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Crohn's Disease Forum » Support Forum » Undiagnosed Club » What have doctors said to you??


 
04-17-2012, 10:19 AM   #61
Dazzafarr
Senior Member
 
Join Date: Apr 2012
Location: Umina, New South Wales, Australia

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its awesome to see people here that are on youtube raising awareness.
Sunshine smile - I couldnt stop smiling at your video!!!

http://www.youtube.com/watch?v=24f5u...5&feature=plcp

question - if they do a colonoscopy and gastroscopy and dont find crohns, how do they find it?
04-18-2012, 03:09 PM   #62
IAmTheWalrus
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Join Date: Apr 2011

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my said to go check out the internet. cause you know there all that releable info on the internet
Jesus Christ, really? When I first diagnosed my GI said DO NOT go near the internet with regards to Crohn's, medication etc, I should talk to either my IBD nurse and/or GP.

He was telling me that one his newly diagnosed patient of his was "researching" Crohn's on the web and rang him in hysterics, crying, saying that she read that the majority of people with CD/UC don't "make it past the six month mark" ..... as in die....

__________________
28 y/o male from Dublin, Ireland, Dx with Crohn's Colitis in January 09.

Current Meds: Remicade, Imuran.

Risk/Benefits of treating Crohn's. Link below

http://www.ccfa.org/assets/pdfs/risk...transcript.pdf
04-19-2012, 01:53 AM   #63
Chrismac
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Join Date: Apr 2010
Location: Newcastle Upon Tyne, United Kingdom
I think the only reliable internet source is here, right?

My doctor told me I was "born to be awkward". Turns out he was a rubbish doctor and didn't really know what he was doing. He's now retired and owns a Whisky distillery in Scotland.
__________________
=====

Dx. Sept '01 - Undefined Colitis
Dx. Feb '09 - Crohn's Disease

Currently taking:
Balsalazide 4500mg
Azathioprine 150mg
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