to her. But at least I can start and soon be adding vitamins and protein to it one teaspoon at a time.

Rowans fundraiser last night was wonderful. It was a huge turnout. There was a 40" flat screen silent auction and the winner wrote Rowans name on the ticket. We immediately donated it to charity. A friend of ours runs Sabrinas Voice foundation (formerly Sabrina Black Foundation) who help by adopting a cancer patient by pay medical bills for people suffering from any form of cancer. They are having the first fundraiser soon. It was a good night.

Rowan had a bad night though so I came home to a child suffering in pain. I really hope she starts getting better. She is eating more. Not really playing. Doing exercises on the couch/bed. (she hates me during this time) Pelvic thrusts help the prolapse so we are doing them anyway. I am doing this to force a kegel to strengthen the rectum muscle. Poor kid.

Take care,
03-10-2012, 11:52 PM   #21
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I can't imagine how exhausted and frustrated your whole family must feel. Keeping Rowan in my prayers that she begins to see some improvement very, very soon!
03-11-2012, 12:02 AM   #22
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Oh Mary, I don't know what to say except that I hope Rowan is able to find peace and relief very, very soon, bless her...

Mary, you are doing such a brilliant job! Rowan is very lucky to have you as her Mum.

It is fab to hear that the fundraiser went so well and what a kind and wonderful gesture that you donated the TV to charity. Kudos to you Mary.

In my thoughts and prayers,
Dusty. xxxxxxxx
03-11-2012, 01:29 AM   #23
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Is it normal for her to have yellow diarrhea? I this a sign of something that you guys know of? Worried. It burns her skin. Using Vaseline now that we are using diapers. Going to get witch hazel pads to wipe her first thing tomorrow. I am going to buy stock in them. Worried it is a sign of infection. Back to bed it is 3:30am. you think we need flagyl?
03-11-2012, 12:56 PM   #24
imaboveitall
Senior Member
 
imaboveitall's Avatar
 
Join Date: Feb 2012
Location: Statesville, North Carolina
Oh Mary...
Yellow means food is moving through her very quickly, could also mean high fat content if it is "foamy" and yellow (steatorrhea) which means she is not absorbing, you may want to consider the NG tube w/peptide formula just for nutrition temporarily.
It sounds like she is worse, not better, I'd get her to the doc tomorrow.
Much love.
P.S. Desitin is better than Vaseline, the original kind, apply liberally.
03-11-2012, 08:24 PM   #25
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
It is brown this evening. I am sure it was moving too quickly. I am still giving her the miralax. Ugh. But have cut way down to two gulps of it an hour after meals. We are in constant communication with her GI. He said the ng tube will not help bc she has UC. She will pass that food even quicker bc it is all liquids. Better off with TPN and food if needed... He said to keep feeding her everything, especially fatty foods, like ice cream and milk (lactose free). She needs 1500 calories a day. She is eating more today than any other day. Still having the urge to go poo all day long.

Can't use desitin bc of the prolapse. Zinc will burn if it gets in her bottom. Vaseline only. I still bought the witch hazel moist wipes for wiping her bottom though.
03-11-2012, 08:48 PM   #26
imaboveitall
Senior Member
 
imaboveitall's Avatar
 
Join Date: Feb 2012
Location: Statesville, North Carolina
Poor baby. Prolapse...she should NOT be having to go through this daily.
(stating the obvious)
I was thinking the formula would be absorbed mainly in the small intestine, just for nutrients, I know it doesn't help inflammation with UC.
What's the next step of the plan?
03-12-2012, 09:41 AM   #27
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Basically the are waiting for her next Remi infusion. Sucks. If the Remi doesn't work they want to remove the colon. I hope to have a LDN window.
03-12-2012, 02:27 PM   #28
littlemissh
Senior Member
 
littlemissh's Avatar
 
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
It is brown this evening. I am sure it was moving too quickly. I am still giving her the miralax. Ugh. But have cut way down to two gulps of it an hour after meals. We are in constant communication with her GI. He said the ng tube will not help bc she has UC. She will pass that food even quicker bc it is all liquids. Better off with TPN and food if needed... He said to keep feeding her everything, especially fatty foods, like ice cream and milk (lactose free). She needs 1500 calories a day. She is eating more today than any other day. Still having the urge to go poo all day long.

Can't use desitin bc of the prolapse. Zinc will burn if it gets in her bottom. Vaseline only. I still bought the witch hazel moist wipes for wiping her bottom though.
Have you tried drapolene? It is really good for severe ulcerated nappy rash as it is very soothing and so shouldn't sting. It is a sloppyish consistency so shouldn't hurt when applied.

Poor Rowan , I really feel for her, but also you as a mum as it must be just so hard to be strong for her but also look after yourself.
__________________
Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
03-12-2012, 02:27 PM   #29
imaboveitall
Senior Member
 
imaboveitall's Avatar
 
Join Date: Feb 2012
Location: Statesville, North Carolina
God love you guys...
03-12-2012, 07:56 PM   #30
QueenGothel
Senior Member
 
QueenGothel's Avatar
 
Join Date: Oct 2011
Location: Michigan, USA
Looked up the drapolene and it says in a big warning FOR EXTERNAL USE ONLY. The doctor fears that if she prolapses while having cream on her butt it will get inside when I have to put a glove on and push it back it.

I went against the GIs recommendation today and started Rowan back on acidophilus and totally knocking on wood here but she hasn't been complaining ever since. Weird huh... BMs were nice and brown too. Still have the prolapse but is not having the urge as much today. It might be the steroid enemas finally working too. Idk why the doc told me no to use the acididophilus but I couldn't stand to see her having such bad gas pain anymore. It immediately took it away in an hour. Crazy.

Praying for a good nights sleep for all of us. . Skipping miralax tonight and continuing today's trend tomorrow.

Come on remicade do your thing.
Reply

Crohn's Disease Forum » Parents of Kids with IBD » Steroid Enema Tricks?
Thread Tools


All times are GMT -5. The time now is 06:25 AM.
Copyright 2006-2017 Crohnsforum.com