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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Other autoimmune system disorders


View Poll Results: Do you have any other autoimmune disorders
yes, I do 91 59.87%
no, I don't 32 21.05%
not sure 29 19.08%
Voters: 152. You may not vote on this poll

 
05-30-2012, 01:24 AM   #31
Skycruiser
 
Join Date: May 2012
Location: Washington
Deleted.

Last edited by Skycruiser; 07-31-2015 at 01:07 PM.
06-05-2012, 03:38 AM   #32
rh4021
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Join Date: Jun 2012
Location: Eureka, California
My gi dr says she sees a lot of autoimmune diseases in 3s lately.yes we are predisposed to other autoimmune diseases once we have one. I was dx with celiac disease 7 yrs prior to my crohns and maintained a gluten free diet throughout, that's why it was frustrating. She continually checks my thyroid, as she thinks that's next.
07-24-2012, 08:54 PM   #33
Stacey
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Location: christchurch, New Zealand
I was diagnosed with psoriasis at 17 the crohns at 22, have it on my joints though is spreading more now in other places.. hoping that azathioprine that i have just started will help clear it up... im sick of answering to people.. when they go "ouch did you fall over"??
07-25-2012, 07:49 AM   #34
CLynn
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Location: Missouri
Stacey, I know exactly what you are saying. Hate answering people too. "What happened to your knees?" and etc. Little kids asking I can handle, kids are just curious and honest.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
07-25-2012, 03:42 PM   #35
sickinlk
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yes i do.
I have ulcerative colitis and AI pancreatitis.
I was dxd with uc last June and in the process of being dxd with AI pancreatitis.
Sounds weird i know. My GI says it is but second guesses himself and wants to send me to some more specialists.
Im only 33.
What more AI diseases will life bring?

Ju
07-26-2012, 05:33 PM   #36
Rossy
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Location: Dundee, Scotland, United Kingdom
Pancolitis, the reason I'm here I guess.
Aza gave me pancreatitis
Hypothyroidism
Raynauds, as a result of some vascular disorder.
Hiatius Hernia, maybe not autoimune but what the hell.

Hopefully I'll quit at that.
__________________
Pancolitis
2003


Just about hanging on to my Colon!
Mezavant xl
Pred (my back up)
Entocort (no longer works)
Azatrophine (gave me pancreatis - ouch)
07-27-2012, 02:10 AM   #37
sickinlk
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Pancolitis, the reason I'm here I guess.
Aza gave me pancreatitis
Hypothyroidism
Raynauds, as a result of some vascular disorder.
Hiatius Hernia, maybe not autoimune but what the hell.

Hopefully I'll quit at that.
hey, was just wondering is the pancreatitis chronic or was it an acute attack?
you sure have had it tough.

JU
07-27-2012, 03:45 AM   #38
Rossy
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hey, was just wondering is the pancreatitis chronic or was it an acute attack?
you sure have had it tough.

JU
Well its on my notes that I had it, induced by Aza which now gives me the problem that I'm running out of drug options (any drug similar to Aza can now not be used) also steroids use, i'm told, cannot be continued due to the adverse impact on my health..... I've since seen the stoma nurse, yikes what a prospect.
But back to the pancreatitis i think it must have been acute.
07-27-2012, 04:12 AM   #39
sickinlk
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Well its on my notes that I had it, induced by Aza which now gives me the problem that I'm running out of drug options (any drug similar to Aza can now not be used) also steroids use, i'm told, cannot be continued due to the adverse impact on my health..... I've since seen the stoma nurse, yikes what a prospect.
But back to the pancreatitis i think it must have been acute.
ouch poor you,
mine is chronic so im stuck with it and the treatment so far is steroids.
im in the same boat med wise. you'll see from my intro yarn earlier.
looks like remicade is next. have you tried it yet.
they say anyone on remicade should prepare themselves for surgery.
what a prospect is right.
Ju
07-27-2012, 04:49 AM   #40
Rossy
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ouch poor you,
mine is chronic so im stuck with it and the treatment so far is steroids.
im in the same boat med wise. you'll see from my intro yarn earlier.
looks like remicade is next. have you tried it yet.
they say anyone on remicade should prepare themselves for surgery.
what a prospect is right.
Ju
Ju, as bad as UC is, and at times its bad, the worst i felt was with pancreatitis so if you have that in chronic form, i really feel for you, its horrible!
Remicade was mentioned years ago when they were trialling it for UC but no I think the consultant was pretty much saying surgery rather than meds is the way forward, I however think differently so yeah my plan is just that if things dont improve.
07-27-2012, 05:08 AM   #41
sickinlk
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im in no pain atm. the steroids are doing their job there at least.
you Gi is a bit knife happy is he, lol
I'd def exhaust all med options b4 id consider a stoma.

Ju
08-03-2012, 08:48 AM   #42
723crossroads
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Location: USA

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I get hives that itch for 2 days then go away, also red patches that itch and never completely go away. Psoriosis on my scalp that itches. arthritis and fibromyalgia and myosis of the muscles.Also my eyes get red and irritated and feel like someone is stabbing them. Burning feelings on my feet and legs.Also too much bile acid. Take zantac 2xday and the cholesterymine is supposed to help that too.To all fo you out there suffering. We all need to pray for one another!

Last edited by 723crossroads; 08-03-2012 at 08:51 AM. Reason: Added someting else.
08-03-2012, 08:49 AM   #43
723crossroads
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Ju, as bad as UC is, and at times its bad, the worst i felt was with pancreatitis so if you have that in chronic form, i really feel for you, its horrible!
Remicade was mentioned years ago when they were trialling it for UC but no I think the consultant was pretty much saying surgery rather than meds is the way forward, I however think differently so yeah my plan is just that if things dont improve.
What does pancreatitis feel like and what are the symptoms?
08-03-2012, 02:32 PM   #44
Rossy
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What does pancreatitis feel like and what are the symptoms?
Pretty much doubled up with pain in the midrift, couldn't stand straight or lie flat, felt really quite sick, bad nausea and was told to stop taking Aza immediately. Quite different to any colon inflammation that i have experienced, much worse.
08-03-2012, 03:42 PM   #45
723crossroads
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Sounds horrible. I pray you won't experience that again ever!!!
08-03-2012, 05:31 PM   #46
nikimazur
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Join Date: Dec 2011
Location: New Jersey

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Ezcema/psoriasis, and food allergies since a toddler. Now possible RA or AS, waiting on blood tests to come back. And well obviously Crohns. My body likes to attack its self
__________________
Original Dx: April 2011


Crohn's, Traumatic Brain Injury, Autoimmune Hepatitis (May 2014)


Current meds:Bactrim DS, Azathioprine, Entyvio, levbid
Past meds: Pentasa, Lialda, Prednisone, Entocort, Asacol HD, Prilosec, Lomotil, Lotronex, Nexium, Myfortic, Humira




http://lifeinthetimeofuncertainty.blogspot.com
08-04-2012, 11:31 AM   #47
Jen
 
Join Date: Oct 2011
I was diagnosed with type 1 diabetes when I was 16.
And later was diagnosed with Crohns at 24.
08-04-2012, 11:37 AM   #48
CLynn
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Bless your heart Jen! I got diagnosed with Crohn's in my 20's, my husband got diagnosed with type I diabetes when we were 35. His older sister got it at the same age as him.
08-06-2012, 05:12 AM   #49
Annabelle21
 
Join Date: Jun 2012
Hi KD8286, I had to look up what Perniosis was, it was intersting, I had terrible chillblaims as a child and teenager, i thought it was always caused by the cold, but interesting, now i have crohns and small fibre peripheral neuropathy, you start wondering sometimes where it all began. I remember as a 12 year old having bad pains in my stomach, i was told i had a rumbling appendix... For years I had alot of issues and never got a diagnosis...

Last edited by Annabelle21; 09-17-2015 at 06:28 PM.
08-06-2012, 09:31 AM   #50
ZM1019
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Join Date: Jun 2012
Location: Florida
Mostly just allergies to a lot of meds and supplements/vitamins. I don't have any allergies to the usual indoor/outdoor/food things.

I do have problems with Amylase and hence digesting starch, abcesses without infections, blotches of dead skin that does shed correctly, cold feet and hands, low blood pressure because my blood is thick, occasionally clots of dead white blood cells in my blood, etc. Amylase deficiency causes all of that because it doesn't just affect digestion of starch, it controls absorption of dead white blood cells (which causes abcesses, thick blood, clots when it doesn't happen right) and shedding of dead skin. I was recently told I have Amylase in my blood so it's not being release correctly into the digestive tract for whatever reason that remains unknown. That long predates my Crohn's and probably was one of the things that tipped me into Crohn's.
08-08-2012, 11:06 AM   #51
jmariel
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Thyroid issues.
11-24-2012, 06:13 PM   #52
CantRemember
 
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Location: Buffalo, New York
Hashimoto's hypothyroidism since mid-20's (2 years and +60 lbs before diagnosed)
Crohn's colitis diagnosis at 38 (2008)
Interestingly, my mother was diagnosed with celiac disease about a year after my Crohn's and then added lupus last year. I feel like we are in an autoimmune race!
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Diagnosed with CD 2008 by my colorectal surgeon, but my GI will only call it IBD. ;-/

- Tapering from Prednisone after fall flare and starting mercaptopurine after summer of ASA meds (various) not helping. Currently taking 50 mg twice a day and (knock in wood) seems to be helping somewhat.
11-24-2012, 06:16 PM   #53
CantRemember
 
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Oh! I had not heard of Reynaud's as being autoimmune, but my mom and I have that one in common, which is not so easy to deal with in Buffalo, NY!
11-24-2012, 07:09 PM   #54
B Baker
 
Join Date: Nov 2012

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I have Trigeminal neuralgia 2006,
Myasthenia Gravis 2007 Graves Disease 2007 Vitiligo 2007
Crohns Disease 2008 Endometriosis 2008 PCOS 2008
Am 30 years old and hoping thats it now!!!
11-24-2012, 07:09 PM   #55
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Wow we're walking medical cases!! Lol
I have Crohn's, psoriasis, raynauds (my feet look like dead peoples when im cold lol), GERD,dry eye,& just waiting ontest results to see if i have Fibromyalgia or ME.

The list just keeps getting longer! Funny how they all blur into symptoms of everything!
We really all deserve a break from this auto immune crud
11-24-2012, 07:20 PM   #56
DAVID KINGHAM
 
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Location: England..Milton Keynes

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Now I'm on azathioprine, which raises the risk of skin cancer so I feel very reluctant going for the UV treatments. But its the only thing that helps. So I take the risk and hope for the best
I have been on azathioprine for over 10 years.I can't say for sure if it worked but i did feel it gave me more time between opps.Reason is i was taken off as my crohn's had miraculsly gone..lol.never goes!With in a year i was in so much pain that after a few months of tests it was confirmed that the crohn's has come back but also had done too much damage and my last hope was reamacade which isn't all iy's craked up to be.My advice is not matter how many extras problems we get,i believe that i wouldn't be here now without my meds.Even though at times i wish i wasn't but just hoping one day a cure will be found.Al my love and best for you
11-24-2012, 07:39 PM   #57
B Baker
 
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Totally agree madferrit!!
11-24-2012, 10:21 PM   #58
mbishop
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Join Date: Nov 2012
I picked up Rheumatoid Arthritis about 5 years after my Crohn's diagnosis. Left hand blew up like a balloon painfully around the knuckles, and other joints started to hurt. Humira has taken care of the RA fairly well, and does okay with the Crohn's.
11-24-2012, 11:38 PM   #59
AmandaMB
 
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Location: Cape Girardeau, Missouri

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I also have an autoimmune disorder. I have eczema, psoriasis, and ichythiosis vulgarus (which are all basically skin disorders)....but also something that I havent seen anyone else mention on here yet, I have eczema herpeticum. Its horrible, something I wouldnt wish upon anyone! It has put me in the hospital many times and led to staff infections! And unfortunately for me the outbreak it always on my face!

I started having the skin problems like eczema and psoriasis as a baby then the others slowly developed around the age 10 along with my Crohn's. Unfortunately the didnt find out I had the Crohn's until 10 years later.
__________________
Dx: Crohn's Disease, Ulcerative Colitis
Medications previously taken:
Imuran
Remicaide
Hydrocodone
Pentasa
Methotrexate

Current Medications:

Apriso
Hycoscyamine
Vitamin D3
Prednisone
Valtrex (for chronic infections)


*Soon to be starting IVIG Infusions*
11-28-2012, 02:11 AM   #60
ron50
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Location: nambour, Queensland, Australia

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When I was a kid I was dxed with bronciextasis which is a serious lung disease. I never had it ,the bubbling they could hear in my chest was my stomach poking up thru a hiatus hernia and resting on my lungs. That did not stop them from treating me and for years whenever I got a cough I was put on two drops of creosote in a glass of milk at night. I hate to think how much of that stuff I took .It used to come out of my pores . The kids at school used to comment that I had a funny smell. Any wonder I developed irritable bowel and colon ca by the time I was 48. The chemo I had for ca has openned a whole new world of auto immune problems for me. One of the drugs I was given,levamisole ,was banned around 2000 because of fatal side effects. Now I suffer psoriatic arthritis but only mild psoriasis,type two diabetes ,peripheral neuropathy in both feet ,legs and left hand. Protein-urea of the kidneys ,nearly in the nephrotic range. It has caused pulmonary oedeema and started congestive heart failure. My heart has enlarged biigger than max normal. I have been hospitalised with vertigo and they suspect it may be meniers. I have severe tinnitus.I have survived stage3c colon cancer for close to 15 years ,sometimes well sometimes ! !!! Just one day I'd like to get up and think gees I feel good...Ron.
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