Share Facebook
Crohn's Disease Forum » Support Forum » Vent Away » Having a bit of a down day at the moment.


03-19-2012, 12:47 PM   #1
tlc-x
Undiagnosed Teenager
 
tlc-x's Avatar
 
Join Date: Dec 2011
Location: England
Having a bit of a down day at the moment.

It doesn't help that I barely slept last night.

Feeling down and wanted to vent a bit.

We rang the hospital up today about my MRI scan results - the person who reads the scans has got my results, but my specialist hasn't read it yet. They've had the results for days now, just waiting on the GI now to read it and get in contact. Now that I know someone has my results, i'm getting a little impatient haha. I wanna know what my future holds!

But yeah, i'm down today because I can't stop thinking about a family friend. She's got ovarian and liver cancer. Last stage of the cancer. Days.. weeks.. months. We don't know but it's going to happen. I really look up to her and she's one of the nicest people I know and she's one of my mums best friends. I can cry about it obviously, but I can't get upset over it around mum because I don't want to upset her. Mum cries over it sometimes and I stay strong and hug her whilst she's upset. I cry on my own because I don't want to upset her.

It's beginning to take its toll that I have nothing to stop the pain. Hot showers/baths, hot water bottles, reflexology, pain killers, tigerbalm, massaging my tummy, going to the toilet and letting it out so to speak. I can't remember the other things i've tried, but nothing is working. I understand that they're testing me at the moment to find out why i'm so poorly, but I would like some relief now. Not the doctors fault but it's frustrating still. Although one doctor said to wait until i'm in so much pain I get taken to hospital. Don't really want to wait for that though.

I seem to get worse week by week. I would like some time off from this illness.. holiday time from being poorly!

I'm not sleeping much and got stress going on at the moment - college are still being rubbish. I think the stress is causing a weird chest pain - nothing serious but I get it sometimes if I get stressed.

I have coursework due in a couple of days and i'm poorly and can't do it in time. I'm not allowed an extention as the exam board won't allow it and the teacher says I should be working at home and that i'm not as ill as my family tell them.

I don't need the stress here because it will make me worse so I am trying to keep calm about it and just try and not think about it.

I'm having one of those moments where I feel like no one is understanding me - yeahh, teenager cliche statement!

I have so many plans for when i'm better and i'm literally so excited - just gotta get over this part. Just trying not to get my hopes up at the same time.

Okay, vent over. But if anyone has any other tips to help the pain, pleaseeee tell me.

Oh almost forget - I am know longer doing physiotherapy as i've improved very quickly with my exercises that I am now being 'promoted' to the gym scheme. Kind of stressing about that - I can barely get out of bed let alone going on a running machine for ages!
03-19-2012, 04:57 PM   #2
mickey
Senior Member
 
Join Date: Dec 2011
Location: Illinois
It may not seem like you want to work out, but perhaps that will help you de-stress. Getting out the stress will make a significant difference in your health. you may be retaining the stress in your belly. worth a try! Feel better!
03-19-2012, 04:59 PM   #3
KWalker
Moderator
 
KWalker's Avatar
aww, I hope everything works out for you! Hang in there and things will get better
__________________
Diagnosed:
Age 2 (1992)

Previous Meds:
Prednisone
Remicade
Humira
Methotrexate (oral)
Methotrexate (injections)
Cipro
Flagyl

Current Treatment:
200mg Simponi, Psyllium
03-22-2012, 11:30 PM   #4
tots
Senior Member
 
tots's Avatar
 
Join Date: Feb 2012
Location: Austin, Texas

My Support Groups:
Try and put your down day into this catagory- your meds and body are working so hard to heal your body. It drains you physically and emotionaly but it is helping!

Easier said than done I know but its a step in the right direction!

Feel better soon.
__________________


Diagnosed= 1992 and again Feb 2012 Confirmed with
CT enterography May 2015 !!


Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


:
03-23-2012, 05:33 AM   #5
tlc-x
Undiagnosed Teenager
 
tlc-x's Avatar
 
Join Date: Dec 2011
Location: England
I'm not on any medication > I've been sleeping so much. I'm happy again at the moment, but getting a bit stressed with things not going how i'd like it. It can't be helped, but it's still grrr! But my body is trying to help Thank you.
03-23-2012, 08:38 PM   #6
mickey
Senior Member
 
Join Date: Dec 2011
Location: Illinois
If you are sleeping excessively, you may want to check your lower eyelid to be sure it is bright red, not light pink/whitish. That would be a sign of anemia (light pink/whitish look).
03-24-2012, 06:18 AM   #7
tlc-x
Undiagnosed Teenager
 
tlc-x's Avatar
 
Join Date: Dec 2011
Location: England
My lower eyelid looks alright to me. Probably just sleeping all the time because i'm trying to fight something in my body.
03-24-2012, 05:39 PM   #8
mickey
Senior Member
 
Join Date: Dec 2011
Location: Illinois
feel better! I had that problem last summer....finally checked with doc after 2 months of excessive sleeping (i.e., walk dog, sleep for 2 hours, walk dog again, sleep again....)..ugh! Anyway, it ended up being anemia! I thought my pastie white look was because of lack of sun, because I was inside sleeping.....oops!
03-25-2012, 04:06 AM   #9
tlc-x
Undiagnosed Teenager
 
tlc-x's Avatar
 
Join Date: Dec 2011
Location: England
Ah! They've done blood tests and they've not shown anything, but yeah, I went out for an hour and sleep for two/three. It's so annoying. I'm also pasty white. My doctor knows I sleep alot and told me I had CFS, but no idea if i'm still diagnosed with that or undiagnosed again.
03-25-2012, 06:15 AM   #10
maria
I love you God.
 
maria's Avatar
 
Join Date: Jan 2012
Location: van, Washington
Ok. Try this. Go and get some steak or a juicy hamburger. (helps with iron) Try a short tan in the tanning bed. (Lack of iron and vitamin d = depression,sadness,lonelyness,tired.) Try this every other day. Then the 2nd week add a little excercise like a short walk after eating the red meat. Eventually you should feel a little better and don't forget at least 8 glasses of water and daily vitamins. Just remember god loves you very much just ask him what you want and need and then try your hardest to let go and let him deal with it because when you least expect it he will come through for you.
__________________
Ileostomy from UC but doctors are now thinking crohns. Since Feb 14, 2011


I want to find a friend here in vancouver, washington with a stoma... I feel lonely.
Trying to stay gluten free.
03-25-2012, 05:47 PM   #11
elizamt
 
Join Date: Feb 2012
Location: South Carolina
It may not seem like you want to work out, but perhaps that will help you de-stress. Getting out the stress will make a significant difference in your health. you may be retaining the stress in your belly. worth a try! Feel better!
Totally agree. All of my doctors say that the best way to stay as healthy as possible is to minimize the stress in your life. I think that's kind of easy for other people to say, but hard to actually live. I'm in law school, which is probably the most stressful environment you can be in. Note: lawyers/law students have the highest rates of depression, alcoholism, and suicide of any profession. They told us that during orientation, ha. I'm lucky enough to get the added stress of being sick and sometimes it really effing pisses me off. Sometimes after a really terrible day, I'll go to the gym for a few hours and take out my anger/frustration/sadness during my workout. For me, running is the best de-stresser (and a big f*** you to everything going on), but on days when I don't feel as well, I'll do the elliptical or walk on a relatively high incline. It doesn't completely alleviate things, but it might help.
__________________

Dx: May 2011
Surgery: Ileocecal resection May 2011 (~13 in)
Meds: 500mg Pentasa 4x/day
B12 Injections 1x/month
Iron 45 mg for Anemia
Vitamin D 1000 mcg
Thinking about starting Remicade or Humira
03-25-2012, 10:18 PM   #12
mickey
Senior Member
 
Join Date: Dec 2011
Location: Illinois
Glad to hear you are getting a release from working out. Keep that up as much as possible to help you alleviate the stress.

I would tell your doc about the excessive sleep and have them recheck the results of your blood tests. Perhaps they made a mistake and did not read them correctly It is so odd that you are as exhausted as that when it sounds like you are a strong person (law school, working out; you have stamina!). It's okay to be pushy; it's your health!
Reply

Crohn's Disease Forum » Support Forum » Vent Away » Having a bit of a down day at the moment.
Thread Tools


All times are GMT -5. The time now is 09:01 AM.
Copyright 2006-2017 Crohnsforum.com