03-20-2012, 07:36 PM   #1
Join Date: Mar 2012
Location: Boston, MA

Hi all,
I am new to all this and I am trying to implement diet changes STAT. I am lactose intolerant, so before my Crohn's Dx I was buying lactose free ice cream and milk. Now, I am trying to go non-dairy, not just non-lactose. I have found I am now eating a lot of soy (soy milk on cereal, soy ice cream, soy yogurt). Anyone know if soy is safe for Crohn's or does it cause flare ups? I sure hope not or I am totally at a loss for what to eat from here. Thanks!
Living in the 'burbs of Boston
Mama of two tiny humans
Crohn's Dx, March 2012
Terminal Illeum thus far...
Prilosec 1/day
Pentasa 2/3x day
Still trying to make sense of all the supplement options
Hating my guts currently
03-20-2012, 08:24 PM   #2
Join Date: Jul 2011
Location: atlanta, Georgia
I've also recently gone non-dairy, and I've been switching it up a bit so that I'm not eating all soy products -- mostly because there are so many other delicious things out there! I haven't found much about soy and Crohn's, but I do know that soy contains isoflavones which mimic estrogen in the body. There was some evidence that women who are at high risk for breast cancer should avoid soy, but according to wikipedia the evidence is now mixed.

If you want to switch it up, so far I've discovered almond milk (the Trader Joe's vanilla unsweetened that's in the dairy case is delicious!) and also yogurt and ice cream made from coconut milk.

I hope Boston is treating you well! I grew up in the burbs and miss it quite a bit
Crohn's since 1998
Resection in 2003 due to a pill cam gone wrong!
6-mp for 13 years, now on Imuran 125 mg, Pred, and Remicade...counting down to just Remi and no more pills!!
03-20-2012, 10:04 PM   #3
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
I'm not a fan of soy since the vast majority is GMO and chock full of all kinds of systemic pesticides and other poisons. Organic soy? If you don't correlate any issues, then MAYBE. The only study I could find did showcase that antigens to soy have been found in people with Crohn's Disease and other forms of colitis so take that as you will.
It's good to be back
03-20-2012, 11:10 PM   #4
Senior Member
Join Date: Dec 2011
Location: Illinois
Not sure of your age, but it is suggested that you reduce soy as you get older. You may want to try almond milk, rice milk...switching alternatives to ease off soy.
03-23-2012, 06:54 PM   #5
Senior Member
Dunbar's Avatar
Join Date: Jul 2010
Location: Prince George, British Columbia

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I switched from soy to rice when I noticed I was feeling yucky(medical term that)this was before my Crohns diagnoses . My daughter had all sorts of abdomin/female issues that went away when she quit soy of any kind. There is brown rice milk, white rice milk, high sugar, low or no sugar, almond milk, hemp milk. All have their own particular taste, so try a few. Brown rice and hemp have the most protein. The almond comes in chocolate too. The rice milk I get in original for cooking and vanilla for drinking.
Forgive everyone, everything
03-24-2012, 07:18 PM   #6
GFinDC's Avatar
Join Date: Mar 2012
Location: Washington, DC
Soy is one of the top 8 food allergens in the USA. I once read a research article about soy interfering with the proper development of intestinal cells in rat guts. I can't find it now but it was enough to steer me away from soy.

Soy intolerance is not uncommon among celiacs too. I have celiac and I can't eat soy without having symptoms. If you do a little searching on soy and intolerance or allergy or on intestine you will find hundreds of links talking about the negative effects of soy on the digestive tract.

I think soy should be illegal in foods.
03-24-2012, 07:22 PM   #7
Join Date: Mar 2012
Location: Boston, MA
Thanks everyone! I am going to Whole Foods and Trader Joes tomorrow and I am going to go the almond milk/coconut route instead. There is so much out there with soy in it, it is going to be tricky but I think there are a lot of other good options.
03-24-2012, 10:42 PM   #8
Senior Member
Join Date: Jun 2011
Location: Edmonton, Alberta

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I use almond milk without problems. Cocnout milk and I do not get along.

I stay away from soy as I have hypothyroidism and soy will interefere with thyroid function.
03-25-2012, 06:18 AM   #9
Join Date: Mar 2012
Location: Boston, MA
kllyeve, good to know as they are looking at thyroid issues with me as well.
03-26-2012, 01:10 AM   #10
Senior Member
hugh's Avatar
Join Date: Oct 2011

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i would only eat fermented organic soy products (Tamari, Miso, Tempeh)
04-01-2012, 10:12 PM   #11
Senior Member
Join Date: Dec 2011
Location: Illinois
I was recently told coconut milk on a daily basis will also help digestion. Worth trying!
04-10-2012, 04:01 PM   #12
New Member
Join Date: Mar 2012
Location: randallstown, Maryland
Soy milk I heard in moderation is ok. After some research though I found that eating too much soy can lead to elevated levels of estrogen with irreversible affects. Once I read that I haven't touched it since. I drink coconut milk now and haven't had any problems so far.
04-10-2012, 06:35 PM   #13
Forum Monitor
Mountaingem's Avatar
Join Date: Jan 2010
Location: California

My Support Groups:
I find soy very irritating to my tummy, plus some women with Crohn's are at a much higher risk for fibroids and early hysterectomy (I was 32). My surgeon recommended that women in 20's-30's with Crohn's should avoid soy.

I've had really good sucess with Almond Mild and Coconut milk, my tummy likes the unsweetened versions best. Hope this helps!


Current Meds: Cimzia, Methotrexate, Prevacid, Sertraline, Nortryptaline, Prednisone, Atenelol
04-13-2012, 01:36 AM   #14
Join Date: Nov 2010
Location: Abbotsford, British Columbia
I always thought it was just me! I didn't know that soy allergies went along with Crohn's. I have a huge soy intolerance and have been using rice, almond and coconut like for a long time now.
I've also heard that soy can build up in your system. Don't know how true that is.

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